LymeTimes Spring 2021

“High Responder” Patients Were More Likely to Have Taken Antibiotics

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News

Lack of Balance on 2019-2020 Tick-Borne Disease Working Group Suppressed Patient Voice

Lack of Balance on 2019-2020 Tick-Borne Disease Working Group Suppressed Patient Voice

Contentious meetings saw lone patient rep pitted against chairman of panel and IDSA apologist doctor.

Feds Adopt “National Strategy” for Vector-Borne Diseases

Feds Adopt “National Strategy” for Vector-Borne Diseases

Group envisions a nation where vector-borne diseases no longer threaten human health and well-being.

Health & Science

People with Persistent Lyme Symptoms Have Distinctly Different Gut Microbes

People with Persistent Lyme Symptoms Have Distinctly Different Gut Microbes

Findings on changes in microbiome could lead to new diagnostics and treatments.

Most MyLymeData Participants Worry About Exposure to COVID-19

Most MyLymeData Participants Worry About Exposure to COVID-19

Patients report taking actions to reduce their risk, including cancelling in-person medical appointments.

Patient Matters

Gaslighting by some doctors can undermine the chronically ill

“Gaslighting” by some doctors can undermine the chronically ill

Many Lyme patients face emotional abuse from physicians who disregard the symptoms they report.

Lyme Denial-itis Stole My Daughter’s Childhood

“Lyme Denial-itis” Stole My Daughter’s Childhood

Failure to diagnose a vector-borne illness forced this family through a medical nightmare and years of suffering.

Advocacy

Misleading CDC Lyme Map Contributes to Diagnostic Delays

Misleading CDC Lyme Map Contributes to Diagnostic Delays

Using county numbers would give a more accurate picture of Lyme in large states.

No Test Can Prove a Patient Does Not Have Active Lyme Disease

No Test Can Prove a Patient Does Not Have Active Lyme Disease

There is no diagnostic tool currently available that can definitively determine whether a patient has active Lyme.

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