Tick-Borne Disease Working Group Special Issue Archives - LymeDisease.org Member Community

Tick-Borne Disease Working Group Special Issue SECTION

Balanced Lyme Disease Stories Benefit Tick-Borne Disease Working Group

Tick-Borne Disease Working Group Special Issue

Balanced Lyme Disease Stories Benefit Tick-Borne Disease Working Group

The purpose of having balanced Lyme disease stories from Lyme patients is to provide some human interest to incentivize Congress to fund Lyme disease research.

By Phyllis Mervine

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One-Dose Doxy

Tick-Borne Disease Working Group Special Issue

One-Dose Doxy

Dorothy Leland submitted the following comments to the Tick-Borne Disease Working Group in advance of the June 21, 2018, meeting.

By Phyllis Mervine

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Two Standards of Care for the Diagnosis and Treatment of Lyme Disease

Tick-Borne Disease Working Group Special Issue

Two Standards of Care for the Diagnosis and Treatment of Lyme Disease

LymeDisease.org’s Lorraine Johnson gave the following verbal comments about the two standards of care during the Tick-Borne Disease Working Group’s June 21 meeting.

By Lorraine Johnson, JD, MBA

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Overview of the Tick-Borne Disease Working Group: What Has Been Accomplished so Far?

Tick-Borne Disease Working Group Special Issue

Overview of the Tick-Borne Disease Working Group: What Has Been Accomplished so Far?

TBDWG subcommittees have been working nearly around the clock to ensure high-integrity reports will be ready for submission to Congress later this year and will include the most comprehensive viewpoints possible.

By Lorraine Johnson, JD, MBA

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MyLymeData: A Patient-Centered Presentation to the Tick-Borne Disease Working Group

Tick-Borne Disease Working Group Special Issue

MyLymeData: A Patient-Centered Presentation to the Tick-Borne Disease Working Group

Lorraine Johnson, CEO of LymeDisease.org, shares data from the MyLymeData research project as well as her own personal experiences with Lyme disease.

By Lorraine Johnson, JD, MBA

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How the Patient Voice Has Impacted the Tick-Borne Disease Working Group

Tick-Borne Disease Working Group Special Issue

How the Patient Voice Has Impacted the Tick-Borne Disease Working Group

Patients are coming together to have an impact and create change in Lyme disease policy. The patient voice has a powerful impact on the future of Lyme.

By Phyllis Mervine

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Lyme Patients Involved With Tick-Borne Disease Working Group Offer Their Opinions

Tick-Borne Disease Working Group Special Issue

Lyme Patients Involved With Tick-Borne Disease Working Group Offer Their Opinions

Members of the Tick-Borne Diseases Working Group share their feelings about what being a part of the process has meant to them.

By Phyllis Mervine

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The Lyme Disease Stories We Share

Tick-Borne Disease Working Group Special Issue

The Lyme Disease Stories We Share

Among the most dramatic parts of the Tick-Borne Disease Working Group meeting were the public comments, including patient's Lyme disease stories.

By Dorothy Kupcha Leland

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Alpha-Gal “Red Meat” Allergy: A Serious Condition Caused by a Tick Bite

Tick-Borne Disease Working Group Special Issue

Alpha-Gal “Red Meat” Allergy: A Serious Condition Caused by a Tick Bite

Alpha-gal "red meat" allergy develops after a person has been bitten by a lone star tick and becomes allergic to meat.

By Dorothy Kupcha Leland

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A Timeline of Comings and Goings Related to the HHS Tick-Borne Disease Working Group

Tick-Borne Disease Working Group Special Issue

A Timeline of Comings and Goings Related to the HHS Tick-Borne Disease Working Group

Over a period of six months, there were a number of personnel changes.

By Dorothy Kupcha Leland

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Tick-Borne Diseases: A Big Problem in California

Tick-Borne Disease Working Group Special Issue

Tick-Borne Diseases: A Big Problem in California

LymeDisease.org founder, Phyllis Mervine shares her story of growing up in Lyme-endemic areas, and then contracting Lyme disease in Mendocino County, California.

By Phyllis Mervine

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Lyme Disease Costs May Exceed $75 Billion per Year

Tick-Borne Disease Working Group Special Issue

Lyme Disease Costs May Exceed $75 Billion per Year

The CDC’s recent increase in estimated Lyme disease cases per year means we also need to update how we view real-world economic costs for Lyme patients.

By Lorraine Johnson, JD, MBA

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