Lists: Lyme Policy Wonk blogs

Lyme Policy Wonk Blog List

October 15, 2024
The complexities of IACCs: what do “long haul” diseases have in common?
December 4, 2020
LYMEPOLICYWONK: 10 things you should know about new IDSA guidelines
December 2, 2020
LYMEPOLICYWONK: When decisions are foregone conclusions
November 18, 2020
LYMEPOLICYWONK: The pivotal role of patients in Lyme disease research
November 3, 2020
LYMEPOLICYWONK: MyLymeData, powered by patients, helps drive Lyme research
June 9, 2020
LYMEPOLICYWONK: The BMJ publishes our response to article dissing ILADS guidelines
May 22, 2020
How has COVID-19 affected you personally? Take our survey.
April 23, 2020
LYMEPOLICYWONK: Patients can’t wait, whether it’s COVID-19 or Lyme
February 3, 2020
LYMEPOLICYWONK: Its members don’t treat much Lyme, but IDSA makes the rules
September 17, 2019
LYMEPOLICYWONK: Panel lacks balance, excludes needed voices
May 31, 2019
LYMEPOLICYWONK: Will patients be effectively represented on Working Group?
May 13, 2019
LYMEPOLICYWONK: Who represents Lyme disease patients? Why it matters.
May 2, 2019
LYMEPOLICYWONK: Get your copy of the MyLymeData 2019 Chart Book
March 15, 2019
LYMEPOLICYWONK: Patients want NIH to prioritize chronic Lyme research
February 27, 2019
LYMEPOLICYWONK: Take our survey on NIH’s Lyme disease strategic plan
February 12, 2019
LYMEPOLICYWONK: Why HIPAA privacy rules must not be eroded
January 18, 2019
LYMEPOLICYWONK: New blog helps interpret MyLymeData
December 11, 2018
LYMEPOLICYWONK: Abandon “Post-Treatment Lyme Disease Syndrome” label
December 5, 2018
LYMEPOLICYWONK: Using MyLymeData to Build a Research Engine
November 27, 2018
LYMEPOLICYWONK: The problem of misdiagnosis in Lyme disease
November 12, 2018
LYMEPOLICYWONK: “Chronic Lyme disease” remains a contentious term
October 19, 2018
LYMEPOLICYWONK: “Super responders” are key to personalized Lyme disease treatment
August 10, 2018
LYMEPOLICYWONK: What Lyme disease treatments are most effective?
July 19, 2018
LYMEPOLICYWONK: Lyme disease costs may exceed $75 billion per year
June 21, 2018
LYMEPOLICYWONK: What I told TBDWG about “two standards of care” for Lyme disease
June 15, 2018
LYMEPOLICYWONK: Is shared decision making the wave of the future?
June 1, 2018
LYMEPOLICYWONK: Update on TBD Working Group. How did we do?
May 25, 2018
LYMEPOLICYWONK: Working to improve the diagnosis of Lyme disease
May 1, 2018
LYMEPOLICYWONK: 10 years after Under Our Skin, and the rise of patients as research partners
December 19, 2017
LYMEPOLICYWONK: My presentation to TBD Working Group
September 20, 2017
MyLymeData presentation at LDA/Columbia Conference on September 24, 2017 (Philadelphia)
August 24, 2017
LYMEPOLICYWONK: Canine maps predict Lyme disease risk better than the CDC does.
August 3, 2017
LYMEPOLICYWONK: Why Doesn’t the CDC Count Lyme Disease Cases in the South and the West? Everybody Else Does.
June 7, 2017
LYMEPOLICYWONK: Video of Dr. Christine Green’s MyLymeData talk
June 3, 2017
LYMEPOLICYWONK: Study finds antibiotics effective in treating MS.
May 17, 2017
LYMEPOLICYWONK: Video of Dr. Stricker’s MyLymeData Conference Presentation
April 21, 2017
LYMEPOLICYWONK: Conference Addresses Latest MyLymeData Results
January 17, 2017
LYMEPOLICYWONK: Do antibiotics help patients with Lyme disease who are also diagnosed with MS?
January 10, 2017
LYMEPOLICYWONK: Help Shape Top 10 Priorities for Lyme Research Agenda by Taking Our Survey
December 27, 2016
LYMEPOLICYWONK: MyLymeData Releases Preliminary Findings at Scientific Conferences
December 19, 2016
LYMEPOLICYWONK: Does questioning the government’s role in Lyme disease make you a conspiracy theorist?
