LymeTimes
Winter 2024

Table Of Contents
FEATURES
In Memoriam: Patricia Smith, LDA President and Tireless Lyme Advocate, Passes Away

Her four-decade-long fight for Lyme disease patients paved the way for many advances

By Dorothy Kupcha Leland

Pat Smith dedicated her life to working for the benefit of Lyme patients

From patient protests against medical boards to testifying in Congress, “she had her finger in every pie.”

By Phyllis Mervine

Honoring a Legacy: Celebrating the Life and Achievements of Patricia Smith

Eulogies highlight her passion, leadership, and profound impact on the Lyme community.

By Dorothy Kupcha Leland

NEWS
NIH awards $20.7 million for landmark chronic Lyme disease study

Research Aims to Uncover Causes and Improve Treatments for Persistent Symptoms

By Lisa LaPoint

National Academies seek answers to riddle of persistent Lyme disease

LymeDisease.org’s Lorraine Johnson addresses question of patient-centered research outcomes

By Dorothy Kupcha Leland

PATIENT MATTERS
When Lyme patients must fight to be believed by doctors

Researchers find women and younger patients are at higher risk of “illness invalidation” by healthcare practitioners

By Nancy Dougherty

Understanding the Jarisch Herxheimer Reaction

Dr. Christine Green Offers Insights on its Mechanisms, Symptoms, and Clinical Implications

By Invisible International

ADVOCACY
Congenital Lyme disease is under-recognized by medical professionals

Phyllis Bedford delivered the following public comment at the HHS Community Engagement Initiative meeting in San Francisco in June 2024.

By Phyllis Bedford

Having different Lyme reporting rules for some states makes no sense

Dorothy Leland delivered the following comments at the HHS Community Engagement Initiative meeting in San Francisco in June 2024.

By Dorothy Kupcha Leland

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