Lyme Policy Wonk Blog List

• October 15, 2024
  The complexities of IACCs: what do “long haul” diseases have in common?
• December 4, 2020
  LYMEPOLICYWONK: 10 things you should know about new IDSA guidelines
• December 2, 2020
  LYMEPOLICYWONK: When decisions are foregone conclusions
• November 18, 2020
  LYMEPOLICYWONK: The pivotal role of patients in Lyme disease research
• November 3, 2020
  LYMEPOLICYWONK: MyLymeData, powered by patients, helps drive Lyme research
• June 9, 2020
  LYMEPOLICYWONK: The BMJ publishes our response to article dissing ILADS guidelines
• May 22, 2020
  How has COVID-19 affected you personally? Take our survey.
• April 23, 2020
  LYMEPOLICYWONK: Patients can’t wait, whether it’s COVID-19 or Lyme
• February 3, 2020
  LYMEPOLICYWONK: Its members don’t treat much Lyme, but IDSA makes the rules
• September 17, 2019
  LYMEPOLICYWONK: Panel lacks balance, excludes needed voices
• May 31, 2019
  LYMEPOLICYWONK: Will patients be effectively represented on Working Group?
• May 13, 2019
  LYMEPOLICYWONK: Who represents Lyme disease patients? Why it matters.
• May 2, 2019
  LYMEPOLICYWONK: Get your copy of the MyLymeData 2019 Chart Book
• March 15, 2019
  LYMEPOLICYWONK: Patients want NIH to prioritize chronic Lyme research
• February 27, 2019
  LYMEPOLICYWONK: Take our survey on NIH’s Lyme disease strategic plan
• February 12, 2019
  LYMEPOLICYWONK: Why HIPAA privacy rules must not be eroded
• January 18, 2019
  LYMEPOLICYWONK: New blog helps interpret MyLymeData
• December 11, 2018
  LYMEPOLICYWONK: Abandon “Post-Treatment Lyme Disease Syndrome” label
• December 5, 2018
  LYMEPOLICYWONK: Using MyLymeData to Build a Research Engine
• November 27, 2018
  LYMEPOLICYWONK: The problem of misdiagnosis in Lyme disease
• November 12, 2018
  LYMEPOLICYWONK: “Chronic Lyme disease” remains a contentious term
• October 19, 2018
  LYMEPOLICYWONK: “Super responders” are key to personalized Lyme disease treatment
• August 10, 2018
  LYMEPOLICYWONK: What Lyme disease treatments are most effective?
• July 19, 2018
  LYMEPOLICYWONK: Lyme disease costs may exceed $75 billion per year
• June 21, 2018
  LYMEPOLICYWONK: What I told TBDWG about “two standards of care” for Lyme disease
• June 15, 2018
  LYMEPOLICYWONK: Is shared decision making the wave of the future?
• June 1, 2018
  LYMEPOLICYWONK: Update on TBD Working Group. How did we do?
• May 25, 2018
  LYMEPOLICYWONK: Working to improve the diagnosis of Lyme disease
• May 1, 2018
  LYMEPOLICYWONK: 10 years after Under Our Skin, and the rise of patients as research partners
• December 19, 2017
  LYMEPOLICYWONK: My presentation to TBD Working Group
• September 20, 2017
  MyLymeData presentation at LDA/Columbia Conference on September 24, 2017 (Philadelphia)
• August 24, 2017
  LYMEPOLICYWONK: Canine maps predict Lyme disease risk better than the CDC does.
• August 3, 2017
  LYMEPOLICYWONK: Why Doesn’t the CDC Count Lyme Disease Cases in the South and the West? Everybody Else Does.
• June 7, 2017
  LYMEPOLICYWONK: Video of Dr. Christine Green’s MyLymeData talk
• June 3, 2017
  LYMEPOLICYWONK: Study finds antibiotics effective in treating MS.
• May 17, 2017
  LYMEPOLICYWONK: Video of Dr. Stricker’s MyLymeData Conference Presentation
• April 21, 2017
  LYMEPOLICYWONK: Conference Addresses Latest MyLymeData Results
• January 17, 2017
  LYMEPOLICYWONK: Do antibiotics help patients with Lyme disease who are also diagnosed with MS?
• January 10, 2017
  LYMEPOLICYWONK: Help Shape Top 10 Priorities for Lyme Research Agenda by Taking Our Survey
• December 27, 2016
  LYMEPOLICYWONK: MyLymeData Releases Preliminary Findings at Scientific Conferences
• December 19, 2016
  LYMEPOLICYWONK: Does questioning the government’s role in Lyme disease make you a conspiracy theorist?
