Treatment:
There are several Lyme Foundations that help patients find financial help for their treatments. Here are a few:
- LivLyme Foundation – financial aid for children
www.livlymefoundation.org - LymeLight Foundation – financial aid for patients age 25 and younger
www.lymelightfoundation.org - LymeAid4Kids – up to $1,000 in treatment aid for those under age 21
www.lymediseaseassociation.org/category/grants/lymeaid-4-kids - Lyme Treatment Foundation – $4,000 for treatment no age limit
www.lymetreatmentfoundation.org - Lyme Connections – fund is limited to residents of Connecticut
www.lymeconnection.org - Ride Out Lyme – grants for adults 26 and older
www.rideoutlyme.org - Sam’s Spoons Foundation – mainly focused on residents of Pennsylvania but may accept applications from surrounding states
www.samsspoons.org - Ticked Off Foundation – grants to patients 26 an older
www.tickedofffoundation.org
Testing:
The cost of testing for Lyme disease and co-infections can be daunting. Here are a couple of groups that help with testing costs:
- LymeTap – Pays up to 75% of first time testing. Note: Due to high volume they frequently runout of funds so keep checking back as funds are replenished.
www.lymetap.com - Lyme Treatment Foundation – opening grants for testing in May 2022. Grants up to $1,000
www.lymetreatmentfoundation.org - Recommended labs for tick borne disease testing (all are CLIA approved)
- IGeneX: 800-832-3200
- StonyBrook: 631-444-3824
- MDL: 877-269-0090
Medication Assistance:
The cost of medication can be overwhelming even when you have insurance. The following prescription relief companies offer discounted prescriptions. They are worth trying even if you have insurance, especially if the drug you need is not on your insurance company’s formulary.
- RxAssist – www.rxassist.org
- NeedyMeds – www.needymeds.org
- Bridges to Access – Malarone and Mepron for Medicare patients and patients who do not have insurance
www.rxresource.org/prescription-assistance/bridges-to-access.html - GoodRx – www.goodrx.com
- RxHope – www.rxhope.com
- PrescriptionHope – www.prescriptionhope.com
Additional Patient Resources:
- Weekly Newsletter – Stay up to date with the most current Tick-borne disease information by signing up for our weekly newsletter
www.lymedisease.org/sign-up-lyme-disease-newsletter - LymeDisease.org Additional Resources – Our website has additional resources that might be of help in your Lyme journey
www.lymedisease.org/members/resources/lyme-disease-resources-non-members - Touched by Lyme and Lyme-Sci Blogs – Numerous blogs on updated treatments, patient stories, and helpful ideas.
www.lymedisease.org/news-blogs/touched-by-lyme
www.lymedisease.org/news-blogs/lyme-sci - MyLymeData Viz Blogs – Discusses results of the MyLymeData patient research study and why we need patient led research
www.lymedisease.org/mylymedata-viz-blog - LymeDisease.org News and Focus blogs – Includes news stories and guest blogs on tick-borne diseases.
www.lymedisease.org/news-blogs/news
www.lymedisease.org/news-blogs/focus - The Lyme Times – The Lyme Times started out as a one page document and has evolved into the premiere “go to” journal for patients and practitioners on Lyme and Tick-borne diseases. Each issue also has a downloadable/printable pdf for those who prefer to not read online or who have vision issues that make it hard to read.
We are proud to provide these Open Access Issues below. Other Issues can be accessed for a nominal membership fee of $50.00. Membership helps to fund the production of the journals and weekly newsletter.
You can view excerpts of the other issues here:
www.lymedisease.org/members/lyme-times/archive - Open Access Lyme Times Issues
1. Lyme Disease Books (2022 Issue)
www.lymedisease.org/members/lyme-times/special-issue/lyme-disease-books
2. Lyme In The Time of COVID (Spring 2020) Special Issue
www.lymedisease.org/lyme-times-covid-19-issue
3. Co-Infections Special Issue
www.lymedisease.org/lyme-times-coinfection-special-issue
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