2016 FALL ADVOCACY Lyme Disease: A New Plague Met With Silence, Denial This has happened before, and histories like this should not repeat. By David Michael Connor Facebook Twitter Google + Pinterest Email
You must be a LymeDisease.org member to access this content. If you are already a member, log in below. Otherwise, become a member today to access this content and the full library of Lyme Times articles. Become A Member Login Page 2 of 2 4 Reader Comments I, too, have late stage Lyme. For 3 years I was told all of the things not wrong with me and finally fibromyalgia by one doctor and chronic fatigue by another. Luckily, my spouse knew something was wrong so she kept me sane. I finally received a Lyme diagnosis and one year of antibiotics. Unfortunately, too much damage has been done to return me to a normal life. Headaches are a way of life. My balance stinks. Knee pain is also a daily routine. Pain rotates through other joints. I wear a bracelet hat says “Never Give Up.”. That has been the most effective treatment of the lasting effects. Would it be possible to sue the CDC to remove their recommendations that are not supported by published research? CDC can’t be sued so far as I know. The individuals who work for the CDC have the same liability that we all do. There is presently an antitrust suit naming IDSA members who work for the CDC as well as companies in the insurance industry as defendants. Although I certainly hope the courts can be used to get some attention on this issue and stop all the distortion coming from IDSA/CDC — and most importantly focus research on this exploding epidemic — probably a much more effective way to get that attention would be to protest *Big Pharma* and just ignore the CDC. Big Pharma is very sensitive to “optics” while the CDC has no such concern. It may also be the case that Big Pharma simply isn’t aware of how bad this problem has become. Both of these factors could push them to do something if there were a major protest pointed at a particular Big Pharma company on the east coast. It might only take a few hundred to a few thousand people to do it. I simply couldn’t leave your web site before suggesting that I really enjoyed the standard information a person provide to your guests? Is gonna be back frequently to investigate cross-check new posts Comments are closed. Previous LymeDisease.org Submits Comments on Antibiotic Stewardship Rules Next Can Plant-Based Substances Combat Lyme Disease? Related Articles Does Questioning the Government’s Role in Lyme Disease Make You A Conspiracy Theorist? Patients with Lyme disease and other tick-borne coinfections need answers to these questions 21st Century Cures Bill Includes Lyme Disease Language A first step toward empowerment of patients in decisions that affect their own lives CDC Ignores Ethics, Attacks “Chronic Lyme” People with Lyme disease, along with their doctors and advocates, are the ones who will suffer mightily from it Eight Things You Can Do for Lyme Awareness Month We hope this list will spark you to action and raise awareness My 31-Year Journey to a Babesiosis Diagnosis Getting diagnosed is half the battle. It changed my life. I responded to treatment. How Lyme Disease Stole My Childhood An Excerpt from "Bite Me: How Lyme Disease Stole My Childhood, Made Me Crazy, and Almost Killed Me" By Ally Hilfiger
I, too, have late stage Lyme. For 3 years I was told all of the things not wrong with me and finally fibromyalgia by one doctor and chronic fatigue by another. Luckily, my spouse knew something was wrong so she kept me sane. I finally received a Lyme diagnosis and one year of antibiotics. Unfortunately, too much damage has been done to return me to a normal life. Headaches are a way of life. My balance stinks. Knee pain is also a daily routine. Pain rotates through other joints. I wear a bracelet hat says “Never Give Up.”. That has been the most effective treatment of the lasting effects.
Would it be possible to sue the CDC to remove their recommendations that are not supported by published research?
CDC can’t be sued so far as I know. The individuals who work for the CDC have the same liability that we all do. There is presently an antitrust suit naming IDSA members who work for the CDC as well as companies in the insurance industry as defendants. Although I certainly hope the courts can be used to get some attention on this issue and stop all the distortion coming from IDSA/CDC — and most importantly focus research on this exploding epidemic — probably a much more effective way to get that attention would be to protest *Big Pharma* and just ignore the CDC. Big Pharma is very sensitive to “optics” while the CDC has no such concern. It may also be the case that Big Pharma simply isn’t aware of how bad this problem has become. Both of these factors could push them to do something if there were a major protest pointed at a particular Big Pharma company on the east coast. It might only take a few hundred to a few thousand people to do it.
I simply couldn’t leave your web site before suggesting that I really enjoyed the standard information a person provide to your guests? Is gonna be back frequently to investigate cross-check new posts