• November 15, 2016
  LYMEPOLICYWONK: MyLymeData 3-month follow-up survey launched
• October 12, 2016
  LYMEPOLICYWONK: Is persistent Lyme disease caused by another organism identified by Dr. Willy Burgdorfer over 35 years ago? Why hasn’t anyone looked into it?
• September 12, 2016
  LYMEPOLICYWONK: Lyme disease: the promise of Big Data, companion diagnostics and precision medicine
• August 31, 2016
  LYMEPOLICYWONK: LymeDisease.org Comments on Proposed Antibiotic Stewardship Rules
• July 26, 2016
  LYMEPOLICYWONK: Two standards of care in Lyme disease
• June 21, 2016
  LYMEPOLICYWONK:  Panel Embraces Shared Decision-Making in Colonoscopy. How about Lyme disease?
• June 8, 2016
  LYMEPOLICYWONK: Lyme disease and shared medical decision making in guidelines
• April 19, 2016
  LYMEPOLICYWONK: Misdiagnosis of Lyme disease as MS –MyLymeData Quick Bytes
• April 6, 2016
  LYMEPOLICYWONK: Patient representation on the revised IDSA Lyme guideline panel: Is it real or token?
• April 6, 2016
  LYMEPOLICYWONK: IDSA says revision of Lyme disease guidelines expected to take 2-5 Years
• March 30, 2016
  LYMEPOLICYWONK: Chronic Lyme European PLEASE Trial—You know it’s spin when treatment “success” is called “failure”?
• March 15, 2016
  LYMEPOLICYWONK: Lorraine Johnson speaks about MyLymeData to help find a cure for Lyme disease
• March 3, 2016
  LYMEPOLICYWONK: LDo goes to the White House for Precision Medicine Summit
• February 12, 2016
  IDSA Lyme guidelines removed from NGC; ILADS guidelines still there
• February 2, 2016
  LYMEPOLICYWONK: Zika, Ebola, and Lyme—What Do They Have in Common?
• January 20, 2016
  2500 people have enrolled in MyLymeData. Have you?
• October 5, 2015
  LYMEPOLICYWONK: The White House, citizen science, big data and Lyme disease
• September 28, 2015
  LYMEPOLICYWONK: My speech at MedX on Lyme disease and patient-centered big data research
• September 21, 2015
  LYMEPOLICYWONK: ILADS Lyme guidelines on National Clearinghouse!
• September 17, 2015
  LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme
• July 11, 2015
  LYMEPOLICYWONK: Growing Number Of Chronic Lyme Patients—Still No Government Action Plan?
• May 28, 2015
  LymePolicyWonk: Delayed diagnosis of Lyme disease has devastating effect on patients
• April 26, 2015
  I add my thoughts to AEON Lyme disease discussion; you can too
• April 24, 2015
  LymePolicyWonk: IDSA Lyme disease survey results out! What’s important to patients?
• April 13, 2015
  LYMEPOLICYWONK: Deadline extended; you can still comment on IDSA
• April 9, 2015
  LYMEPOLICYWONK: 67 Groups Submit IDSA Lyme Guidelines Process Comments
• March 27, 2015
  LYMEPOLICYWONK: IDSA Guidelines Survey
• March 18, 2015
  LYMEPOLICYWONK: IDSA Guidelines Revision Process–Cause for alarm?
• March 16, 2015
  LYMEPOLICYWONK: The IDSA chooses a token patient for its new guidelines revision process
• February 3, 2015
  The FDA and Lyme Disease Testing—FDA is Listening, but Does it Matter?
• January 7, 2015
  LYMEPOLICYWONK: Two Standards of Care Revisited: Should Lyme Patients Have A Choice?
• December 13, 2014
  LYMEPOLICYWONK: LymeDisease.org responds to Slate’s “Lyme-Illiterate” article
• October 22, 2014
  LYMEPOLICYWONK: FDA Proposed Regulation of Lyme Tests? Take the Survey!
• October 9, 2014
  LYMEPOLICYWONK: Two-Tiered Lab Testing for Lyme Disease—No Better Than a Coin Toss. Time for change?