November 15, 2016
LYMEPOLICYWONK: MyLymeData 3-month follow-up survey launched
October 12, 2016
LYMEPOLICYWONK: Is persistent Lyme disease caused by another organism identified by Dr. Willy Burgdorfer over 35 years ago? Why hasn’t anyone looked into it?
July 26, 2016
LYMEPOLICYWONK: Two standards of care in Lyme disease
June 21, 2016
LYMEPOLICYWONK: Panel Embraces Shared Decision-Making in Colonoscopy. How about Lyme disease?
June 8, 2016
LYMEPOLICYWONK: Lyme disease and shared medical decision making in guidelines
April 19, 2016
LYMEPOLICYWONK: Misdiagnosis of Lyme disease as MS –MyLymeData Quick Bytes
April 6, 2016
LYMEPOLICYWONK: Patient representation on the revised IDSA Lyme guideline panel: Is it real or token?
April 6, 2016
LYMEPOLICYWONK: IDSA says revision of Lyme disease guidelines expected to take 2-5 Years
March 30, 2016
LYMEPOLICYWONK: Chronic Lyme European PLEASE Trial—You know it’s spin when treatment “success” is called “failure”?
March 15, 2016
LYMEPOLICYWONK: Lorraine Johnson speaks about MyLymeData to help find a cure for Lyme disease
March 3, 2016
LYMEPOLICYWONK: LDo goes to the White House for Precision Medicine Summit
February 12, 2016
IDSA Lyme guidelines removed from NGC; ILADS guidelines still there
February 2, 2016
LYMEPOLICYWONK: Zika, Ebola, and Lyme—What Do They Have in Common?
January 20, 2016
2500 people have enrolled in MyLymeData. Have you?
October 5, 2015
LYMEPOLICYWONK: The White House, citizen science, big data and Lyme disease
September 28, 2015
LYMEPOLICYWONK: My speech at MedX on Lyme disease and patient-centered big data research
September 21, 2015
LYMEPOLICYWONK: ILADS Lyme guidelines on National Clearinghouse!
September 17, 2015
LYMEPOLICYWONK: My Speech at Stanford MedX: Patient Powered Research and Lyme
July 11, 2015
LYMEPOLICYWONK: Growing Number Of Chronic Lyme Patients—Still No Government Action Plan?
May 28, 2015
LymePolicyWonk: Delayed diagnosis of Lyme disease has devastating effect on patients
April 26, 2015
I add my thoughts to AEON Lyme disease discussion; you can too
April 24, 2015
LymePolicyWonk: IDSA Lyme disease survey results out! What’s important to patients?
April 13, 2015
LYMEPOLICYWONK: Deadline extended; you can still comment on IDSA
April 9, 2015
LYMEPOLICYWONK: 67 Groups Submit IDSA Lyme Guidelines Process Comments
March 27, 2015
LYMEPOLICYWONK: IDSA Guidelines Survey
March 18, 2015
LYMEPOLICYWONK: IDSA Guidelines Revision Process–Cause for alarm?
March 16, 2015
LYMEPOLICYWONK: The IDSA chooses a token patient for its new guidelines revision process
February 3, 2015
The FDA and Lyme Disease Testing—FDA is Listening, but Does it Matter?
January 7, 2015
LYMEPOLICYWONK: Two Standards of Care Revisited: Should Lyme Patients Have A Choice?
December 13, 2014
LYMEPOLICYWONK: LymeDisease.org responds to Slate’s “Lyme-Illiterate” article
October 22, 2014
LYMEPOLICYWONK: FDA Proposed Regulation of Lyme Tests? Take the Survey!
October 9, 2014
LYMEPOLICYWONK: Two-Tiered Lab Testing for Lyme Disease—No Better Than a Coin Toss. Time for change?
