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The Adversity 2 Advocacy Alliance is a nonprofit organization dedicated to promoting and fostering the power of turning personal challenges into service to others with similar challenges. “A2A” is based on the premise that we help ourselves by helping others. Its co-founder, Jeff... Read More »

Phyllis Mervine, Founder and President of LymeDisease.org, submitted the following public comment to the federal Tick-Borne Disease Working Group. Towards the end of the Tick-Borne Diseases Working Group (TBDWG) meeting on June 21, 2018, there was some discussion about the... Read More »

Vox.com, July 27, 2018: By German Lopez Voters in Oklahoma on Tuesday elected to legalize medical marijuana, which makes the state the 30th to allow the use of cannabis for medicinal purposes. Oklahoma State Question 788 allows individuals 18 and older to obtain a medical... Read More »

From the Health and Human Services website: The seventh meeting of the Tick-borne Disease Working Group will be held on July 24, 2018, from 10:00 a.m. to 4:00 p.m. EDT. The Working Group will review and vote on the content of the five chapters that will be submitted into the... Read More »

Slate.com, June 27, 2018: by Maya Dusenbury and Julie Rehmeyer “A close look at the evidence suggests the controversial diagnosis should be taken more seriously, and that decades of sexism may be to blame for our collective dismissal.”   Porochista Khakpour’s new... Read More »

By Shona Curley Before Lyme, when something didn’t go my way, I stressed out. Like most healthy people, I was perfectly functional that way. I rushed my kids off to school, taught Pilates for eight hours, got home in time for dinner, dishes and bedtime – even if I was... Read More »

Stat News, June 25, 2018 by Andrew Joseph The Food and Drug Administration on Monday approved the country’s first drug derived from marijuana, a medication that treats two rare and devastating forms of epilepsy. The drug, GW Pharmaceuticals’ Epidiolex, is made of cannabidiol, or... Read More »

I was selected to give verbal comments at today’s federal Tick-Borne Disease Working Group meeting. Here’s what I told them: There is considerable uncertainty in the diagnosis and treatment of Lyme disease — particularly persistent Lyme disease. Most patients... Read More »

Medicare now requires “shared decision making” before it will pay for certain medical procedures. Shared decision making involves a balanced discussion between patient and physician of the risks and benefits of treatment alternatives. Together, they choose a course of action.... Read More »