• September 23, 2014
  LYMEPOLICYWONK: Persistence Personified in Lyme Disease–Those Pesky Human Cases
• September 18, 2014
  LYMEPOLICYWONK: Ticks Transmit a World of Disease and Co-infections Into the Lives of Lyme Patients
• September 11, 2014
  LYMEPOLICYWONK: Lyme disease testing—the CDC, LabCorp and stories that don’t add up
• August 21, 2014
  LYMEPOLICYWONK: Whose interests is the FDA protecting? Not Lyme patients, apparently
• July 30, 2014
  LYMEPOLICYWONK: LymeDisease.org Endorses New ILADS Lyme Disease Guidelines
• July 15, 2014
  LYMEPOLICYWONK: Patient-Powered Research and Lyme Disease
• July 8, 2014
  LYMEPOLICYWONK: The bogus grassroots of the American Lyme Disease Foundation
• June 18, 2014
  LYMEPOLICYWONK: Don’t waste public money on research that doesn’t help patients
• May 29, 2014
  LYMEPOLICYWONK: The IDSA Says Chronic Lyme Disease Is No More than the Aches and Pains of Daily Living. Is this True?
• May 13, 2014
  LYMEPOLICYWONK: Chronic Lyme disease patients suffer high unemployment and disability
• May 8, 2014
  LYMEPOLICYWONK: The Lyme Wars: Guidelines, Controversy and Informed Consent
• April 18, 2014
  LYMEPOLICYWONK: The CDC, the FDA and Lyme Disease Lab Tests
• April 10, 2014
  LYMEPOLICYWONK: How many of those with Lyme disease have the rash? Estimates range from 27-80%.
• April 2, 2014
  LYMEPOLICYWONK: Study Finds Coinfections in Lyme Disease Common
• March 27, 2014
  LYMEPOLICYWONK: Survey Results Published! Chronic Lyme Patients Suffer Poor Quality of Life and High Rates of Disability and Unemployment
• February 6, 2014
  LYMEPOLICYWONK: Yes, Patients Need a Role in Setting Research Agendas!
• January 3, 2014
  LYMEPOLICYWONK: Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic
• December 17, 2013
  LYMEPOLICYWONK: Lyme Vaccinations: Safety First
• November 14, 2013
  LYMEPOLICYWONK: MA insurance bill hearing–how insurers cut costs at the expense of patients
• November 11, 2013
  LYMEPOLICYWONK: Is an ounce of prevention worth a pound of cure? Or is it too little too late for those who are sick today?
• November 4, 2013
  LYMEPOLICYWONK: Annual Lyme costs now top $3.1 billion—It’s time to wake up!
• October 28, 2013
  LYMEPOLICYWONK: Students at risk for Lyme: Will lawsuits make a difference?
• September 19, 2013
  LYMEPOLICYWONK: Survey says most physicians don’t follow IDSA Lyme guidelines
• September 16, 2013
  LYMEPOLICYWONK: CDC outreach to Lyme community—true patient engagement or tokenism?
• July 13, 2013
  LYMEPOLICYWONK: Pam Weintraub’s CNN Article–Setting Things Straight
• June 17, 2013
  LYMEPOLICYWONK: CDC Tells Poughkeepsie Journal Long Term Antibiotics Not Warranted; I Respond
• April 26, 2013
  LYMEPOLICYWONK: LDo Lyme Impact and Cost Survey
• April 9, 2013
  LYMEPOLICYWONK: Was the Last Decade of Lyme Research a Cover-Up? Baker and the Embers Study Revisited.
• March 26, 2013
  LYMEPOLICYWONK: More on Who’s Who and What’s What – NIH Dr. Phil Baker Responds to Blog on American Lyme Disease Foundation
• March 20, 2013
  LYMEPOLICYWONK: Bogus Grassroots Groups – Who’s Who and What’s What with the American Lyme Disease Foundation (ALDF)
• March 5, 2013
  LYMEPOLICYWONK: Patient-Centered Medicine and Lyme disease.
• February 15, 2013
  LYMEPOLICYWONK: LDo Lyme Impact and Cost Survey Draws Over 1,500 Responses
• February 12, 2013
  LYMEPOLICYWONK: LymeDisease.org launches new patient survey on the Impact and Cost of Lyme Disease.
• December 3, 2012
  LYMEPOLICYWONK: Dr. Fallon’s Suggestions for Future Guidelines.
• November 27, 2012
  LYMEPOLICYWONK: New York Times blew this Lyme story big time
• November 19, 2012
  LYMEPOLICYWONK: Dr. Fallon Sets the Record Straight—Part 2. Differences Matter.
• October 31, 2012
  LYMEPOLICYWONK: Dr. Fallon Sets the Record Straight—Part 1. Size Matters.
• August 29, 2012
  LYMEPOLICYWONK: New Study Reveals Fatal Flaws in NIH Klempner Trial Statistical Analysis. Is this Error Human, Incompetence or Worse?
