TOUCHED BY LYME: A beginner’s guide to learning about Lyme disease

16th January 2012


I get contacted all the time by people seeking information about Lyme disease. Here's my updated resource list I share with anyone who asks.

Lyme Disease Information Links

www.lymedisease.orgthe website of (formerly the California Lyme Disease Association) gives info about ticks, Lyme disease, co-infections, prevention, the Lyme Times, risk maps, downloadable brochures, blogs, news and events. is also on Facebook  and on Twitter. There is also a listing of in-person support groups (California only).

Dr. Burrascano’s Lyme treatment guidelines. Print out this 37-page document and highlight the parts that pertain to you. Take a copy to your doctor.

CaliforniaLyme–on-line Lyme discussion group for Californians. (Find similar groups in other states by clicking here)

Lymenet–Discussion groups, doctor recommendations. Listings of in-person support groups by state.

ILADS–International Lyme and Associated Diseases Society. Make special note of their downloadable brochures.

Gastrointestinal manifestations of Lyme.

Psychiatric manifestations of Lyme.

Lyme and multiple sclerosis

Public Health Alert–monthly newspaper on Lyme and related issues. Read it free on-line.

Lyme and autism

Recommended books and films:

The Lyme Disease Solution, by Dr. Kenneth Singleton

The Lyme Diet, by Dr. Nicola McFadzean. What to eat while healing from Lyme.

Cure Unknown: Inside the Lyme Epidemic, by Pamela Weintraub. Excellent explanation of the scientific, medical and political turmoil surrounding Lyme disease.

Insights Into Lyme Disease Treatment: 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies by Connie Strasheim. This book can be read on-line for free.


Under Our Skin, award-winning Lyme documentary film. Available for free viewing at

Putting Lyme Behind You, 2-DVD set. Dr. Burrascano lecture, along with a panel of other Lyme-treating doctors. Available for purchase here.

Other resources:–Lyme Testing Access Program. Financial assistance for Lyme diagnostic testing.

Info about how to save money on medical lab tests.–Financial assistance for obtaining medication. Click here for a YouTube video that explains the process.–a service that helps you obtain low-cost medications.

Clinic of Angels–financial assistance for Lyme treatment

Free on-line book, Infusing for Lymies, lots of information about PICC lines and IV drugs.

Filing for disability benefits when you have Lyme.


Outside of the United States:

Canadian Lyme Disease Foundation

BADA-UK (Borreliosis and Associated Diseases Awareness UK)

Lyme Disease Action (UK)

Lyme Disease Association of Australia

Karl McManus Foundation (Australia)

AussieLyme (on-line support group)

France Lyme

Tick Talk Ireland

Lyme Poland


TOUCHED BY LYME is written by Dorothy Kupcha Leland,’s VP for Education and Outreach. Contact her at


9 thoughts on “TOUCHED BY LYME: A beginner’s guide to learning about Lyme disease

  1. Wrote a Lyme disease brochure with the help of 2 Lyme disease specialists. Will be happy to email a copy to anyone interested. You can reach me also through youtube under :: Lyme disease brochure video. God bless, Elaine

  2. I wish I had this information in 1999 when I was bitten! Dorothy, you are a GODSEND, and because of you, nobody else has to suffer. THANK YOU for ALL you do…xo

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