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Evidence-Based Health Care Resources
CALDA is committed to evidence-based medicine and the role of the patient in helping to craft evidence-based health care policy. Evidence-based medicine is defined as the best research evidence combined with clinical expertise and patient values This is consistent with the 1978 statement of the World Health Organizations: The people have the right and duty to participate individually and collectively in the planning and implementation of their health care.
Two CALDA board members, Dr. Raphael Stricker and attorney Lorraine Johnson, have written several articles addressing evidence-based medicine and Lyme disease. Three key articles include:
- Johnson L, Stricker RB. Treatment of Lyme disease: a medicolegal assessment. Expert review of anti-infective therapy [serial on the Internet]. 2004; 2(4): View Article.
- Johnson L, Stricker RB. Attorney General forces Infectious Diseases Society of America to redo Lyme guidelines due to flawed development process. J Med Ethics [serial on the Internet]. 2009; 35(5): View Article
- Johnson L, Stricker RB. The Infectious Diseases Society of America Lyme guidelines: a cautionary tale about the development of clinical practice guidelines. Philos Ethics Humanit Med [serial on the Internet]. 2010 2901226]; 5: Available open access at: View Article.
Listed below are some of the organizations and other resources that we have found helpful in pursuing this goal.
The Cochrane Collaboration Consumer Network (CCNET), provides consumer input into developing Cochrane systematic reviews of best evidence in health care. The Cochrane Collaboration is an international not-for-profit organization that develops systematic reviews of evidence using the GRADE system of evidence evaluation. CALDA is a member of CCNET. The Cochrane Collaboration Consumer Network (CCNET)
Consumers United for Evidence-based Healthcare (CUE) is a national coalition of health and consumer advocacy organizations committed to empowering consumers to make the best use of evidence-based healthcare (EBHC). CUE was organized in 2003, when the US Cochrane Collaboration invited advocacy groups to join a consumer advocate-scientist partnership. It is a pioneering effort to improve consumers' ability to engage in and demand high quality healthcare. CUE member-organizations work in partnership with the US Cochrane Center and other scientists to communicate the language of evidence-based health care, strengthen the voice of consumers, and provide leadership in healthcare research. Consumers United for Evidence-based Healthcare (CUE) PDF
Consumers United for Evidence-based Health Care and the US Cochrane Collaboration teamed up to produce a course in evidence based medicine for consumers who want to know more. Registration is open and free of charge. Understanding Evidence Based Healthcare Foundation Action
Pharmalot is a blog by Ed Silverman, a prize winning journalist who has covered the pharmacy industry for over 15 years. Pharmalot
Integrity in Science Project seeks to raise awareness about the role that corporate funding and other corporate interests play in scientific research, oversight, and publication. Integrity in Science Project
Pubmed provides a database of peer-reviewed articles in medical journals: Pubmed
Institute of Medicine (Committee on Conflict of Interest in Medical Research Education and Practice). Conflict of interest in medical research, education, and practice. Lo B, Field M, editors. Washington, DC: National Academies Press.; 2009. Committee on Conflict of Interest in Medical Research Education and Practice
Institute of Medicine (Committee on Quality of Health Care in America). Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academies Press; 2001. Available from: Committee on Quality of Health Care in America.