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Lyme Policy Wonk

LYMEPOLICYWONK: IDSA says revision of Lyme disease guidelines expected to take 2-5 Years

06
APR
2016
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LYMEPOLICYWONK: Chronic Lyme European PLEASE Trial—You know it’s spin when treatment “success” is called “failure”?

30
MAR
2016
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LYMEPOLICYWONK: Lorraine Johnson speaks about MyLymeData to help find a cure for Lyme disease

15
MAR
2016
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LYMEPOLICYWONK: LDo goes to the White House for Precision Medicine Summit

03
MAR
2016
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IDSA Lyme guidelines removed from NGC; ILADS guidelines still there

12
FEB
2016
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LYMEPOLICYWONK: Zika, Ebola, and Lyme—What Do They Have in Common?

02
FEB
2016
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2500 people have enrolled in MyLymeData. Have you?

20
JAN
2016
MyLyme Data image
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LYMEPOLICYWONK: The White House, citizen science, big data and Lyme disease

05
OCT
2015
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LYMEPOLICYWONK: My speech at MedX on Lyme disease and patient-centered big data research

28
SEP
2015
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LYMEPOLICYWONK: ILADS Lyme guidelines on National Clearinghouse!

21
SEP
2015
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LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme

17
SEP
2015
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LYMEPOLICYWONK: Growing Number Of Chronic Lyme Patients—Still No Government Action Plan?

11
JUL
2015
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LymePolicyWonk: Delayed diagnosis of Lyme disease has devastating effect on patients

28
MAY
2015
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I add my thoughts to AEON Lyme disease discussion; you can too

26
APR
2015
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LymePolicyWonk: IDSA Lyme disease survey results out! What’s important to patients?

24
APR
2015
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LYMEPOLICYWONK: Deadline extended; you can still comment on IDSA

13
APR
2015
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LYMEPOLICYWONK: 67 Groups Submit IDSA Lyme Guidelines Process Comments

09
APR
2015
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LYMEPOLICYWONK: IDSA Guidelines Survey

27
MAR
2015
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LYMEPOLICYWONK: IDSA Guidelines Revision Process–Cause for alarm?

18
MAR
2015
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LYMEPOLICYWONK: The IDSA chooses a token patient for its new guidelines revision process

16
MAR
2015
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The FDA and Lyme Disease Testing—FDA is Listening, but Does it Matter?

03
FEB
2015
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LYMEPOLICYWONK: Two Standards of Care Revisited: Should Lyme Patients Have A Choice?

07
JAN
2015
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LYMEPOLICYWONK: LymeDisease.org responds to Slate’s “Lyme-Illiterate” article

13
DEC
2014
Slate goes after NY legislation
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LYMEPOLICYWONK: FDA Proposed Regulation of Lyme Tests? Take the Survey!

22
OCT
2014
FDA
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LYMEPOLICYWONK: Two-Tiered Lab Testing for Lyme Disease—No Better Than a Coin Toss. Time for change?

09
OCT
2014
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