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Eighty-six organizations in 10 countries have joined the Ad Hoc Patient and Physician Coalition, protesting the IDSA Lyme guidelines. (Update: 87 groups in 11 countries) Countries represented include: the US, Canada, Australia, France, Germany, the UK, the Netherlands, Belgium,... Read More »

Jennifer Platt gave the following public comments at the federal Tick-Borne Disease Working Group’s Sept. 12 web-based meeting. I’m Jennifer Platt from Pittsboro, North Carolina. I have my doctorate in public health from UNC and I am co-founder of Tick-Borne Conditions... Read More »

It had been six years and two months since I’d driven down the lane leading into Stanford. Not gonna lie. Driving past the hospital triggered a little PTSD. In 2014, my daughter was acutely ill. Referred by her pediatrician, we went from an inpatient stay at Stanford’s pediatric... Read More »

Last May, LymeDisease.org launched a petition asking for Dr. Eugene Shapiro’s removal from the federal Tick-Borne Disease Working Group (TBDWG). More than 31, 000 people have signed it. We have contacted the Department of Health and Human Services (HHS) many times about... Read More »

Here’s what I told the federal Tick-Borne Disease Working Group during public verbal comments at its Sept. 12 meeting. You can also read my longer written comments.  Good morning!  I am Lorraine Johnson, the CEO of LymeDisease.org. These comments are on behalf of 57 Lyme... Read More »

By Paula Jackson Jones On Thursday, Sept. 5, I was invited by Sen. Susan Collins to testify at the United States Senate Aging Committee hearing on the TICK Act: An Urgent Public Health Response to Tick-Borne Diseases. It was not an easy task for me to summarize my personal story... Read More »

I gave the following remarks as public comment at the September 12 web-based meeting of the federal Tick-Borne Disease Working Group. They are a shortened version of longer written comments I also submitted.  My name is Dorothy Leland. I am vice-president of LymeDisease.org. I’m... Read More »

The Ad Hoc Patient and Physician Coalition to protest the IDSA Lyme guidelines continues to gather steam–throughout the world. At this writing, 85 organizations in nine countries have endorsed the coalition’s rebuttal to the guidelines. (Update: 87 organizations) Countries... Read More »

The federal Tick-Borne Disease Working Group held a web-based meeting on September 12. Members of sub-committees were announced, with progress reports. LymeDisease.org’s Lonnie Marcum live-tweeted the event. Here’s a compendium of what she posted during the meeting. Read More »