NEWS: Putting your case of Lyme disease on the map
Discover Magazine’s website has posted an interactive map for Lyme disease. You can place a red dot showing where you contracted Lyme, and share your story (up to 100 words) if you like. Red dots are starting to pop up across the US and Canada. We’ll check in periodically to see what the map looks like.
Here’s how the map looks on November 5, 2013, a few days after the magazine launched it.
Click here to make your own entry on the map.
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I was infected with Lyme Disease in July of 2007 while doing yard work for my daughter in Waupaca WI. My liver started failing, I could not make coherent sentences, I had fever, terrible headache and a chain link fence rash over my entire body. I was hospitalized for 6 days. I still get swollen hands & knees. I was left with lesions on the brain. I still get tired and need to rest days at a time, never seems to be rhyme or reason to it. Listing to the left while walking is not a defined as it was, although it still happens. I was diagnosed when my daughter an RN demanded I be tested for Lyme’s and demanded I get antibiotics for 21 days. It took me almost a year to recover to function. I am not fully recovered and doubt if I ever will be reach full recovery. Lynn Reinke
Lyme and rocky mountain spotted fever living in Peel Arkansas. 2011
lyme disease and rocky mountain fever 2011, peel arkansas..
After 16 years with lyme disease,some unnecessary operations and many wrong diagnosis. The Norwegian government closed the clinic where I was being treated and, confiscated the work permit to the doctor in charge. I was with a full (antibiotics and strict diet)treatment and controlled by doctors ,leaving me along with many hundreds of other patients. I am now without antibiotics and without treatment. I feel that I do not have any human rights, I feel like I’m being tortured every day by one of the richest countries in the world…I do not understand, no one cares, no one helps, shame of a country.
Frederick, MD
In Jan. of 2013, I was diagnosed with Lyme disease, bartonella and babeosis. All three diseases are tick borne, and could possibly have come from the same tick. My doctor and I believe I have had the disease for more than twenty years. It has taken a huge toll on my health. I wish and hope that some day soon a cure will be found for all the humans and pets who suffer from tick borne illnesses.
AnnieCampbell
Humbolt national Forest 1978 got a tick imbedded in the back of my knee got treated at the time, but its’ Chronic Lyme went 33 years with incorrect diagnosis, I don’t have lupus.
I am currently 6 months into remission with chronic Lyme disease. I believe I have had it for over 30 years, contracting it in Keene, NH and many years later, again in Ogunquit ME. Lyme, along with many co-infections, has brought me on a rocky road of misdiagnosis, treatments that never worked, and many challenges in my life. I was finally diagnosed in 2009 and after 3 1/2 years of treatment, I now have my life back. It is critical that you see a ‘Lyme Literate’ doctor and be your own advocate in the process. My treatment was a combination of Western and Eastern medicine.
I contracted lyme disease in Wittenberg, WI in 2002. After years of joint, muscular, and heart issues, a multitude of tests and a couple of unnecessary surgeries, I was diagnosed with lyme disease by my Naturopathic doctor in 2010. I went into remission for 1 year but about a year ago, symptoms resurfaced and I have been treating ever since. I have good days and bad days but each day I wake up I feel blessed.
I think I got bit in Edison, NJ during my childhood. I remember having flu like re-occuring symptoms as a young girl. I am now 55 and started having arthritic like problems in my hand at 17. Woke up in 1999 having a hard time walking and getting out of bed. Got worse with numerous neurological symptoms. Doctor thought I had a brain tumor. Misdiagnosed with RSD, Rheumatoid Arthritis and then later MS. Treated for 14 years for MS. Found out I actually have Chronic Lyme Disease 10 months ago. Not only do I have Lyme, I also have Bartonella co-infection, candida and mercury poisoning. Unfortunately, I passed this awful plague to my two boys during pregnancy. This is a nightmare that should not be happening. Period! The government and doctors have turned their backs on sufferers of Chronic Lyme for too long. My family is spending thousands of dollars for our treatment that is not even covered by insurance. Like I said your worst nightmare…..
Diagnosed with Lyme in November 2016, in Louisiana after a sudden sharp pain in my foot and swelling in the ankle led to bacterial arthritis in all the major body joints within 3 days. Urgent Care diagnosed it and sent me to a specialist. Now taking high doses of antibiotics and praying for the best.
Ihave Chronic Lyme Disease, I am living in Miami.