Why “Big Data” is a big deal for Lyme disease
LymeDisease.org will soon launch a patient-powered research project called MyLymeData.
It promises to be the largest study of chronic Lyme patients ever.
Our latest issue of The Lyme Times explains all about it. If you are a member of LymeDisease.org, this is on its way to your mailbox.
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I am hoping this BigData evidence will help Lyme patients. One aspect of Lyme disease has been greatly ignored though. The oral connection. I had 4-5 years of Lyme treatment and was doing great until my treatment was jerked. I have finished watching all 33 videos of the dental summit. For me, a big step because of the financial position Lyme has put me in, I bought all the videos for $127. Among all the unbelievable symptoms I had, that even went away during my Lyme treatment, the oral infection came back. Slowly, then increasingly. It drove me out of my mind. I am still dealing with it. No LLMD or other Lyme advocate said much about it. I knew it was there, but was made fun of, told it was unimportant, etc. For me, when i first got sick, the metallic taste was ignored by even my LLMDs. I have now lost all my teeth and the oral infection is raging. I am finally seeing a dentist on Oct 16th who does 3-d xrays. I am hoping for the best and hoping for a solution. For any Lyme patients, please do not ignore the oral involvement..Just a note. Oh yes, I did have many amalgam fillings which I had removed improperly because I didn’t know any better. Is that when all my problems started? Or was it the flu vaccine (first in my life in my mid 50s.) that I got sick from? Was it all the prednisone I had been given for so many years? Who knows. Maybe all these combined that set the perfect storm for the Lyme that was hidden in my system probably passed by my mother. I will never know it all, and really all I want is to get well. Like the rest of us, I am so very tired of being sick. I blame it all on the criminality of establishment medicine. From brainwashing doctors in medical school, to not recognizing the suffering of multiple-millions of Lyme patients. They just fire us as patients, call us crazy, ignore our suffering, and so on.
Send me a copy of your OPG film if it is taken.
Ozone through the ears will treat your mouth.
Bio-resonance with daily testing will also help.
The information supplied by Lyme Disease.org is a treasure. I am doing a study of Lyme Disease for the quarterly journal of the CA Dept of Fish and Wildlife. When my report is complete,to date, it will be seen by a few thousand State Hunter Education instructors and others as I can work with. The Lyme problem is far greater that all previous explanations have indicated. My studies will continue and I plan to present to other groups of people enjoying the great outdoors.
My story: https://www.facebook.com/Lyme-disease-how-hard-lyme-treatment-can-belymen-vaikea-hoitoisuus-658340144344208/?qsefr=1