LDo provides legal, ethical and healthcare policy analysis for the Lyme community. We fight for access to appropriate medical care for Lyme patients and for the rights of their treating physicians. We review state and federal legislation and compile data from our surveys to support policy change. We were a driving force behind the Connecticut Attorney General’s civil investigation of the Infectious Diseases Society of America’s Lyme guideline development process.
We seek to change public healthcare policy through advocacy and science. For the past 10 years, our executive director has been actively involved in the arena of evidence-based medicine and patient-centered care, both nationally and internationally. Currently, she leads the Patient Council for PCORnet, the research network of a government funding agency called the Patient Centered Outcomes Research Institute. She also is Co-Chair of Consumers United for Evidence-Based Medicine, a coalition of 40 patient organizations, and is a consumer peer reviewer for the Cochrane Colloquium.