September 23, 2014
LYMEPOLICYWONK: Persistence Personified in Lyme Disease–Those Pesky Human Cases
September 18, 2014
LYMEPOLICYWONK: Ticks Transmit a World of Disease and Co-infections Into the Lives of Lyme Patients
September 11, 2014
LYMEPOLICYWONK: Lyme disease testing—the CDC, LabCorp and stories that don’t add up
August 21, 2014
LYMEPOLICYWONK: Whose interests is the FDA protecting? Not Lyme patients, apparently
July 30, 2014
LYMEPOLICYWONK: LymeDisease.org Endorses New ILADS Lyme Disease Guidelines
July 15, 2014
LYMEPOLICYWONK: Patient-Powered Research and Lyme Disease
July 8, 2014
LYMEPOLICYWONK: The bogus grassroots of the American Lyme Disease Foundation
June 18, 2014
LYMEPOLICYWONK: Don’t waste public money on research that doesn’t help patients
May 29, 2014
LYMEPOLICYWONK: The IDSA Says Chronic Lyme Disease Is No More than the Aches and Pains of Daily Living. Is this True?
May 13, 2014
LYMEPOLICYWONK: Chronic Lyme disease patients suffer high unemployment and disability
May 8, 2014
LYMEPOLICYWONK: The Lyme Wars: Guidelines, Controversy and Informed Consent
April 18, 2014
LYMEPOLICYWONK: The CDC, the FDA and Lyme Disease Lab Tests
April 10, 2014
LYMEPOLICYWONK: How many of those with Lyme disease have the rash? Estimates range from 27-80%.
April 2, 2014
LYMEPOLICYWONK: Study Finds Coinfections in Lyme Disease Common
March 27, 2014
LYMEPOLICYWONK: Survey Results Published! Chronic Lyme Patients Suffer Poor Quality of Life and High Rates of Disability and Unemployment
February 6, 2014
LYMEPOLICYWONK: Yes, Patients Need a Role in Setting Research Agendas!
January 3, 2014
LYMEPOLICYWONK: Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic
December 17, 2013
LYMEPOLICYWONK: Lyme Vaccinations: Safety First
November 14, 2013
LYMEPOLICYWONK: MA insurance bill hearing–how insurers cut costs at the expense of patients
November 11, 2013
LYMEPOLICYWONK: Is an ounce of prevention worth a pound of cure? Or is it too little too late for those who are sick today?
November 4, 2013
LYMEPOLICYWONK: Annual Lyme costs now top $3.1 billion—It’s time to wake up!
October 28, 2013
LYMEPOLICYWONK: Students at risk for Lyme: Will lawsuits make a difference?
September 19, 2013
LYMEPOLICYWONK: Survey says most physicians don’t follow IDSA Lyme guidelines
September 16, 2013
LYMEPOLICYWONK: CDC outreach to Lyme community—true patient engagement or tokenism?
July 13, 2013
LYMEPOLICYWONK: Pam Weintraub’s CNN Article–Setting Things Straight
June 17, 2013
LYMEPOLICYWONK: CDC Tells Poughkeepsie Journal Long Term Antibiotics Not Warranted; I Respond
April 26, 2013
LYMEPOLICYWONK: LDo Lyme Impact and Cost Survey
April 9, 2013
LYMEPOLICYWONK: Was the Last Decade of Lyme Research a Cover-Up? Baker and the Embers Study Revisited.
March 26, 2013
LYMEPOLICYWONK: More on Who’s Who and What’s What – NIH Dr. Phil Baker Responds to Blog on American Lyme Disease Foundation
March 20, 2013
LYMEPOLICYWONK: Bogus Grassroots Groups – Who’s Who and What’s What with the American Lyme Disease Foundation (ALDF)
March 5, 2013
LYMEPOLICYWONK: Patient-Centered Medicine and Lyme disease.
February 15, 2013
LYMEPOLICYWONK: LDo Lyme Impact and Cost Survey Draws Over 1,500 Responses
February 12, 2013
LYMEPOLICYWONK: LymeDisease.org launches new patient survey on the Impact and Cost of Lyme Disease.
December 3, 2012
LYMEPOLICYWONK: Dr. Fallon’s Suggestions for Future Guidelines.
November 27, 2012
LYMEPOLICYWONK: New York Times blew this Lyme story big time
November 19, 2012
LYMEPOLICYWONK: Dr. Fallon Sets the Record Straight—Part 2. Differences Matter.
October 31, 2012
LYMEPOLICYWONK: Dr. Fallon Sets the Record Straight—Part 1. Size Matters.
August 29, 2012
LYMEPOLICYWONK: New Study Reveals Fatal Flaws in NIH Klempner Trial Statistical Analysis. Is this Error Human, Incompetence or Worse?
