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Lyme Policy Wonk

The complexities of IACCs: what do “long haul” diseases have in common?

15
OCT
2024
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LYMEPOLICYWONK: 10 things you should know about new IDSA guidelines

04
DEC
2020
idsa lyme guidelines comments
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LYMEPOLICYWONK: When decisions are foregone conclusions

02
DEC
2020
who chooses
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LYMEPOLICYWONK: The pivotal role of patients in Lyme disease research

18
NOV
2020
MyLymeData
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LYMEPOLICYWONK: MyLymeData, powered by patients, helps drive Lyme research

03
NOV
2020
lorraine johnson interview
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LYMEPOLICYWONK: The BMJ publishes our response to article dissing ILADS guidelines

09
JUN
2020
BMJ published an article entitled Lyme borreliosis: diagnosis and management
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How has COVID-19 affected you personally? Take our survey.

22
MAY
2020
COVID-19 & Lyme survey
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LYMEPOLICYWONK: Patients can’t wait, whether it’s COVID-19 or Lyme

23
APR
2020
safe shopping
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LYMEPOLICYWONK: Its members don’t treat much Lyme, but IDSA makes the rules

03
FEB
2020
TBDWG--public comment
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LYMEPOLICYWONK: Panel lacks balance, excludes needed voices

17
SEP
2019
Tick-borne disease working group
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LYMEPOLICYWONK: Will patients be effectively represented on Working Group?

31
MAY
2019
TBDWG
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LYMEPOLICYWONK: Who represents Lyme disease patients? Why it matters.

13
MAY
2019
Tick-borne disease working group
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LYMEPOLICYWONK: Get your copy of the MyLymeData 2019 Chart Book

02
MAY
2019
MyLymeData Chart Book 2019
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LYMEPOLICYWONK: Patients want NIH to prioritize chronic Lyme research

15
MAR
2019
NIH survey results
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LYMEPOLICYWONK: Take our survey on NIH’s Lyme disease strategic plan

27
FEB
2019
NIH Lyme disease research strategy
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LYMEPOLICYWONK: Why HIPAA privacy rules must not be eroded

12
FEB
2019
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LYMEPOLICYWONK: New blog helps interpret MyLymeData

18
JAN
2019
MyLymeData Viz Blog - Lyme disease research
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LYMEPOLICYWONK: Abandon “Post-Treatment Lyme Disease Syndrome” label

11
DEC
2018
The term PTLDS harms Lyme patients
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LYMEPOLICYWONK: Using MyLymeData to Build a Research Engine

05
DEC
2018
Lorraine Johnson, CEO of LymeDisease.org
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LYMEPOLICYWONK: The problem of misdiagnosis in Lyme disease

27
NOV
2018
Society to Improve Diagnosis in Medicine
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LYMEPOLICYWONK: “Chronic Lyme disease” remains a contentious term

12
NOV
2018
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LYMEPOLICYWONK: “Super responders” are key to personalized Lyme disease treatment

19
OCT
2018
Lyme disease super responders
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LYMEPOLICYWONK: What Lyme disease treatments are most effective?

10
AUG
2018
MyLymeData
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LYMEPOLICYWONK: Lyme disease costs may exceed $75 billion per year

19
JUL
2018
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LYMEPOLICYWONK: What I told TBDWG about “two standards of care” for Lyme disease

21
JUN
2018
Tick-borne disease working group
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