Still time to take Lyme patient survey; end date is Dec. 31
If you haven't taken LymeDisease.org's patient survey yet, please take a moment to share your views. The patient perspective on Lyme treatment options is largely ignored by the medical establishment. With information from this important survey, we hope to change that!
Click here to learn more about the survey and to take it yourself.
(Note: the system only allows one survey per computer. If you have multiple family members with Lyme, they will need access to additional computers to take the survey.)
39 years with lyme here
Steve. I met a girl that has been battling lyme for 2 years of suffering. We discussed what I knew of your story and she was in disbelief. Jordan and I are in NYC now. Don’t get up to NH much, but still have the house. Sold all the cars. I was thinking about you and I hope that you are okay. Jeff
I am a minor child (now age 8) w/ (motor neuron) neurological disability and developmental delays with very positive (CDC)-confirmed (IgM/IgG) Borrelia burg and (IgG)-Erhlichiosis denied my individual and civil rights of (ILADS) treatment under guardian ad litemship of my Lyme-infected birthmother/RN under (ADA) Title II, III, V (w/ Retaliation) under Section (504) Rehabilitation. Please Help Me.
39 years with lyme here
From someone who has tried it all! Nothing works for Chronic Neuro lyme (with no joint pain) that is natural. Do not even bother other than chlorella (make sure mercury tested), and a few supplements to help you out oalong the way(not a cure). Rife machines, MRS, Biophoton machines, Johan Boswinkel, Hansa Clinic, gcmaf.eu (took 15 shots thus far no change). Everyone will try to sell you MLM products! Warning ASEA, to juices, to MMS does not work as a cure. Just want to help save money for those who think they might help. I wasted 100K on those things and want my expense lesson passed on.
I was bitten back in 1978, when I was 17yrs old, and before they tested for Lyme. I was MIS-diagnosed, of course and now at the age of 51, most days I feel 81 yrs old. Its getting harder and harder to do the things I love to do…like decoration for Christmas. This year, I decorated the house but I didnt put my tree up…it was TOO overwhelming even thinking about it. I cant even think about a yr from now, how much more debilitated I will be and feel…its scary. Please, PLEASE help find a cure.
LD for 12 years now and it has been a constant struggle. Good days are few , bad days are plentiful.
I was diagnosed in July 2009 & treated for 6 weeks. Then I suffered for 2 1/2yrs with false negatives I found a LLMD in Septeember. Sent my bloodwork to IGenix. Not only to have a positive results for Lyme, but also a positive results for Babesia.
PPlease help find a cure! I have Lyme disease and I'm from Florida. My test results were the highest level for bacteria my Dr. Has seen since she began treating Lyme disease 13 yrs ago. I just want to lead a normal life again without all the debilitating symptoms. Please help us find a cure for this disease that is spreading faster than aids and is now in every part of our country. Thank you! Karen from Florida
3 cases of confirmed Lyme disease over two years.