June 28, 2012
LYMEPOLICYWONK: The Economic Impact and Burden of Lyme Disease—A Wake Up Call to Policy Makers
June 26, 2012
“The Financial Burden of Lyme Disease” Presentation at Gibson Forum
June 15, 2012
LYMEPOLICYWONK: Full Disclosure. IDSA Enforces Its “Voluntary” Guidelines
May 3, 2012
The IDSA Guidelines And Embers At a Glance Table
April 6, 2012
LYMEPOLICYWONK: National Guidelines Clearinghouse–Listen Up
February 29, 2012
LYMEPOLICYWONK: Patient Centered Research and Lyme—An idea whose time has come?
February 22, 2012
LYMEPOLICYWONK: Was this important Lyme study hidden for 12 years?
February 16, 2012
LYMEPOLICYWONK: Embers Monkey Trials Part 5. Of Mice and Men and Monkeys.
February 15, 2012
LYMEPOLICYWONK: Embers Monkey Trials Part 4. Lab Tests Fail to Detect Lyme Disease.
February 15, 2012
LYMEPOLICYWONK: Embers Monkey Study Part 3. IDSA 28 Day Treatment Protocol Fails to Clear Infection.
February 14, 2012
LYMEPOLICYWONK: Embers Monkey Trials Part 2: Chronic Lyme Disease Treatment and Persistence
February 10, 2012
LYMEPOLICYWONK: Part 1–New Study Shows Lyme Persists in Monkeys
February 2, 2012
LYMEPOLICYWONK: Senators Request Removal of IDSA Lyme Guidelines from National Guidelines Clearinghouse
February 2, 2012
LYMEPOLICYWONK: 10,000 Signatures in 9 days–On a Roll!
January 21, 2012
LYMEPOLICYWONK: Congressmen Call For Removal of Outdated IDSA Guidelines from National Guideline Clearinghouse
January 3, 2012
LYMEPOLICYWONK: And, the Number Is? 5,200 Responses! IDSA Guidelines and Patient Preference Survey
December 29, 2011
LYMEPOLICYWONK: Speak Up Now! IDSA Lyme Guidelines And Patient Viewpoints Survey Ends January 1. . .
December 24, 2011
LYMEPOLICYWONK: SIGN THE PETITION TO REMOVE THE IDSA GUIDELINES FROM THE NGC!
December 18, 2011
LYMEPOLICYWONK: CBS Lyme Story, A Tale of Conflicts of Interest & Bias
November 20, 2011
LYMEPOLICYWONK: NIH Tick Feeding Study Safety Risk Update
November 17, 2011
LYMEPOLICYWONK: Perception is Everything—Is it Black or White: Who decides?
October 7, 2011
LYMEPOLICYWONK: Patient Viewpoints Survey Update. 2,000 Responses! We Are On Our Way.
September 22, 2011
LYMEPOLICYWONK: Newly Discovered Tick Pathogen, Borrelia miyamotoi, May Increase Safety Risks for Patients in NIH Tick Feeding Study
September 12, 2011
LYMEPOLICYWONK: New Lyme Disease Culture Test Could be Game Changer
September 6, 2011
LYMEPOLICYWONK: WHEN MEDICAL BOARDS ABUSE THEIR POWER
August 23, 2011
LYMEPOLICYWONK: IDSA Dissing Lyme Advocates in the Lancet
July 22, 2011
LYMEPOLICYWONK: Study Shows Public Believes that Lyme Infection Persists and Longer Term Treatments Are Needed
July 22, 2011
LYMEPOLICYWONK: AIDS Advocacy–A Model for Change
July 19, 2011
HARD SCIENCE ON LYME: Bartonella And Inflammation of the Eye
July 11, 2011
LYMEPOLICYWONK: Yes, Virginia, there is a Santa Claus: Virginia Lyme Task Force Findings Released
June 18, 2011
LYMEPOLICYWONK: Lyme Healthcare Access and Burden of Illness Survey Results Published!
May 13, 2011
LYMEPOLICYWONK: Institute of Medicine Presentation Highlight: Liang on Lyme
April 25, 2011
LYMEPOLICYWONK: IOM Report: ’Tis neither here nor there. Or?
