LYMEPOLICYWONK: LYME IS PART OF A MUCH BROADER DEBATE ABOUT THE ROLE OF PATIENTS IN HEALTHCARE
The broad debate about the role of consumers in health care policy is important to the Lyme community. However, many of the things that have harmed Lyme patients, powerful unresponsive medical societies with conflicts of interest, the patients’ lack of voice in the process, and access to care limitations should concern every patient, regardless of the disease. An important article on patients and their skepticism for evidence based medicine appeared in Health Affairs this month. (“Evidence That Consumers Are Skeptical About Evidence-Based Health Care”). Ray and I responded to the article with an eletter, “Consumer Acceptance Depends on Whether Guidelines Reflect Patient Values”, which is published with the article. Links can be found after the jump.
Bring on the links!
Carman et al, “Evidence That Consumers Are Skeptical About Evidence-Based Health Care”
Johnson and Stricker, “Consumer Acceptance Depends on Whether Guidelines Reflect Patient Values”
My original blog post on the article goes into more depth.
You can follow additional comments on Lyme policy at www.lymepolicywonk.org. You can contact Lorraine Johnson at lbjohnson@lymedisease.org.
hi lorraine,
when i saw the above links, i prayed when i saw the combo from you/ray that you or whoever, would have made the suggestion i sent you both last night.
copying it all in either the legible font VERDANA OR ARIAL vs. timesnewroman thatruns allwordstogether likethisforme and perhaps other severely NEURO lyme patients.
nope; so i'm unable to read this as i'm not going to spend alot of time to copy, change fonts, and then break up the long paragraphs that my 40.5 yr. neuro mind can't comprehend.
but thanks lorraine for letting others know who don't have the problems i do reading things in TNR and those long, long paragraphs.
we are BLESSED to have you as our lyme/co-infection advocate! thanks for ALL the time you devote to the lyme causes!
my heartfelt thanks lorraine.
bettyg, iowa lyme activist
mdjunction.com lyme
board group leader 🙂
and the MDJ board has 700 OTHER illnesses/symptoms; so check it out gang! something for everyone. if it's not there, they will create it for you!
thanks for keeping us updated