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LYMEPOLICYWONK: SIGN THE PETITION TO REMOVE THE IDSA GUIDELINES FROM THE NGC!
Medical treatment guidelines are tremendously important in determining your treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC), which is part of the US Department of Health and Human Services. It’s the government’s way of providing updated information about different diseases to health care professionals. NGC’s own rules require that listed guidelines be updated every 5 years. The Infectious Diseases Society of America has not revised its controversial Lyme disease guidelines for more than 5 years. Nevertheless, the NGC recently permitted the IDSA to continue listing the Lyme guidelines without updating them. Continue reading
TOUCHED BY LYME: Teen with Lyme will be featured on ABC’s 20/20 show

Her YouTube videos caught the attention of ABC news. Continue reading
TOUCHED BY LYME: Misdiagnosed Lyme turned into horrific experience

Guest blogger Jennifer Crystal writes about damage caused by “illiteracy of tick-borne illness.” Continue reading
NEWS: The Lyme Times looks at Embers monkey study

The latest issue of the Lyme Times is on its way to members of LymeDisease.org. Continue reading
NEWS: FDA issues warning about controversial therapy for MS

Federal agency says a treatment for multiple sclerosis known as CCSVI has serious risks and unproven benefits. Continue reading
NEWS: Spreading Lyme message to highway motorists

For the second year in row, Massachusetts advocates have sponsored a Lyme billboard Continue reading
NEWS: Share your Lyme awareness activities here

Upload a photo of your Lyme awareness activity to our photo wall. Continue reading
TOUCHED BY LYME: “A lost childhood: The hidden faces of Lyme disease”

LymeTeens, an on-line social network support group for teens with Lyme, has created a video for Lyme disease awareness month. Continue reading
TOUCHED BY LYME: Four years since AG action & we’re still stuck with the d*** IDSA guidelines

Petition to remove IDSA Lyme guidelines from NGC has passed 21,000. Please sign and share now. Continue reading
NEWS: Summary of recent Morgellons conference

Morgellons is a mysterious condition that gives rise to fiber-like growths on the skin. Continue reading
LYMEPOLICYWONK: The IDSA Guidelines And Embers At a Glance Table.

I have blogged about the Embers study previously. The Embers study essentially dismantles much of the science that the IDSA relies on in their Lyme guidelines. This post presents a table of the IDSA guideline assumptions and recommendations that the Embers study refutes. This is just one of the many, many reasons the IDSA guidelines should be revised.
Continue reading
NEWS: Lyme message to light up Times Square for month of May

LDA to run a video ad on the Jumbotron for nine weeks. Continue reading
NEWS: Is Lyme disease under-diagnosed in Minnesota?

An investigative report from Channel 9 TV in Minneapolis-St. Paul. Continue reading
TOUCHED BY LYME: 20-year-old’s advice to her 14-year-old self: “You gotta have hope”

The “co-stars” of this unique video are each the same person, at different stages of her Lyme journey Continue reading
NEWS: “The Lancet” publishes rebuttal letters by Lyme advocates

Three letters refute charges that the Lyme community is “anti-science” and a “threat to public health.” Continue reading
NEWS: Can you tell the tick from the poppy seed?

We’re often told that nymphal ticks are the size of a poppy seed. Can you find the tick among the seeds on this bagel? Continue reading