April 2, 2011
LYMEPOLICYWONK: Lyme disease abandoned by Pharma
March 29, 2011
LYMEPOLICYWONK: IDSA Lyme Guidelines—A Poster Child for Guidelines Reform? Institute of Medicine Says IDSA Lyme Guidelines Highlight Need for Change
March 23, 2011
LYMEPOLICYWONK: Institute of Medicine Issues Recommendations on Developing Treatment Guidelines—It’s a Matter of Trust
March 17, 2011
LYMEPOLICYWONK: Who Died and Made You King? Eminence Based Medicine in Lyme Disease Breaks All the Rules
March 14, 2011
LYMEPOLICYWONK: Meeting with Dr. Ben Beard of the CDC–The Importance of Dialogue and Lingering Concerns
January 24, 2011
LYMEPOLICYWONK: TO TELL THE TRUTH. . . Reports of Antibiotic Lyme Death Have Been Greatly Exaggerated.
January 21, 2011
LYMEPOLICYWONK: CALDA CALLS ON NIH TO STOP TICK FEEDING STUDY ON ETHICAL GROUNDS
January 20, 2011
LYMEPOLICYWONK: Ringing out the old year: Stricker & Johnson Publications 2010
January 11, 2011
LYMEPOLICYWONK: IDSA GUIDELINES LACK EVIDENCE—DON’T CALL IT EVIDENCE BASED IF IT’S JUST YOUR OPINION
January 6, 2011
LYMEPOLICYWONK: Intellectual Conflicts of Interest–A New Way to Smell a Rat?
January 1, 2011
LYMEPOLICYWONK: THE COST OF DENIAL—THE DOLLARS AND SENSE OF IT
December 28, 2010
LYMEPOLICYWONK: A Question of Ethical Reporting–Chicago Tribune/Los Angeles Times.
December 20, 2010
Give Change a Chance…Donate to CALDA today
December 15, 2010
LYMEPOLICYWONK: CALDA CALLS ON TRIBUNE TO PRINT OP ED REBUTTAL TO BIASED ARTICLE
December 14, 2010
LYMEPOLICYWONK: A Baker’s Dozen?—Or Is it Six of One a Half Dozen of another?
December 8, 2010
LYMEPOLICYWONK: Chicago Tribune article. Is it journalism? Call it what you will–
November 17, 2010
LYMEPOLICYWONK: Lyme Patients and Insurance Appeals
November 11, 2010
Publication Alert: IDSA Review Hearing Report–Lipstick on a Pig
October 5, 2010
LYMEPOLICYWONK: Research Gaps Report by Lyme Groups Who Pulled Out of IOM Process Entered into Congressional Record
September 30, 2010
LYMEPOLICYWONK: Is The IOM Workshop Really an IDSA Workshop in Disguise?
September 20, 2010
LYMEPOLICYWONK: IOM Workshop–Who are They, What is It, When, Where, and Why Does it Matter?
September 20, 2010
LYMEPOLICYWONK: IOM Workshop—Where Do I Draw the Line on Fairness?
September 20, 2010
LYMEPOLICYWONK: Lyme Patient Groups Withdraw from IOM Lyme Workshop
September 16, 2010
LYMEPOLICYWONK: Speaking Truth to Power: Dr. Liegner Lays it Out for the IOM
September 14, 2010
LYMEPOLICYWONK: Spotlight on an IOM Speaker: Does the IOM Know the Difference Between Dogma and Science? Rumor Hassett They Don’t!
September 14, 2010
LYMEPOLICYWONK: ILADS Weighs in on IOM Process
September 14, 2010
LYMEPOLICYWONK: Institute of Medicine Cuts on the Bias for IDSA
August 16, 2010
LYMEPOLICYWONK: What Will It Be, Peer Review or Censorship: New Tick Borne Disease Journal
August 10, 2010
LYMEPOLICYWONK: Saying what you mean and meaning what you say: Evidence, Science and the IDSA
August 4, 2010
LYMEPOLICYWONK: The CDC Definition of HIV: Does History Repeat Itself?
July 29, 2010
LYMEPOLICYWONK: Thanks to Everyone Who Helped With the IDSA Petition!
July 28, 2010
LYMEPOLICYWONK: Artful Dodgers, 1,2,3 : the IDSA, the NIH and the IOM Makes Three
June 26, 2010
LYMEPOLICYWONK: Debate of the Century—Uncle Sam Wants You to Control Health Care Costs
June 26, 2010
LYMEPOLICYWONK: IOM Conference calls: A Phone to Nowhere?
