Finding healing after four decades of Lyme-related misery
By Christian Scarborough
I grew up on a little farm in Northern Virginia, just outside Washington DC, in what was then a very rural, middle-class community. That part of Fairfax County is now one of the wealthiest in the nation.
In addition to being around livestock, grass fields and woodlands, my brothers and I liked to hike, camp, hunt and fish. In Virginia, that meant encountering ticks! We routinely pulled them off our bodies, thinking nothing of it. We also dealt with plenty of fleas from barn cats and house dogs.
As a teenager, I began experiencing severe pain in my hands and other joints. An orthopedic surgeon prescribed me the first NSAID – Clinoril – which was later pulled due to its dangerous side effects. He said he felt strange giving a 16-year-old arthritis medication, but that I clearly had it systemically. This was also around the time I started struggling with anger issues, depression and anxiety. I was given prescription sleeping medication by an internist.
I have always been an adventure athlete and health/fitness geek, which as it turns out has saved me many times. People look at me and say you look amazing at 62, but they have no idea of the battle I’m fighting and why so many health issues I’ve had most of my life now make sense.
Severe GI issues
It all came to a head in May 2023, when I began to have severe GI issues and lost 27 pounds. After eight months and several false diagnoses ranging from pancreatic cancer to SIBO, the top GI practice in Austin punted. They said, “You have irritable bowel syndrome. Don’t eat anything and take these horrible meds forever.”
Well, the meds were awful. My gut would spasm so violently that it tore up my insides, but the antispasmodic they gave me had terrible side-effects, too. Another medication swung things to the opposite extreme, leaving me constantly balancing between diarrhea and constipation. And along with this I had severe shin and foot pain at night, no energy, blurry vision, an overall feeling I was falling apart.
A new doctor
I finally went to an integrative physician who specializes in treating complicated illnesses. Unlike other doctors, she spent close to two hours with me, asking detailed questions about my medical history. I told her everything.
Even before I had the very expensive, cash-only blood tests, she said, “I’d bet my medical license that you have Lyme.” And boy was she right! It turns out I also have Babesia and Bartonella.
The first thing she did was address my severe GI pain, spasms and diarrhea – and in a way not one GI doctor had ever suggested. She put me on a nightly microdose of naltrexone, and within a week I was much better. At normal doses, naltrexone is used to treat opiate addicts and alcoholics, but you have to think outside the box in order to effectively treat Lyme.
As anyone who is being comprehensively treated for chronic Lyme disease will tell you – treatments aren’t fast, easy, painless or cheap. The months of oral antibiotics made my already fragile gut worse. Then, they switched me to six weeks of intramuscular Rocephin shots, four days a week rotating between my glutes and thighs. It was as brutal as it gets.
Rocephin is so painful it’s mixed with straight lidocaine, and it still feels like someone hit you with a hammer. I am a tough man. But those shots made me want to cry. The volume is so large it has to be split into two syringes of material with the viscosity of motor oil. I sit in an infusion center every week surrounded by very sick people, many with Lyme, mold, cancer or a combination.
Sleeping through the night
I have been getting weekly procaine IVs with vitamin B12. The results have been amazing! I am sleeping through the night for the first time I can remember – albeit I am still taking Clonazepam before bed. And I find myself in a calmer, more relaxed state in general.
Procaine helps reset the central nervous system. In combination with the daily microdose of ketamine I take per my psychiatrist, it has greatly improved my quality of life and my outlook on fighting Lyme. And at least now I can make sense of why I’ve had three total joint replacements, a foot of colon removed, shin pains, foot tumors, insomnia, anxiety, overall fatigue and brain fog, etc.
I am convinced there are many people like me who are suffering from vector-borne illness and have tried everything with no results. They need to know there is hope.
This week the 25th annual conference of the International Lyme and Associated Diseases Society is being held in San Antonio, Texas, and my doctor is one of the featured speakers. I hope healthcare professionals in the audience listen and learn from her.
Christian Scarborough lives in Texas.
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