• June 28, 2012
  LYMEPOLICYWONK: The Economic Impact and Burden of Lyme Disease—A Wake Up Call to Policy Makers
• June 26, 2012
  “The Financial Burden of Lyme Disease” Presentation at Gibson Forum
• June 15, 2012
  LYMEPOLICYWONK: Full Disclosure. IDSA Enforces Its “Voluntary” Guidelines
• May 3, 2012
  The IDSA Guidelines And Embers At a Glance Table
• April 6, 2012
  LYMEPOLICYWONK: National Guidelines Clearinghouse–Listen Up
• February 29, 2012
  LYMEPOLICYWONK: Patient Centered Research and Lyme—An idea whose time has come?
• February 22, 2012
  LYMEPOLICYWONK: Was this important Lyme study hidden for 12 years?
• February 16, 2012
  LYMEPOLICYWONK: Embers Monkey Trials Part 5. Of Mice and Men and Monkeys.
• February 15, 2012
  LYMEPOLICYWONK: Embers Monkey Trials Part 4. Lab Tests Fail to Detect Lyme Disease.
• February 15, 2012
  LYMEPOLICYWONK: Embers Monkey Study Part 3. IDSA 28 Day Treatment Protocol Fails to Clear Infection.
• February 14, 2012
  LYMEPOLICYWONK: Embers Monkey Trials Part 2: Chronic Lyme Disease Treatment and Persistence
• February 10, 2012
  LYMEPOLICYWONK: Part 1–New Study Shows Lyme Persists in Monkeys
• February 2, 2012
  LYMEPOLICYWONK: Senators Request Removal of IDSA Lyme Guidelines from National Guidelines Clearinghouse
• February 2, 2012
  LYMEPOLICYWONK: 10,000 Signatures in 9 days–On a Roll!
• January 21, 2012
  LYMEPOLICYWONK: Congressmen Call For Removal of Outdated IDSA Guidelines from National Guideline Clearinghouse
• January 3, 2012
  LYMEPOLICYWONK: And, the Number Is? 5,200 Responses! IDSA Guidelines and Patient Preference Survey
• December 29, 2011
  LYMEPOLICYWONK: Speak Up Now! IDSA Lyme Guidelines And Patient Viewpoints Survey Ends January 1. . .
• December 24, 2011
  LYMEPOLICYWONK: SIGN THE PETITION TO REMOVE THE IDSA GUIDELINES FROM THE NGC!
• December 18, 2011
  LYMEPOLICYWONK: CBS Lyme Story, A Tale of Conflicts of Interest & Bias
• November 20, 2011
  LYMEPOLICYWONK: NIH Tick Feeding Study Safety Risk Update
• November 17, 2011
  LYMEPOLICYWONK: Perception is Everything—Is it Black or White: Who decides?
• October 7, 2011
  LYMEPOLICYWONK: Patient Viewpoints Survey Update. 2,000 Responses! We Are On Our Way.
• September 22, 2011
  LYMEPOLICYWONK: Newly Discovered Tick Pathogen, Borrelia miyamotoi, May Increase Safety Risks for Patients in NIH Tick Feeding Study
• September 12, 2011
  LYMEPOLICYWONK: New Lyme Disease Culture Test Could be Game Changer
• September 6, 2011
  LYMEPOLICYWONK: WHEN MEDICAL BOARDS ABUSE THEIR POWER
• August 23, 2011
  LYMEPOLICYWONK: IDSA Dissing Lyme Advocates in the Lancet
• July 22, 2011
  LYMEPOLICYWONK: Study Shows Public Believes that Lyme Infection Persists and Longer Term Treatments Are Needed
• July 22, 2011
  LYMEPOLICYWONK: AIDS Advocacy–A Model for Change
• July 19, 2011
  HARD SCIENCE ON LYME: Bartonella And Inflammation of the Eye
• July 11, 2011
  LYMEPOLICYWONK: Yes, Virginia, there is a Santa Claus: Virginia Lyme Task Force Findings Released
• June 18, 2011
  LYMEPOLICYWONK: Lyme Healthcare Access and Burden of Illness Survey Results Published!
• May 13, 2011
  LYMEPOLICYWONK: Institute of Medicine Presentation Highlight: Liang on Lyme
• April 25, 2011
  LYMEPOLICYWONK: IOM Report: ’Tis neither here nor there. Or?
