This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy Kupcha Leland has a family member with Lyme disease. She is co-leader of a Lyme patients’ support group, and is LymeDisease.org's VP for Education and Outreach.
Needy Meds is a resource for people who need help with the cost of medical care. The organization is a clearing house for Patient Assistance Programs (which can help you get free or reduced cost medications) drug discount cards, and more. Now they are offering HEALfundr, a way to help you “crowdfund” your medical bills. Continue reading →
A father regrets that he failed to believe his daughter really had Lyme disease. His message to others who have family members with Lyme: “Lyme disease is real, the pain is real, the problem with logical thought is real, the lack of energy is real.” Continue reading →
More than 100 Lyme advocates held a “silent vigil” outside the New York Times building this week, joined by a group of silent dancers. They were protesting the media’s silence on Lyme disease and called for more and better coverage of the subject. Paula Kozinn took pictures at the event and shares the following observations. Continue reading →
The following guest blog is excerpted from a lengthy interview with Lyme pediatrician Dr. Charles Ray Jones on the Lyme Connection website. In this section, Dr. Jones discusses how 20 years of harassment by medical authorities almost got him to give up treating children for Lyme–and what prompted him to keep at it. Continue reading →