Lorraine Johnson IDSA Review Hearing Speech
The IDSA has now posted links to all of the presentation videos. I decided to retape my video outside the hearing so that it will not be subject to the IDSA's decisions about how long to post or keep the archive. The video on the IDSA site includes the Q&A and reflects the proceedings that day.
The IDSA Lyme Panel Review Hearing in Washington DC was streamed live over the Internet July 30. This hearing is part of the antitrust settlement that the Connecticut Attorney General negotiated to address “serious flaws” in the IDSA guidelines process.
Eighteen speakers–representing patients, physicians, and research scientists–testified. You can access videos from all of the presenters at http://webcast.you-niversity.com/idsaArchives/. The video speech that I taped after the hearing is below–the official with Q&A is on their site.
If you are having trouble viewing this video, click here to view a flash video.
Awesome that finally we have someone from the lawyer side to look into these matters. We are really suffering and all they can say is Lyme is no big deal? this has to got to change…
I am glad that this hearing is a part of antitrust settlement which was actually something that was under the negotiation of Connecticut attorney general which was actually made to report serious matters in the process of IDSA guidelines. I am also surprised to know that there were around 18 speakers which embodied physicians, patients as well as research scientists. Anyway, try to watch the above video in flash as it is much more clearer!
I’m glad they’re finally putting this controversy into some action. Lyme disease is spreading world wide and something must be done to address this before it becomes an epidermic.
Hello. This is a very infomative and needed video, Thanks for putting it out there. I, like many others are suffering with Lyme. I have a very long road to recovery.( 5 kids also) I was wondering if you could contact me? I am also going through some medical issues that need attorneys input or involvment to do with Lyme and the hindering of my treatment. I would like to put you in contact with my attorney here, I am sure you can offer great advice/help. Thanks for your time. I look forward to the days my children have their mom back! Melissa