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The MyLymeData project has been in operation for more than three years now. With more than 12,000 patients enrolled, it is the largest study of chronic Lyme patients ever conducted. That’s a lot of facts and figures—literally millions of data points. To help readers make sense of... Read More »

The Society to Improve Diagnosis in Medicine (SIDM) is a non-profit organization that focuses on the issue of diagnostic error. Misdiagnosis is quite common in Lyme disease and the consequences can be devastating. The SIDM website recently featured the personal story of... Read More »

San Diego TV newswoman Brooke Landau has been a rock star to the Lyme community for many years now. First, there’s the inspiring example of how she overcame many roadblocks in her personal journey with Lyme disease. And then there are the ways she has been a national... Read More »

Two years ago, we discovered that my daughter was allergic to microcrystalline cellulose (MCC)–one of the most common fillers in medications and supplements. Just two months prior to that discovery, she was diagnosed with mast cell activation syndrome (MCAS). This followed... Read More »

By Jill Ross While many people anticipate the holidays with excitement, those suffering with chronic illnesses may approach the holiday season with anxiety and even dread. A chronic illness can make normal everyday life challenging enough. The extra expectations and demands of... Read More »

The Canadian government recently announced new investment in Lyme disease research. However, Canadian Lyme advocates fear that the patient voice will be excluded from the decision-making process. In the following article, the Canadian Lyme Consortium (CLC)–made up of... Read More »

Click here for Update #2, Jan, 7, 2019. Update #1: On Dec. 21, I called the TV station to inquire about Brooke’s surgery. The person I spoke with said that the surgery was a success, and that she is home from the hospital. We’ll report more information when we have... Read More »

By Kristina Manscill My heart goes out to all the parents out there who must try to heal from Lyme disease, while also raising children. It can be a depressing journey to try and have the patience and stamina required in parenting, when you can hardly get out of bed and take care... Read More »

On December 3, I gave oral comments to the federal Tick-borne Disease Working Group. I focused on how use of the term “Post Treatment Lyme Disease Syndrome” (PTLDS) harms patients. The term was initially introduced by the Infectious Diseases Society of America (IDSA)... Read More »