NEWS: Australian family sick with disease that "doesn’t officially exist" in their country
The mother of the family, once a wildlife officer, has had more than 300 tick bites, and tests positive for Lyme. Her daughter appears to have been born with the disease, and her husband shows symptoms (though his test results are equivocal.) Authorities maintain "there's no Lyme in Australia," making the family fight for recognition and treatment.
From the Sydney Morning Herald:
Battle against disease – and scepticism
May 8, 2010
Officially, the illness stalking a family does not exist here, writes Julie Robotham.
THE soles of Matilda Young’s feet hurt and she has trouble catching her breath after her frequent coughing attacks. At night, she drenches her bed with sweat.
But the disease with which the three-year-old has been diagnosed does not exist in Australia, according to the Health Department, leaving Matilda and her parents alienated and battling for recognition and treatment.
The Coffs Harbour family is at the sharp end of an academic battle over Lyme disease, a bacterial infection spread by ticks, which causes fever, headaches and a rash and can travel to the joints, heart and central nervous system if untreated.
Officially, no case has been transmitted in Australia and the organisms that cause it – three species of the genus borrelia – are not carried here by wildlife, livestock or their parasites.
But the Youngs – mother Natalie has also tested positive and and father Steven’s test was equivocal – confound that dogma because they have not been to the United States or Europe, where Lyme is common.
Ms Young believes she was infected while working as a field officer for the National Parks and Wildlife Service. ”I was 100 per cent in the bush. I did a lot of bushland regeneration stuff,” said the 34-year-old, who can no longer work.
She estimates she has had more than 300 tick bites. On one occasion in 2002, she was bitten 110 times.
Read the rest of the story here.
I am Natalie's father. I would like to thank Dr Mayne Natalie's treating Doctor.A man of compassion and determination. I have written to Health Authorities in NSW Australia about Lyme. I have submitted well researched documentation to the Healthcare Complaints Commission and the Ombudsman of NSW. I am disappointed with their head in the sand attitude
How can they ignore this? It's incredibly common in Europe and the US, and if it has moved to Australia, how can they not realize that it will spread and become more common? My well-wishes go out to your family, Chris. I admire you for fighting this academic battle. Keep it up and be encouraged!
Alex K.-Lyme Disease Fighter