Lyme Disease Healthcare Policy Resources Page 1
The following is a selected list of Lyme disease healthcare policy resources from speeches, publications, and other documents by LymeDisease.org.
ILADS Lyme Treatment Guidelines
The latest ILADS guidelines were published in 2014 in an open access journal. The guidelines cover three common issues faced by clinicians: management of a known tick bite, antibiotic treatment of patients with erythema migrans rash, and management of patients who remain ill following antibiotic therapy for Lyme disease.
Two Standards Of Care
This document (written by LymeDisease.org CEO Lorraine Johnson) presents a summary of the controversy surrounding the divergent treatment approaches reflected in the Lyme disease guidelines of the Infectious Diseases Society of America and the International Lyme and Associated Diseases Society.
Massachusetts Insurance Legislation on Lyme disease
Drawing on our survey results and a key cost of illness study by Dr. Zhang of the Centers for Disease Control and Prevention, our submission in support of MA insurance legislation tells the story of how the cost of Lyme disease has been displaced by insurers onto patients, their families, society and public governments.
Lyme Patient Quality of Life Survey
This study, published in PeerJ in 2014, reports the results of an LDo survey of more than 3,000 patients with chronic Lyme disease. It found that chronic Lyme disease may be long lasting, may significantly impair patient quality of life, and may be costly to patients, employers, healthcare systems and society.
Lyme Patients Access to Care Survey
This study reports the results of an LDo survey of more than 2,400 patients with Lyme disease. It examines problems with access to healthcare and burden of illness, and it found that although patients with Lyme disease suffered a substantial burden of illness, they had significant barriers to healthcare access.
Financial Burden of Lyme disease
LDo Executive Director Lorraine Johnson, JD, MBA, presented at the Lyme forum hosted by New York Congressman Chris Gibson at Skidmore University on May 21, 2012. The speech focuses on the financial burdens associated with Lyme disease using the results of LDo’s access to healthcare survey study.