• April 2, 2011
  LYMEPOLICYWONK: Lyme disease abandoned by Pharma
• March 29, 2011
  LYMEPOLICYWONK: IDSA Lyme Guidelines—A Poster Child for Guidelines Reform? Institute of Medicine Says IDSA Lyme Guidelines Highlight Need for Change
• March 23, 2011
  LYMEPOLICYWONK: Institute of Medicine Issues Recommendations on Developing Treatment Guidelines—It’s a Matter of Trust
• March 17, 2011
  LYMEPOLICYWONK: Who Died and Made You King? Eminence Based Medicine in Lyme Disease Breaks All the Rules
• March 14, 2011
  LYMEPOLICYWONK: Meeting with Dr. Ben Beard of the CDC–The Importance of Dialogue and Lingering Concerns
• January 24, 2011
  LYMEPOLICYWONK: TO TELL THE TRUTH. . . Reports of Antibiotic Lyme Death Have Been Greatly Exaggerated.
• January 21, 2011
  LYMEPOLICYWONK: CALDA CALLS ON NIH TO STOP TICK FEEDING STUDY ON ETHICAL GROUNDS
• January 20, 2011
  LYMEPOLICYWONK: Ringing out the old year: Stricker & Johnson Publications 2010
• January 11, 2011
  LYMEPOLICYWONK: IDSA GUIDELINES LACK EVIDENCE—DON’T CALL IT EVIDENCE BASED IF IT’S JUST YOUR OPINION
• January 6, 2011
  LYMEPOLICYWONK: Intellectual Conflicts of Interest–A New Way to Smell a Rat?
• January 1, 2011
  LYMEPOLICYWONK: THE COST OF DENIAL—THE DOLLARS AND SENSE OF IT
• December 28, 2010
  LYMEPOLICYWONK: A Question of Ethical Reporting–Chicago Tribune/Los Angeles Times.
• December 20, 2010
  Give Change a Chance…Donate to CALDA today
• December 15, 2010
  LYMEPOLICYWONK: CALDA CALLS ON TRIBUNE TO PRINT OP ED REBUTTAL TO BIASED ARTICLE
• December 14, 2010
  LYMEPOLICYWONK: A Baker’s Dozen?—Or Is it Six of One a Half Dozen of another?
• December 8, 2010
  LYMEPOLICYWONK: Chicago Tribune article. Is it journalism? Call it what you will–
• November 17, 2010
  LYMEPOLICYWONK: Lyme Patients and Insurance Appeals
• November 11, 2010
  Publication Alert: IDSA Review Hearing Report–Lipstick on a Pig
• October 5, 2010
  LYMEPOLICYWONK: Research Gaps Report by Lyme Groups Who Pulled Out of IOM Process Entered into Congressional Record
• September 30, 2010
  LYMEPOLICYWONK: Is The IOM Workshop Really an IDSA Workshop in Disguise?
• September 20, 2010
  LYMEPOLICYWONK: IOM Workshop–Who are They, What is It, When, Where, and Why Does it Matter?
• September 20, 2010
  LYMEPOLICYWONK: IOM Workshop—Where Do I Draw the Line on Fairness?
• September 20, 2010
  LYMEPOLICYWONK: Lyme Patient Groups Withdraw from IOM Lyme Workshop
• September 16, 2010
  LYMEPOLICYWONK: Speaking Truth to Power: Dr. Liegner Lays it Out for the IOM
• September 14, 2010
  LYMEPOLICYWONK: Spotlight on an IOM Speaker: Does the IOM Know the Difference Between Dogma and Science? Rumor Hassett They Don’t!
• September 14, 2010
  LYMEPOLICYWONK: ILADS Weighs in on IOM Process
• September 14, 2010
  LYMEPOLICYWONK: Institute of Medicine Cuts on the Bias for IDSA
• August 16, 2010
  LYMEPOLICYWONK: What Will It Be, Peer Review or Censorship: New Tick Borne Disease Journal
• August 10, 2010
  LYMEPOLICYWONK: Saying what you mean and meaning what you say: Evidence, Science and the IDSA
• August 4, 2010
  LYMEPOLICYWONK: The CDC Definition of HIV: Does History Repeat Itself?
• July 29, 2010
  LYMEPOLICYWONK: Thanks to Everyone Who Helped With the IDSA Petition!
• July 28, 2010
  LYMEPOLICYWONK: Artful Dodgers, 1,2,3 : the IDSA, the NIH and the IOM Makes Three
• June 26, 2010
  LYMEPOLICYWONK: Debate of the Century—Uncle Sam Wants You to Control Health Care Costs
• June 26, 2010
  LYMEPOLICYWONK: IOM Conference calls: A Phone to Nowhere?