June 21, 2010
LYMEPOLICYWONK: LYME IS PART OF A MUCH BROADER DEBATE ABOUT THE ROLE OF PATIENTS IN HEALTHCARE
June 14, 2010
LYMEPOLICYWONK: IDSA guidelines: A cautionary tale about development of clinical practice guidelines
June 9, 2010
LYMEPOLICYWONK: Health Consumers Skeptical About Evidence Based Guidelines
June 8, 2010
LYMEPOLICYWONK: Odd Couples—CDC, NIH, IDSA, others? “Hey, what are you yelling about? We’re playing a friendly game!”
June 3, 2010
LYMEPOLICYWONK: Spin, spun and hung out to dry. Lyme, science and the truth barrier
May 29, 2010
LYMEPOLICYWONK: IDSA explains why “evidence” is not necessary for “evidence-based guidelines”
May 6, 2010
LYMEPOLICYWONK: IDSA PETITION –CT RESIDENTS URGED TO SIGN, DISTRIBUTE AND DELIVER!
May 3, 2010
LYMEPOLICYWONK: IOM Hearings—Same Old, Same Old?
May 1, 2010
LYMEPOLICYWONK: Helene Jorgensen’s Comments to IOM Committee
May 1, 2010
LYMEPOLICYWONK: Ann Lyons’ Comments to IOM Committee
April 30, 2010
LYMEPOLICYWONK: Diane Blanchard’s Comments to IOM Committee
April 29, 2010
LYMEPOLICYWONK: Pat Smith’s Comment before IOM
April 29, 2010
LYMEPOLICYWONK: IOM LIVE HEARING BLOG Part II
April 29, 2010
LYMEPOLICYWONK: IOM HEARING LIVE BLOG
April 29, 2010
LYMEPOLICYWONK: IOM LIVE BLOG PART III Public Comment
April 23, 2010
LYMEPOLICYWONK: IDSA Voting Procedures under Review by the Connecticut Attorney General
April 22, 2010
LYMEPOLICYWONK: IDSA Reports No Change in Guidelines–The Fat Cat Ate the Canary
April 5, 2010
LYMEPOLICYWONK: IDSA APRIL DEADLINE
April 3, 2010
LYMEPOLICYWONK: IDSA FINAL REPORT END OF APRIL!
March 23, 2010
LYMEPOLICYWONK: Uncle Sam Needs Patients to Get Healthcare Reform Right
March 17, 2010
LYMEPOLICYWONK: Lyme Physician Protection in Minnesota
March 12, 2010
LYMEPOLICYWONK: When is Mandatory, Mandatory? When Medco says so!
March 11, 2010
LYMEPOLICYWONK: Should the IDSA take a Tip from Toyota and Recall the Guidelines?
March 10, 2010
LYMEPOLICYWONK: IDSA and Lyme Hearings: TOP 10 Count Down for the Masters of Manipulation?
February 16, 2010
LYMEPOLICYWONK: Voting Violations–Which Way IDSA, the Right Way or the Might Way?
February 16, 2010
LYMEPOLICYWONK: RELATIVE WEIGHT–Specialty Societies vs Patients, AKA no contest
February 11, 2010
LYMEPOLICYWONK: Testing the IDSA’s Commitment
February 5, 2010
LYMEPOLICYWONK: ILADS Calls on IDSA to Remove Barriers to Lyme Guideline Change
February 3, 2010
LYMEPOLICYWONK: IDSA Violates Settlement Agreement Voting Procedures
January 30, 2010
LYMEPOLICYWONK: Does IDSA Have Police Power? Can IDSA Regulate Lyme Tests?
January 28, 2010
LYMEPOLICYWONK: Groopman: Who Knows Best—a Lesson for Lyme
January 27, 2010
LYMEPOLICYWONK: Oh, Canada! Important New Lyme Study
January 17, 2010
LYMEPOLICYWONK: IDSA Calls for 10 New Antibiotics by 2020
January 17, 2010
LYMEPOLICYWONK: MUS is DUMB—Doctors with Unexplained Medical Beliefs
January 11, 2010
LYMEPOLICYWONK: IDSA Guidelines—Liberty or Dogma?
