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My verbal comments to the federal Tick-Borne Disease Working Group, Dec. 3, 2018. My name is Dorothy Leland and I live in Davis, California. In 2005, my then-13-year-old daughter became seriously—mysteriously—disabled with unremitting, body-wide pain that kept her in a wheelchair... Read More »

Verbal Comments to the Tick-borne Diseases Working Group, December 3, 2018 by Phyllis Mervine I’m Phyllis Mervine, Founder and President of the patient advocacy nonprofit LymeDisease.org. I’m going to focus on the November 26 letter sent by the Infectious Diseases Society of... Read More »

Lyme disease predicted to rise in US as climate warms. By Caitlin Kizielewicz, Carnegie Mellon University Lyme disease is the most common tick-borne disease in North America and its incidence has risen sharply in the last decade. Since its progression depends on environmental... Read More »

by Amy B. Scher At 28 years old, and after years of suffering from medical issues that no doctor across the U.S. could unravel, I was finally given a name to the condition that had taken almost my entire life away: late-stage Lyme disease. I took my diagnosis like an over-sized... Read More »

My presentation to the Society to Improve Diagnosis in Medicine. On November 3, I was honored to give a presentation at the Patient Summit  of  the Society to Improve Diagnosis in Medicine’s (SIDM) annual  Diagnostic Errors in Medicine (DEM) conference. This nonprofit... Read More »

The following was posted on one of the online Lyme support groups affiliated with LymeDisease.org. The author has given me permission to share, but prefers that I not give his name and location. My grandmother’s spirit and memory continues to be an inspiration to me through... Read More »

By Donna Falcone Picture a couple raising two sons, hundreds of miles from any other family. The husband comes home from work and finds his wife lying in bed right where he left her that morning… again.  He asks “What did you do today?” Because she is feeling inadequate, the wife... Read More »

This is the tenth year I’ve had the privilege of writing a Thanksgiving-themed blog, acknowledging good things taking place in the Lyme community. Sometimes, alas, we get bogged down in the challenges that surround us and may fail to notice that there are positive developments,... Read More »

Dr. Neil Nathan’s new book, “TOXIC: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness,” is a must read for anyone wanting to unlock the mysteries of complex chronic illnesses. When Dr. Nathan started treating... Read More »