• June 21, 2010
  LYMEPOLICYWONK: LYME IS PART OF A MUCH BROADER DEBATE ABOUT THE ROLE OF PATIENTS IN HEALTHCARE
• June 14, 2010
  LYMEPOLICYWONK: IDSA guidelines: A cautionary tale about development of clinical practice guidelines
• June 9, 2010
  LYMEPOLICYWONK: Health Consumers Skeptical About Evidence Based Guidelines
• June 8, 2010
  LYMEPOLICYWONK: Odd Couples—CDC, NIH, IDSA, others? “Hey, what are you yelling about? We’re playing a friendly game!”
• June 3, 2010
  LYMEPOLICYWONK: Spin, spun and hung out to dry. Lyme, science and the truth barrier
• May 29, 2010
  LYMEPOLICYWONK: IDSA explains why “evidence” is not necessary for “evidence-based guidelines”
• May 6, 2010
  LYMEPOLICYWONK: IDSA PETITION –CT RESIDENTS URGED TO SIGN, DISTRIBUTE AND DELIVER!
• May 3, 2010
  LYMEPOLICYWONK: IOM Hearings—Same Old, Same Old?
• May 1, 2010
  LYMEPOLICYWONK: Helene Jorgensen’s Comments to IOM Committee
• May 1, 2010
  LYMEPOLICYWONK: Ann Lyons’ Comments to IOM Committee
• April 30, 2010
  LYMEPOLICYWONK: Diane Blanchard’s Comments to IOM Committee
• April 29, 2010
  LYMEPOLICYWONK: Pat Smith’s Comment before IOM
• April 29, 2010
  LYMEPOLICYWONK: IOM LIVE HEARING BLOG Part II
• April 29, 2010
  LYMEPOLICYWONK: IOM HEARING LIVE BLOG
• April 29, 2010
  LYMEPOLICYWONK: IOM LIVE BLOG PART III Public Comment
• April 23, 2010
  LYMEPOLICYWONK: IDSA Voting Procedures under Review by the Connecticut Attorney General
• April 22, 2010
  LYMEPOLICYWONK: IDSA Reports No Change in Guidelines–The Fat Cat Ate the Canary
• April 5, 2010
  LYMEPOLICYWONK: IDSA APRIL DEADLINE
• April 3, 2010
  LYMEPOLICYWONK: IDSA FINAL REPORT END OF APRIL!
• March 23, 2010
  LYMEPOLICYWONK: Uncle Sam Needs Patients to Get Healthcare Reform Right
• March 17, 2010
  LYMEPOLICYWONK: Lyme Physician Protection in Minnesota
• March 12, 2010
  LYMEPOLICYWONK: When is Mandatory, Mandatory? When Medco says so!
• March 11, 2010
  LYMEPOLICYWONK: Should the IDSA take a Tip from Toyota and Recall the Guidelines?
• March 10, 2010
  LYMEPOLICYWONK: IDSA and Lyme Hearings: TOP 10 Count Down for the Masters of Manipulation?
• February 16, 2010
  LYMEPOLICYWONK: Voting Violations–Which Way IDSA, the Right Way or the Might Way?
• February 16, 2010
  LYMEPOLICYWONK: RELATIVE WEIGHT–Specialty Societies vs Patients, AKA no contest
• February 11, 2010
  LYMEPOLICYWONK: Testing the IDSA’s Commitment
• February 5, 2010
  LYMEPOLICYWONK: ILADS Calls on IDSA to Remove Barriers to Lyme Guideline Change
• February 3, 2010
  LYMEPOLICYWONK: IDSA Violates Settlement Agreement Voting Procedures
• January 30, 2010
  LYMEPOLICYWONK: Does IDSA Have Police Power? Can IDSA Regulate Lyme Tests?
• January 28, 2010
  LYMEPOLICYWONK: Groopman: Who Knows Best—a Lesson for Lyme
• January 27, 2010
  LYMEPOLICYWONK: Oh, Canada! Important New Lyme Study
• January 17, 2010
  LYMEPOLICYWONK: IDSA Calls for 10 New Antibiotics by 2020
• January 17, 2010
  LYMEPOLICYWONK: MUS is DUMB—Doctors with Unexplained Medical Beliefs
• January 11, 2010
  LYMEPOLICYWONK: IDSA Guidelines—Liberty or Dogma?
• January 11, 2010
  LYMEPOLICYWONK: IDSA Hearings Delay has Lyme Patients on Tenterhooks
• January 10, 2010
  LYMEPOLICYWONK: Antibiotic Resistance—Holy Cow, It’s the Beef!
