Zoe Lu, a fine art photographer based in New York, was diagnosed with neurological Lyme disease and co-infections two years ago.

She tells me that for a period of time, she could not walk, think, read or even sleep. She suffered from severe headaches, brain fog, stiff neck, fatigue, joint pain and depression. “I completely lost the ability to function normally,” she says.

Fortunately, with treatment she has improved enough to undertake a special photography project called “Nowhere Land.”  It focuses on the plight of people living with chronic Lyme and other tick-borne disease.

“I want to document and photograph people who are experiencing chronic Lyme,” she says. “I hope the public can see our situation and the reality of our suffering. “

So far, she has photographed 18 people from New York, Connecticut, New Jersey, and California. She’s looking for others who would like to participate from around the US.

You can find out more about her project at her website or her Instagram page. If you’d like to participate, you can DM or email her.

Her are some samples of photos she has already taken for this project.

TOUCHED BY LYME is written by Dorothy Kupcha Leland, President of LymeDisease.org. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at dleland@lymedisease.org.