By Melissa Wright

COVID-19 has created a ‘new normal’ for many of us over the last year. The way we live, work, and shop for our daily needs has been drastically modified. An unprecedented number of people in the United States have contracted the illness and many have lost loved ones.

With vaccine distribution now underway, we at MyLymeData want to know how you think the vaccine may affect you. Therefore, we have launched a new COVID-19 survey. It focuses on your vaccination plans and/or concerns, your risk of exposure, and your level of comfort or concern with carrying on with your normal day-to-day activities amidst the pandemic.

If you have taken the vaccine, we want to know whether you had any side effects.

This is a different survey from the one we launched last year about the impact of COVID-19. You can take this one whether or not you took the first one.

How do you take the survey?

If you are already enrolled in MyLymeData, all you have to do is log in and click on COVID-19 Vaccine Survey for Lyme Patients on your participant dashboard. If you have not yet joined MyLymeData, now is the perfect time to sign up.

More than 14,000 people have enrolled in MyLymeData since we launched it in 2015. It allows patients to privately pool information about their Lyme disease experiences—and is now the largest observational study of Lyme patients ever conducted.

Visit MyLymeData.org to register and complete the entry survey(s). Then the COVID-19 Vaccine Survey for Lyme Patients will be available on your participant dashboard. It is that easy. However, if you have questions or experience trouble, please email us at mylymedata@lymedisease.org.

We look forward to learning and sharing how the COVID-19 vaccine is impacting the Lyme community.

We hope you’ll enroll or log in to MyLymeData today and take the new COVID-19 survey.

Melissa Wright, LymeDisease.org’s Director of Patient Engagement & Outreach, is a member of the MyLymeData team.