• January 2, 2010
  LYMEPOLICYWONK: Expired Drugs—Are they Effective, Safe?
• December 31, 2009
  LYMEPOLICYWONK: HAPPY NEW YEARS CHANGE MAKERS!
• December 29, 2009
  LYMEPOLICYWONK: The More the Merrier—The Power of Small
• December 28, 2009
  LYMEPOLICYWONK: CDC Revolving Door Policy Suits Vaccine Manufacturers Just Fine
• December 28, 2009
  LYMEPOLICYWONK: Impure Science—the Fine Art of Blowing Smoke
• December 27, 2009
  LYMEPOLICYWONK: Dr. Paul Duray Resigns from IDSA Panel Due to Family Illness–Implications unknown
• December 15, 2009
  LYMEPOLICYWONK: Recognizing the problem is the first step—Persistence.
• December 15, 2009
  LYMEPOLICYWONK: Barthold and Luft–Persistence and Integrity in Science.
• December 2, 2009
  LYMEPOLICYWONK: Tee Time for Lyme
• December 1, 2009
  LYMEPOLICYWONK: You can observe a lot by watching: Breast Cancer & Lyme Disease
• November 23, 2009
  LYMEPOLICYWONK: Mammograms, pap smears and Lyme? Statistical lives vs personal lives. You choose.
• November 18, 2009
  LYMEPOLICYWONK: IDSA Lyme Guidelines—Do they violate the IDSA’s own rules on guidelines?
• November 18, 2009
  LYMEPOLICYWONK: IDSA Lyme Hearing Panel–What to do when opinion is strong, but evidence is weak?
• November 15, 2009
  LYMEPOLICYWONK.ORG: When it’s a matter of opinion, whose opinion counts?
• November 15, 2009
  LYMEPOLICYWONK: Researcher finds IDSA treatment guidelines long on opinion and short on science
• November 14, 2009
  LYMEPOLICYWONK: Anatomy of IDSA annual meeting: Vaccine Financial Ties
• November 13, 2009
  LYMEPOLICYWONK: Weinstein Offers IDSA Panel a Dead End Road to Nowhere
• November 12, 2009
  LYMEPOLICYWONK: IDSA Hearings—Weinstein’s Pet Theory Shouldn’t Trump Patient Care
• November 7, 2009
  Lyme disease: Losing your innocence in science
• October 28, 2009
  Lyme Policy Wonk: Fresh back from the conferences!
• October 28, 2009
  Lyme Policy Wonk: Beam me up, Scotty. See you after the jump!
• October 12, 2009
  LYMEPOLICYWONK: IDSA Lyme Conflicts of Interest–Tell me more!
• October 9, 2009
  Lyme disease: Reader not aMUSed with MUS category –Call for acronyms
• October 9, 2009
  LYME POLICY WONK: “The IDSA will not hesitate to change its guidelines”– True or False?
• October 7, 2009
  IDSA Lyme Double Speak
• September 28, 2009
  Taming the beast: No MUS, No Fuss!
• September 22, 2009
  IDSA Lyme Hearing: Wormser– Talk About Exaggeration!
• September 17, 2009
  IDSA Lyme Hearing– Contested Recommendations
• September 8, 2009
  LYME POLICY WONK: CALDA survey results are in!
• September 1, 2009
  Wall Street Journal Weighs in On Patient Choice (YES!!!)
• August 29, 2009
  IDSA Hearing: Putting on a Good Face?
• August 10, 2009
  Why do some states zig while others zag?
• August 6, 2009
  GIVING THANKS
• August 5, 2009
  IDSA HEARING: Panel asks for “Under Our Skin” DVDs
• August 5, 2009
  IDSA Hearing–Reflections
• August 2, 2009
  How to watch archives of IDSA hearing
• August 2, 2009
  Lorraine Johnson IDSA Review Hearing Speech
• July 30, 2009
  IDSA HEARING: Follow the hearing and comment 8 a.m.-5 p.m. ET, July 30
• July 28, 2009
  IDSA Virtual Lobby Now Open – VIEW LIVE WEBCAST
• July 27, 2009
  LYME POLICY WONK: Lorraine Johnson ready to testify before IDSA Lyme panel
• July 27, 2009
  IDSA HEARING: Late breaking news–no registration required
• July 24, 2009
  When is a public hearing not public—the sequel?