January 11, 2010
LYMEPOLICYWONK: IDSA Hearings Delay has Lyme Patients on Tenterhooks
January 10, 2010
LYMEPOLICYWONK: Antibiotic Resistance—Holy Cow, It’s the Beef!
January 2, 2010
LYMEPOLICYWONK: Expired Drugs—Are they Effective, Safe?
December 31, 2009
LYMEPOLICYWONK: HAPPY NEW YEARS CHANGE MAKERS!
December 29, 2009
LYMEPOLICYWONK: The More the Merrier—The Power of Small
December 28, 2009
LYMEPOLICYWONK: CDC Revolving Door Policy Suits Vaccine Manufacturers Just Fine
December 28, 2009
LYMEPOLICYWONK: Impure Science—the Fine Art of Blowing Smoke
December 27, 2009
LYMEPOLICYWONK: Dr. Paul Duray Resigns from IDSA Panel Due to Family Illness–Implications unknown
December 15, 2009
LYMEPOLICYWONK: Recognizing the problem is the first step—Persistence.
December 15, 2009
LYMEPOLICYWONK: Barthold and Luft–Persistence and Integrity in Science.
December 2, 2009
LYMEPOLICYWONK: Tee Time for Lyme
December 1, 2009
LYMEPOLICYWONK: You can observe a lot by watching: Breast Cancer & Lyme Disease
November 23, 2009
LYMEPOLICYWONK: Mammograms, pap smears and Lyme? Statistical lives vs personal lives. You choose.
November 18, 2009
LYMEPOLICYWONK: IDSA Lyme Guidelines—Do they violate the IDSA’s own rules on guidelines?
November 18, 2009
LYMEPOLICYWONK: IDSA Lyme Hearing Panel–What to do when opinion is strong, but evidence is weak?
November 15, 2009
LYMEPOLICYWONK.ORG: When it’s a matter of opinion, whose opinion counts?
November 15, 2009
LYMEPOLICYWONK: Researcher finds IDSA treatment guidelines long on opinion and short on science
November 14, 2009
LYMEPOLICYWONK: Anatomy of IDSA annual meeting: Vaccine Financial Ties
November 13, 2009
LYMEPOLICYWONK: Weinstein Offers IDSA Panel a Dead End Road to Nowhere
November 12, 2009
LYMEPOLICYWONK: IDSA Hearings—Weinstein’s Pet Theory Shouldn’t Trump Patient Care
November 7, 2009
Lyme disease: Losing your innocence in science
October 28, 2009
Lyme Policy Wonk: Fresh back from the conferences!
October 28, 2009
Lyme Policy Wonk: Beam me up, Scotty. See you after the jump!
October 12, 2009
LYMEPOLICYWONK: IDSA Lyme Conflicts of Interest–Tell me more!
October 9, 2009
Lyme disease: Reader not aMUSed with MUS category –Call for acronyms
October 9, 2009
LYME POLICY WONK: “The IDSA will not hesitate to change its guidelines”– True or False?
October 7, 2009
IDSA Lyme Double Speak
September 28, 2009
Taming the beast: No MUS, No Fuss!
September 22, 2009
IDSA Lyme Hearing: Wormser– Talk About Exaggeration!
September 17, 2009
IDSA Lyme Hearing– Contested Recommendations
September 8, 2009
LYME POLICY WONK: CALDA survey results are in!
September 1, 2009
Wall Street Journal Weighs in On Patient Choice (YES!!!)
August 29, 2009
IDSA Hearing: Putting on a Good Face?
August 10, 2009
Why do some states zig while others zag?
August 6, 2009
GIVING THANKS
August 5, 2009
IDSA HEARING: Panel asks for “Under Our Skin” DVDs
August 5, 2009
IDSA Hearing–Reflections
August 2, 2009
How to watch archives of IDSA hearing
August 2, 2009
Lorraine Johnson IDSA Review Hearing Speech
July 30, 2009
IDSA HEARING: Follow the hearing and comment 8 a.m.-5 p.m. ET, July 30
July 28, 2009
IDSA Virtual Lobby Now Open – VIEW LIVE WEBCAST
July 27, 2009
LYME POLICY WONK: Lorraine Johnson ready to testify before IDSA Lyme panel
July 27, 2009
IDSA HEARING: Late breaking news–no registration required
July 24, 2009
When is a public hearing not public—the sequel?
