TOUCHED BY LYME: Her son’s “nightmare of illness” led her to path of helping others heal from Lyme
Ann Corson, MD, one of the speakers at LymeDisease.org’s Jan. 22 Lyme patient conference in San Francisco, knows what the parents of her young Lyme patients go through. Back in 2001, she was working as a family practice physician in Chester County, PA, when her son was bitten by a tick—and their whole world changed.
The following is taken from an article Dr. Corson wrote for the Lyme Times in 2006. Its message still resonates today.
My son came to me one night in April of 2001 with an engorged deer tick on his left ear. I removed it carefully and cleansed the area. Then, as I had been taught, I did not treat but watched and waited for signs of disease.
If only I had known the consequences of that one tick bite. If only I had known that I could send that fat juicy tick off to a lab to check for the presence of four different tick-borne diseases.
Watchful waiting only allowed the nightmare of illness to grow. My son never had a flu-like illness or an EM rash. He just became ill insidiously over many months with a sore throat here, a headache there, and with lots of abdominal pain. I took him for second opinions and was told more than once that nothing was seriously wrong, that he had irritable bowel syndrome or emotional problems.
Then, in January of 2002, he had a severe five-day illness with fever over 105 degrees that wouldn’t break, mild hepatosplenomegaly (enlarged liver and spleen), abdominal pain and headache. Other doctors said it was the influenza virus. In hindsight, I think it was Babesia.
After that illness, he was always fatigued and couldn’t tolerate aerobic exercise anymore. He slept a lot and was extremely difficult to get up for school. In December of 2002, my son had his lower two wisdom teeth extracted one day after contracting a severe head cold. He never recovered from that insult. He was in bed, unable to function. Throughout all this time, he had had three negative ELISA tests for Lyme disease.
In March of 2003, a friend handed me the pamphlet distributed by the Lyme Disease Association of Southeastern Pennsylvania (www.lymepa.org). I devoured the booklet, then printed off and inhaled Dr. Burrascano’s treatment guidelines.
My son woke up on the sixth day of antibiotic treatment complaining that his fingers were so sore he could hardly open them. He had never complained of joint pain before. I knew then that he did indeed have Lyme disease, as he must have been experiencing his first Herxheimer reaction. Subsequent testing revealed infection not only with Borrelia burgdorferi, but also with Babesia microti, Bartonella henselae and Mycoplasma fermentans.
Despite aggressive treatment, my son missed the first half of 11th grade and the last three quarters of 12th grade of high school. After improving through the spring and summer of 2004, he suffered another clinical collapse in the fall of 2004. He started with new anxiety, depression, complex auditory, visual and olfactory (odor) hallucinations, and demonstrated inappropriate social behavior. His fatigue was overwhelming.
Testing revealed that despite being treated the year before, Babesia microti was back. Borrelia burgdorferi was also still very active. He lost his ability to do schoolwork. He couldn’t read or gather thoughts to write. He couldn’t do math. He couldn’t type on the computer keyboard.
A SPECT scan of his brain in November of 2004 showed marked hypoperfusion (low blood flow). After months of aggressive treatment, a repeat SPECT scan in May 2005 showed marked improvement in the blood flow to his brain.
As a mother, my child’s illness was and still is a misery I wish on no parent. As a doctor, I am grateful that my son’s illness has led me on the path of helping other parents and their children. I will never forget when one mother reported to me that her delightfully precocious and personable six-year-old boy said one day, “I don’t have holes in my brain anymore.”
Dr Corson provided me with the following update on her son:
Joseph is now 24 years old. He graduated from Franklin and Marshall College with a BA in philosophy, and then spent a year at St. Andrews in Scotland doing post-graduate work in Analytic Philosophy. Currently, Joseph is working for an equestrian facility applying the principles of classical horsemanship, the foundation of modern dressage, to the training of horses, and expanding his skills as a rider.