• July 22, 2009
  It’s about time! IDSA Lyme hearing speech limits
• July 22, 2009
  CALDA, LDA and TFL Press Release on IDSA Hearing
• July 20, 2009
  Attorney General Blumenthal Speaks Out! Now hear this. . .
• July 14, 2009
  Pick a little, talk a little–How to make a speech for IDSA Lyme review panel
• July 9, 2009
  Andy Schlafly of AAPS Takes on Autism Treatment–lessons for Lyme
• June 30, 2009
  Talking the talk
• June 17, 2009
  Listen up! Speak out and be heard! Help CALDA represent your views to the IDSA!
• June 7, 2009
  Gunfight at the OK Corral– Pistols at dawn! The Sequel–Stricker & Johnson reply to President of IDSA
• June 2, 2009
  IDSA announces presenters and order of presentation
• May 23, 2009
  Gunfight at the OK Corral– Pistols at dawn! IDSA President takes aim at Stricker and Johnson article on flawed Lyme guidelines.
• May 21, 2009
  Strung up, strung out or simply entangled? Johnson & Stricker lay down the law on how IDSA became entangled with antitrust.
• May 11, 2009
  Ground Zero Lyme Disease: Check out Pollack’s AG article
• April 29, 2009
  Germany Says No to IDSA Lyme Guidelines
• April 27, 2009
  The UK Says No to IDSA Lyme Guidelines
• April 24, 2009
  The spectacular, spectacular–The Association of American Physicians and Surgeons (AAPS) takes IDSA to task
• April 24, 2009
  At the Gala
• April 23, 2009
  ILADS Submits
• April 21, 2009
  Panel stacking: It’s not magic. It’s deception
• April 20, 2009
  Patients know enough medicine to smell a rat
• April 6, 2009
  IDSA Lyme disease review panel date set for July 30th! New calendar attached
• April 3, 2009
  JAMA to conflict of interest breaches—silence is golden
• March 31, 2009
  Let’s give a hand to Volkman–a little thank you can go a long way
• March 31, 2009
  JAMA to IDSA–Can you hear me now? Now? How about Now?!
• March 29, 2009
  IDSA: Caution when opening–contents under pressure
• March 27, 2009
  IDSA makes it official–input period extended for all to April 24th
• March 27, 2009
  IDSA NEW DEADLINES Schedule–Time to get on the stick
• March 26, 2009
  Volkman submission to IDSA–Smells like courage to me
• March 26, 2009
  Shifting sands of time–IDSA calendar revisions at hand
• March 24, 2009
  Annals of Neurology — Fair and balanced reporting is alive and well
• March 21, 2009
  Silencing the sick– IDSA wages calendar warfare
• March 1, 2009
  Is evidence-based medicine bankrupt?
• February 24, 2009
  IDSA Panel–Document submission changes
• February 21, 2009
  JAMA–Why guideline making requires reform
• February 19, 2009
  Stimulating distrust?
• February 17, 2009
  Gostin JAMA article–Politics as usual?
• February 14, 2009
  Chronic Lyme Disease and the “Axis of Evil”
• February 9, 2009
  Q&A: IDSA Public Input Period
• February 8, 2009
  Protesting the panel: Putting pen to paper
• February 8, 2009
  Rejects! NY Times Rejects Another Letter from Johnson/Stricker
• February 5, 2009
  Weintraub to IDSA: Listen to the steady heart beat of true science, leave the past behind, and move toward the future
• February 5, 2009
  Lyme panel: Selection and exclusion bias
• February 2, 2009
  IDSA Lyme Disease Review Panel Announces Public Input Period and Hearing Date
• February 1, 2009
  IDSA guidelines panel list as of 2/1/09
• January 30, 2009
  Medical antitrust actions–Does “might make right”?
• January 30, 2009
  Gooznews takes on conflicts in guidelines
• January 27, 2009
  Weinstein Off the IDSA Guidelines Review Panel!
• January 26, 2009
  The IDSA panel–Q and A
• January 24, 2009
  IDSA Announces New Guidelines Panel–Balanced or Biased?
• January 24, 2009
  Bias and patient autonomy—what’s the connection
• January 24, 2009
  Opinion based medicine
• January 22, 2009
  Conflicting views on conflicts—throwing the baby out with the bathwater
• May 31, 2008
  Attorney General findings–IDSA wrong doing
• May 14, 2008
  IDSA Now Accepting Applications For Panel Members For Guidelines Review Panel
• May 1, 2008
  Attorney General Press Release: IDSA Lyme Disease Guidelines Flawed and Driven by Conflicts of Interests
• September 13, 2007
  The IDSA Guidelines Re-Evaluation Process