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I saw thirty doctors before getting the diagnosis of chronic Lyme disease. I felt vulnerable and humiliated with the doctors not believing me about being exhausted all the time and in a lot of pain they said it was fibromyalgia and stress. They prescribed Tylenol so l drank vodka as the Tylenol did not help. I hope doctors will be made to study the disease and are alert to the symptoms. So patients may be treated immediately
Can’t find anyone to test for tick borne anything. I remember when I was 16, going to California from Wisconsin before my senior year of high school, in 1971. Was sick during the trip and my dad was on my case the whole time because he said I was faking it. Never took me to a doctor. The next year I was out of school a lot for what the doctors said was “Mono”. I have had surgery for spinal fusion C-1 thru C-3 January 2014. Now I have chronic pain and a skin condition(which I have had for years) that no one can explain. When I had surgery for a severed tendon in my hand, I was told they would not put me out as I had scar tissue on my lungs. I was tested and was positive for Rocky Mountain Spotted Fever. That was probably 1986. No explanation.Today I have neurological issues. I lived on a Wisconsin Dairy farm for years where I came in contact with wood ticks. I remember picking off 13 at one time.
Can someone advise as to correct testing for possible Lyme ongoing for years? Thank you. My daughter sounds like she has Lyme but no insurance so testing will be on our own but need advise.
I saw thirty doctors before getting the diagnosis of chronic Lyme disease. I felt vulnerable and humiliated with the doctors not believing me about being exhausted all the time and in a lot of pain they said it was fibromyalgia and stress. They prescribed Tylenol so l drank vodka as the Tylenol did not help. I hope doctors will be made to study the disease and are alert to the symptoms. So patients may be treated immediately
Can’t find anyone to test for tick borne anything. I remember when I was 16, going to California from Wisconsin before my senior year of high school, in 1971. Was sick during the trip and my dad was on my case the whole time because he said I was faking it. Never took me to a doctor. The next year I was out of school a lot for what the doctors said was “Mono”. I have had surgery for spinal fusion C-1 thru C-3 January 2014. Now I have chronic pain and a skin condition(which I have had for years) that no one can explain. When I had surgery for a severed tendon in my hand, I was told they would not put me out as I had scar tissue on my lungs. I was tested and was positive for Rocky Mountain Spotted Fever. That was probably 1986. No explanation.Today I have neurological issues. I lived on a Wisconsin Dairy farm for years where I came in contact with wood ticks. I remember picking off 13 at one time.
Can someone advise as to correct testing for possible Lyme ongoing for years? Thank you. My daughter sounds like she has Lyme but no insurance so testing will be on our own but need advise.
Hi Beverly,
Here is some more info on testing: https://www.lymedisease.org/lyme-basics/lyme-disease/diagnosis/
We suggest you consult with a Lyme-literate practitioner. Here is a link to our physician directory: https://www.lymedisease.org/find-lyme-literate-doctors/