Dr. Corson now specializes in treating Lyme and tick-borne diseases in her Chester County practice. She has worked closely with Lyme experts Drs. Joe Burrascano and Charles Ray Jones. She’s a member of ILADS and helps train LLMDs. She has a special interest in the use of integrative medicine to treat Lyme disease, including German biological medicine. She’ll be visiting the west coast this month to speak to medical professionals at the BioResource conference in San Francisco. She has graciously agreed to stay over an extra day to address our patient conference.
“Getting Healthy Again: Using Integrative Medicine to Heal from Lyme Disease,” will be held Sunday, Jan. 22, at the Westin Hotel, San Francisco Airport, 1-4:30 pm. Pre-registration is $40 per person, though Jan. 18. Registration at the door is $45.
Click here for registration information.
To read Dr. Corson’s whole article from the Lyme Times 2006, click down below where it says “download attachment.”
TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s VP for Education and Outreach. Contact her at dleland@lymedisease.org.
I owe my life to this woman, because of her I am now well enough to be a Mom with Chronic Lyme. Mine like her sons started at a young age and misdiagnosed for 15yrs. When I first started treament I did well then relapsed no had to start IV and like her son I had the worse herxheimers of my life. So bad I was using a cane or wheel hair on almost a daily basis. It was clear that my symptoms had layed dormant for many years and I was just "getting by". Now so many of my symptoms have disappeared. I may not ever be cured but now I can look forward to being a Mom this coming February. I can enjoy my time with my baby and feel reassured that I can and will have the life I've always wanted. Thank you Dr. Corson!!
*a word to anyone who may unfortunetly come across concerns with having Lyme. Lyme is not just Lyme. There are many co-infections and viruses you can get. Even if you are treated, watch for other symptoms. If you are not treated properly for the co-infections you may still be sick. 14 days antibiotics is NOT a cure.
I’ve seen a lot of postings that Lyme’s may be discovered in many members of a family. Has anyone recommended that you test other members of your family?
Sounds all too familiar. I lived in susanville then moved to redding not knowing i had been exposed to lyme already a tick was on me for 4 days engorged and i was instantly lethargic and joints all felt fused entire time it was on me. Been fighting to get life back since, 4 years now. Thank you for posting this! I will share with the 700 other lyme friends I have on FB. Hope your son is doing better! Its so hard to see us all suffering and most Dr.s do know acknowledge this disease!
did he ever do the ccsvi treatment?
i am told i need this soon, but i heard it re-stenoses…
it would be grt to get the blood back into the brain!
This is for Allison….u may already know this but please be aware your baby may be born with Lyme. Mine were and I will recommend this..to not vaccinate. My daughter had a severe reaction to the first and after we did none. On various sites I have noticed children born to lyme moms do not do well with vaccines and damage occurs. Both my girls are extremely healthy…we monitor with blood work do as much organic as possible and they have never had any antibiotics and no traditional medicine not even Tylenol. Just wanted to caution you…it is not an easy road as I am sure u know from ur experiences. Enjoy your new role as Mom.
J Kaufman – I am Alison's gestational surrogate and Aunt. We were told that her eggs are fine but if she carried the baby, that's when the Lyme could potentially (probably) be transmitted to the baby so that if why she and her husband chose surrogacy. We're just about 37 weeks along now and praying for a happy & healthy baby in a few weeks as any family would be!
Would like to know how to improve Hypoperfusion. Any info you could send me would be appreciated. The 24/7 headaches due to low blood flow are causing me to lose my mind!!
I would like to recommend an energy medicine system called BodyTalk to use along with your medical treatment. BodyTalk sessions will help bring your body into a healing state and will accelerate your healing. Bodytalk practitioners have spoken if many successes with their clients. Check out the main website for a practitioner near you. http://Www.BodytalkSystem.com
My son ia now 19 years old. He never likes to be around people, even family. He was diagnosed over 2 years ago with Chronic Lyme Disease. We turned to Eastern Medicine since Western Medicine Dr’s gave up on him. Telling is time & time again there was nothing wrong with him & that is was all in his head. He was very active in sports & loved being outdoors! We don’t know what else to do for him to help motivate him into getting back out in the real world. Any suggestions? I used to work full time but have started working part time so I can try & get him to eat & take his supplements at the same time every day. He tells me he just wants to be normal again.