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Support Groups

CALDA has set up a national network of moderated online patient support and information groups. The California group is located at http://health.groups.yahoo.com/group/californialyme.

If you are not in California, go to the Activism drop down menu to find your own state or click here.

Several local support groups also exist. Contact the moderator if you plan to attend, to make sure details have not been changed.

East Bay Lyme Education & Patient Support (L.E.A.P.S.)

WHERE: Alta Bates Summit Medical Ctr. Conference Room
2001 Dwight Way, Berkeley, CA
WHEN: 4th Tuesday each month: 6:30-8 PM
CONTACT: Barbara Arnold
EMAIL: Arnold@ferae-naturae.com
PHONE: 510 595-0381
 

East Bay Lyme Group (San Ramon/Danville)

WHERE: No scheduled meetings at this time
CONTACT: Lucia Hui
EMAIL: lyme123@aol.com
PHONE: 925-743-9418
 

Humboldt Lyme Awareness Group (HLAG)

WHERE: Church of the Joyful Healer
1944 Central Ave, McKinleyville, CA
WHEN: Every 3rd Monday of the month. 5:30-7:30 PM
CONTACT: Sylviane Schwarz
PHONE: 707-825-7835 (weekday afternoons only, please)
 

Los Angeles/Orange County Lyme Support

WHERE: Presbyterian Intercommunity Hospital
Reception Desk (Main Entrance)
12401 Washington Blvd., Whittier, CA 90602
Tel. 562-698-0811
WHEN: alternate months on Saturdays from 1 to 3 pm. Check with coordinator to find out which day.
CONTACT: Earis Corman
PHONE: 562-947-6123
 

Marin County Lyme Disease Support Group

WHERE: No scheduled meetings at this time
CONTACT: Lee Lull
EMAIL: lymeaway@yahoo.com
PHONE: 415-927-9553
 

Mid Peninsula Lyme Disease Support Group

WHERE: El Camino Hospital/Room C
2500 Grant Road, Mt. View, CA
WHEN: 2nd Tuesday each month: 6:30-8:30 PM
CONTACT: Scott
EMAIL: ldsg_scott@hotmail.com
 

Napa Lyme Support Group

WHERE: Best Western Inn
100 Soscol Avenue, Napa, CA 94558
WHEN: First Tuesday of each month: 6:30-8 PM
CONTACT: Lupe Herrera
EMAIL: loveroflifeone@yahoo.com
PHONE: 707-257-8531
*New patients please come 1/2 hour earlier.
 

Sacramento Lyme Support Group

WHERE: Mercy General Hospital, 40th & J Streets, Sacramento (Greenhouse room)
WHEN: meets monthly (email for date and time)
CONTACT: Dorothy Leland
EMAIL: dorothy_leland@yahoo.com
 

San Bernardino/Riverside County Support Group

WHERE: CSEA meeting room,
10211 Trademark St., Unit A,
Rancho Cucamonga, CA
WHEN: 2nd Sunday of even numbered months, 2-4 PM
CONTACT: Anne Mears, RN, BSN
EMAIL: MCFighter@adelphia.net
PHONE: 909-289-4795
 

San Diego Lyme Support Group

WHERE: Site varies, contact moderator
WHEN: Time varies, contact moderator
CONTACT: Maritza
E-MAIL: maritza@plant-people.com
 

San Luis Obispo Lyme Support Group (Central Coast)

Where: Contact us for meeting times and places
When: Third Sunday of the month
Contact: Sheila Jeffries
Email: free091004@yahoo.com
 

San Francisco Lyme Support Group

WHERE: St. Luke’s Hospital ACR Conf. Room
3555 Cesar Chavez St, San Francisco, CA
WHEN: 2nd Thursday of every month from 3 - 5 pm.
CONTACT: Diana
E-MAIL: SF_Lyme@yahoo.com (note underline between SF and Lyme)
PHONE: 415-786-9010
 

San Francisco S.E.A.L. (Support, Education, & Advocacy for Lyme)

WHERE: St. Luke’s Hospital ACR Conf. Room
3555 Cesar Chavez St,
San Francisco, CA
WHEN: 3rd Tuesday each month: 2-4 PM
CONTACT: Robin Krop
E-MAIL: sf_seal@sbcglobal.net
PHONE: 415-202-0174
 

Santa Clarita Lyme Disease Support Group

Where: Optimal Health, 25078 Peachland Ave Ste B Newhall CA 91321
When: 2nd Thursday of the month, 7-9pm
Contact: Linda Slocum
Email: scvproperties@ aol.com
Phone: 661-670-0349
 

Santa Cruz County Tick-Borne Disease Support Group

WHERE: Unitarian/Universalist Fellowship
6401 Freedom Blvd, Aptos, CA
WHEN: 4th Thursday each month: 7-9 PM
CONTACT: Sarah Olson
EMAIL: CaliforniaLyme@cruzio.com
PHONE: 831-662-2895
ONLINE SUPPORT: http://health.groups.yahoo.com/group/sclyme/
 

Santa Rosa Lyme Aid (Education, Support &Advocacy)

WHERE: Conference Room 3, Sutter Medical Center,
3325 Chanate Road, Santa Rosa, CA 95404
WHEN: Every 2nd and 4th Tuesday: 6-7:30 PM
CONTACT: Kathleen McCormick
EMAIL: kathleenmc1953@sbcglobal.net
PHONE: 510-205-6854
 

Sierra Foothills Lyme Disease Support Group

WHERE/WHEN: No scheduled meetings at this time
CONTACT: Meg Hughes
EMAIL: Hughes@ncws.com
PHONE: 530-432-4280
 

Ventura County Lyme Disease Support Group

WHERE: The Los Robles East Campus
150 Via Merida
Westlake Village, CA. 91320
WHEN: 3rd Saturday each month: 1-3 PM
CONTACT: Lisa Messner
EMAIL: lisa.messner@hcahealthcare.com
PHONE: 805-231-3485
 

Lymenet Leaders' Group

Support group leaders, activists and advocates may apply to join the Lymenet Leaders group to share with other group leaders, activists and advocates, by going to http://health.groups.yahoo.com/group/lymenet_leaders/. Members use this site to share information with and keep in touch with other leaders, to share strategies, to critique and gain support for projects, and to discuss plans for events.

Not in California?

If you are not in California, other people in your state are probably the best source of information about support groups in your state. To find other people with Lyme disease in your state, join your online state group. For information about the online state groups, click here. [LINK TO http://www.lymedisease.org/activism/not_calif.html] If you don't get help from your state group, please check the support groups listing at LymeNet. Click here to go to LymeNet.