Almost every day, someone will post the following question on one of the many Lyme-related on-line support groups: I'm newly diagnosed (or think I might have Lyme.) How can I find out what I need to know?

Almost every day, someone will post the following question on one of the many Lyme-related online support groups: I’m newly diagnosed (or think I might have Lyme.) How can I find out what I need to know?

What follows is an information sheet I’ve compiled for members of my support group. It is by no means all-inclusive. I find I need to strike a balance between giving people adequate information and inundating them with too much to process.

Lyme Disease Information on the Internet

www.lymedisease.org — The California Lyme Disease Association’s website features lots of information about ticks, Lyme disease, co-infections, prevention, back issues of the Lyme Times, risk maps, downloadable brochures, blogs, news and events.

https://groups.lymedisease.org/ — online Lyme discussion group for Californians. (Find similar groups in other states by clicking here)

www.lymenet.org — Discussion groups on a variety of topics, including doctor recommendations.

www.lymepa.org/Basics2007v1.2Rev.pdf — free downloadable brochure — “Lyme Disease and associated tick-borne diseases: The Basics” 5th Edition 2007 by Douglas W. Fearn, of the Lyme Disease Association of Southeastern Pennsylvania. Written in a non-technical question-and-answer format and was reviewed for accuracy by several prominent Lyme-literate physicians. 

www.ilads.org — website of the International Lyme and Associated Diseases Society. Download  Dr. Burruscano’s Lyme treatment guidelines and a variety of useful brochures.

www.lymenet.de/literatur/vtsherr_gut.htm — gastrointestinal manifestations of Lyme.

www.mentalhealthandillness.com/lymeArticles.htm — psychiatric manifestations of Lyme.

www.lymeinfo.net/multiplesclerosis.html — Lyme and multiple sclerosis

www.publichealthalert.com — monthly newspaper on Lyme and related issues. Read it free on-line.

www.lymeinducedautism.com — Lyme and autism

www.lymedoctor.com — website for the book The Lyme Disease Solution, by Dr. Kenneth Singleton. Highly recommended as a primer for people needing to learn about Lyme disease, fast.

www.cureunknown.com — website for book Cure Unknown: Inside the Lyme Epidemic, by Pamela Weintraub. Excellent explanation of the scientific, medical and political turmoil surrounding Lyme disease.

www.underourskin.com — website for Under Our Skin, award-winning documentary film about Lyme disease.

You can contact this blogger at dleland@lymedisease.org.