LYMEPOLICYWONK: My presentation to TBD Working Group
On December 11, I was privileged to address the inaugural meeting of the federal Tick-Borne Disease Working Group. This panel, established by the 21st Century Cures Act, brings together experts from a variety of disciplines as well as patient representatives, to inform federal action related to Lyme and related diseases.
The meeting was in Washington DC, and I delivered my remarks remotely. Watch my 10-minute presentation here.
The LYME POLICY WONK blog is written by Lorraine Johnson, JD, MBA, who is the Chief Executive Officer of LymeDisease.org. You can contact her at lbjohnson@lymedisease.org. On Twitter, follow her @lymepolicywonk. If you have not signed up for our patient-centered big data project, MyLymeData, please register now.
Dear Lorraine,
I want to take this opportunity to express my appreciation for your incredible work on behalf of all of us with Lyme Disease and co-infections. I am so grateful to be able to be a part of My Lyme Data and look forward to benefiting from the arduous work you and your colleagues at lymedisease.org have (and continue to) accomplish.
As a result of “Lyme Brain” I find it difficult to express myself as I would like. I am so pleased to have your clear mind and articulate voice speaking for me.
Thank you.
JAR