LYMEPOLICYWONK: Video of Dr. Stricker’s MyLymeData Conference Presentation
In April, MyLymeData had its first patient conference with the theme of “Overcoming Lyme Disease.” In my speech, I shared information about the patient-powered big data project and discussed early results from the 7,900 people who have already enrolled.
Next in the speaker lineup was LymeDisease.org board member Dr. Raphael Stricker, who serves with me as co-principal investigator of MyLymeData. He spoke about big data, big pharma, and precision medicine.
Here’s a video of his presentation.
Other speakers included Dr. Chris Green, discussing Lyme and co-infections; Dr. Raj Patel, who talked about mold toxicity; and Dr. Jennifer Sugden, on Lyme in children.
Stay tuned for future posts about them.
The LYME POLICY WONK blog is written by Lorraine Johnson, JD, MBA, who is the Chief Executive Officer of LymeDisease.org. You can contact her at lbjohnson@lymedisease.org. On Twitter, follow her @lymepolicywonk. If you have not signed up for our patient-centered big data project, MyLymeData, please register now.
Bravo Dr. Stricker! So thankful you hit all the hot-buttons: sexual transmission, faulty testing (worthless!), need of acceptance of smaller labs that specialize in virology and bacteriology that have a greater specificity/sensitivity, and better treatments based on the complexity of Tick Borne Illness.
Good vid, easy to understand. Dr. Stricker is real down to earth. Unlike some others, he respects your intelligence and you don’t feel like he’s talking down to you.
Chronic Lyme will be recognized when a specific drug is invented for it. Interesting that the government owns a patent on one of the most important Borrelia proteases, yet doesn’t seem to be doing anything with it. Almost seems like they’re trying to prevent a drug from being invented.
I don’t understand – why is the IGenex testing, which is clearly more accurate, not acceptable with CDC? What is the reasoning behind not going with the better testing?