July 22, 2009
It’s about time! IDSA Lyme hearing speech limits
July 22, 2009
CALDA, LDA and TFL Press Release on IDSA Hearing
July 20, 2009
Attorney General Blumenthal Speaks Out! Now hear this. . .
July 14, 2009
Pick a little, talk a little–How to make a speech for IDSA Lyme review panel
July 9, 2009
Andy Schlafly of AAPS Takes on Autism Treatment–lessons for Lyme
June 30, 2009
Talking the talk
June 17, 2009
Listen up! Speak out and be heard! Help CALDA represent your views to the IDSA!
June 7, 2009
Gunfight at the OK Corral– Pistols at dawn! The Sequel–Stricker & Johnson reply to President of IDSA
June 2, 2009
IDSA announces presenters and order of presentation
May 23, 2009
Gunfight at the OK Corral– Pistols at dawn! IDSA President takes aim at Stricker and Johnson article on flawed Lyme guidelines.
May 21, 2009
Strung up, strung out or simply entangled? Johnson & Stricker lay down the law on how IDSA became entangled with antitrust.
May 11, 2009
Ground Zero Lyme Disease: Check out Pollack’s AG article
April 29, 2009
Germany Says No to IDSA Lyme Guidelines
April 27, 2009
The UK Says No to IDSA Lyme Guidelines
April 24, 2009
The spectacular, spectacular–The Association of American Physicians and Surgeons (AAPS) takes IDSA to task
April 24, 2009
At the Gala
April 23, 2009
ILADS Submits
April 21, 2009
Panel stacking: It’s not magic. It’s deception
April 20, 2009
Patients know enough medicine to smell a rat
April 6, 2009
IDSA Lyme disease review panel date set for July 30th! New calendar attached
April 3, 2009
JAMA to conflict of interest breaches—silence is golden
March 31, 2009
Let’s give a hand to Volkman–a little thank you can go a long way
March 31, 2009
JAMA to IDSA–Can you hear me now? Now? How about Now?!
March 29, 2009
IDSA: Caution when opening–contents under pressure
March 27, 2009
IDSA makes it official–input period extended for all to April 24th
March 27, 2009
IDSA NEW DEADLINES Schedule–Time to get on the stick
March 26, 2009
Volkman submission to IDSA–Smells like courage to me
March 26, 2009
Shifting sands of time–IDSA calendar revisions at hand
March 24, 2009
Annals of Neurology — Fair and balanced reporting is alive and well
March 21, 2009
Silencing the sick– IDSA wages calendar warfare
March 1, 2009
Is evidence-based medicine bankrupt?
February 24, 2009
IDSA Panel–Document submission changes
February 21, 2009
JAMA–Why guideline making requires reform
February 19, 2009
Stimulating distrust?
February 17, 2009
Gostin JAMA article–Politics as usual?
February 14, 2009
Chronic Lyme Disease and the “Axis of Evil”
February 9, 2009
Q&A: IDSA Public Input Period
February 8, 2009
Protesting the panel: Putting pen to paper
February 8, 2009
Rejects! NY Times Rejects Another Letter from Johnson/Stricker
February 5, 2009
Weintraub to IDSA: Listen to the steady heart beat of true science, leave the past behind, and move toward the future
February 5, 2009
Lyme panel: Selection and exclusion bias
February 2, 2009
IDSA Lyme Disease Review Panel Announces Public Input Period and Hearing Date
February 1, 2009
IDSA guidelines panel list as of 2/1/09
January 30, 2009
Medical antitrust actions–Does “might make right”?
January 30, 2009
Gooznews takes on conflicts in guidelines
January 27, 2009
Weinstein Off the IDSA Guidelines Review Panel!
January 26, 2009
The IDSA panel–Q and A
January 24, 2009
IDSA Announces New Guidelines Panel–Balanced or Biased?
January 24, 2009
Bias and patient autonomy—what’s the connection
January 24, 2009
Opinion based medicine
January 22, 2009
Conflicting views on conflicts—throwing the baby out with the bathwater
May 31, 2008
Attorney General findings–IDSA wrong doing
May 14, 2008
IDSA Now Accepting Applications For Panel Members For Guidelines Review Panel
May 1, 2008
Attorney General Press Release: IDSA Lyme Disease Guidelines Flawed and Driven by Conflicts of Interests
September 13, 2007
The IDSA Guidelines Re-Evaluation Process

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