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Last week, on June 4, my eyes were glued to my computer screen. The occasion? The first meeting of the newly reconstituted federal Tick-Borne Disease Working Group (TBDWG). I’ll refer to this as the “2019 panel,” since that’s when its term began. You’ll recall that the first... Read More »

The following message was sent to the Tick-Borne Disease Working Group after its June 4 meeting. by Jeanne Ryan As an individual in recovery from late-stage/chronic Lyme disease and the co-infections babesia and bartonella, thank you to the group and, in particular, to Pat Smith... Read More »

Reps. Chris Smith (NJ) and Collin Peterson (MN) have introduced new legislation to create a new national strategy to aggressively fight Lyme disease and target an additional $180 million to boost funding for research, prevention and treatment programs. The new bipartisan bill,... Read More »

San Francisco Lyme specialist Dr. Raphael Stricker (a board member of LymeDisease.org) has recently returned from Hermosillo, Mexico. There, he delivered two talks at the LYRI Lyme Conference, sharing his knowledge with more than 350 medical personnel and patients. (LYRI is a... Read More »

The long-awaited ninth meeting of the Tick-Borne Disease Working Group took place in Washington DC on June 4. Our Lonnie Marcum live-tweeted the day’s proceedings. Move the scroll bar to view her tweets (and re-tweets and comments from LymeDisease.org President Phyllis Mervine.) Read More »

I submitted the following written comments to the Tick-Borne Disease Working Group, in advance of its June 4 meeting. If patient interests are not sufficiently represented on the Tick Borne Diseases Working Group (Working Group), then its processes will lack credibility and may... Read More »

Advocates continue to push for passage of Lyme-related legislation in Pennsylvania. So far, HB 629 has passed the House. A companion bill, SB 100, is under consideration in the Senate. The measure does several things. It allows doctors to clinically diagnose Lyme and treat it... Read More »

Things are getting weird with the Tick-Borne Disease Working Group, which is scheduled to meet June 4 in Washington DC. As you’ll recall, the first two-year session of the group ended in December 2018, when the panel submitted its first report to Congress. Also in December, the... Read More »

(Update: As of May 31, more than 17, 830 have signed the petition.) As of Friday afternoon, May 24, more than 13,000 people have signed our petition to keep Dr. Eugene Shapiro off the federal Tick-Borne Disease Working Group (TBDWG). Background: On May 15, the Infectious Diseases... Read More »