NEWS: Stanford researchers recruiting chronic Lyme patients
Stanford University is looking for chronic Lyme patients for a study that is partially funded by CALDA.
This is info from a flyer from Stanford University:
Immune Responses and Symptoms in Lyme
Disease Patients and Healthy Controls
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Stanford University
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Are you interested in participating in a research project at Stanford University researching Lyme disease?
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Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā Ā You could be included in this important research if you:
Ā·Ā Ā Ā Ā Ā Ā Ā have been diagnosed with Lyme disease
Ā·Ā Ā Ā Ā Ā Ā Ā are an adult aged 21 years or older
Ā·Ā Ā Ā Ā Ā Ā Ā speak and read English
Ā·Ā Ā Ā Ā Ā Ā Ā have never been homeless
Ā·Ā Ā Ā Ā Ā Ā Ā since 2005 have not taken antibiotics everyday for 2 consecutive years
Ā·Ā Ā Ā Ā Ā Ā Ā allow for your medical record to be reviewed within this provider’s office for diagnoses and lab results
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This study will evaluate and compare the sensitivity of various Lyme disease tests to their clinical diagnoses and test results of persons who are healthy and have never been diagnosed with Lyme disease.
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Participants will have their blood drawn for diagnostic tests used for Lyme disease.
Following this, they will complete questionnaires related to quality of life,
demographics, distress, medical symptoms and treatment, coping and pain during a one-time 2 to 3 hour visit at Stanford University.
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By participating in this study you will:
- Ā§Ā Contribute valuable information that may benefit adults living with Lyme disease
- Ā§Ā Receive a one-time $50 payment
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If you are interested in learning more about this exciting study, please contact:
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Alexandra Aylward, Project Coordinator 650-725-5590
Cheryl Koopman, Principal Investigator
For general information regarding questions, concerns, or complaints about research, research related injury, or the rights of research participants, please call (650) 723-5244 or toll-free 1-866-680-2906, or write to the
Administrative Panel on Human Subjects in Medical Research, Administrative Panels Office, Stanford
University, Stanford, CA 94305-5401
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Ā This study is funded jointly by the CALDA, Turn the Corner, the John and Nancy Jo Cappetta Foundation and an anonymous donor.
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I was bitten at Bodga Bay, ca in 1992, my leg blew up with infection within 3 day. it took a yr to clear it up but Lyme was never mentioned as I got sicker and sicker. Before that i had only been to ER 2 x in 50 yrs.after that i went many time. In Oct 2004 in Elk Grove, CA I was bitten again, this time I had a typical bulls eye rash with the tick still inside my leg. I went to many doctors who all thought i was nuts or under stress because i have a disabled husband,even after seeing the rash i was denied care. I was not diagnosed until End of May 2005 when I saw DR Shaw in Palo Alto. I have seen many doctors since been locked away and told i was crazy. I test pos for babesia and I had all signs of Bart. My husband also tested pos for Bab. I have seen many doctors in the past 6 yrs and tried many treatments and spent well over 100k out of my own pocket. I fell I am 95% better and filling a full active rich life once again. I hope I can help you. I want to help other who are suffering and are not yet where I am. No one should be treated the way I was but I know we all have the same stories just different names and faces.
I would love to help in any way I can.
I have not taken antibs since 2005 .
I have never been homeless.
I am 68 yrs old.
You are very welcome to any medical records.
Pretty sure I have found the secret to healing from this wretched disease. I'd love to offer insight or simply help in any way possible!
if you have the key to thriving with Lyme, please share! catgrrrrl@gmail.com
Living with chronic Lyme.
Diagnosed by Eric Gordon MD.
Not taken everyday Abx for two consecutive years.
Never been homeless.
Speak and read English.
Will make medical records available.
Age 63.
Maryann, How and who made you well again? Im to the point and have been despirate for my life back for 4 years now. Lost 3 homes, two offices, bankrupsy and many other things, drained bank account and am now on state insurance because I spent all the money I had on doctors and herbalists. I can see how people finally give up and just let themselves die slow agonizing death. Its the most awful disease I know of. Its torture! So any advice you have as to how you found yourself well again would be great news for me and many other lyme friends of mine.
Thank you and praying you stay well š Stay as stress free as possible and enjoy your life back sweet lady. you give us hope
I have been having IV’s. I am also on many herbals and suppliment. it has been a long journey back.
Female, age 66, California born and raised. First bite in 1956 in Sierras, giant EM in 1973 in Hayward CA bit by mosquito, diagnosis in 1988 at Samsum Clinic, 10 days Doxycicline, reinfected & got Babesiosis and Bartonella and ??? From a blood transfusion at Stanford in Jan, 2007. And almost died of anemia. Been on Embril for a couple of years at a time since 2003. (severe psoriasis and P Arthritis from Lyme)
Currently (last six months) on and off different antibiotics for various infections. Never had Abx for more than six months and no treatment for Lyme diseases. Divorced and destitute due to Lyme for over twenty years. I have all the listed symptoms for LD except Bells Palsy. I want to help others. It's probably too late for me, but I keep hanging on.
I’m 35
I have Chronic Lyme
I speak English
I haven’t been on abx everyday for 2 years.
I’ve never been homeless and you can see all my medical records!
I’ve been really sick with lyme the past four years to the point I thought I was dying before any Doctor or specialist figured out what was wrong. I just got the IgeneX test done this October and came back positive. Both my kids (14 and 16 year olds) also came back positive also. I would love any help I can get!
Iām 35 and living with Lyme disease.
I was bitten in 2011 and diagnosed in 2014. Diagnosis was based on serology test and clinical symptom (the ELISA was positive however just one nonspecific antigen came up positive in western blot).
I take Abx everyday from four months ago.
I still have severe arthritis, GI problem, brain fog,…..
Never been homeless. Speak and read English. Will make medical records available.
I am more than happy to help.