As someone repeatedly misdiagnosed despite presenting a classic constellation of symptoms, I can tell you most local doctors couldn’t identify a case of Lyme if it bit them in the face. And since the standard test boasts an accuracy rating about as effective as a coin toss, it’s often left to drill deeper into the nervous system, where it can cause crippled limbs, impaired cognition and constant nerve pain. It can be fatal.

It’s difficult and expensive to find treatment that helps chronic Lyme. I drove an hour an a half to visit a “Lyme-literate” medical doctor (LLMD) because Philadelphia has a notorious dearth of LLMDs, and my doctor was willing to prescribe the only treatment course I’m aware of that can help: long-term antibiotics.

Some doctors believe long-term antibiotics help eradicate advanced or chronic cases of Lyme and common tick-borne co-infections. Others believe that chronic Lyme doesn’t exist at all and that long-term antibiotics has no benefit.