Our Impact

Leading the way in Tick-borne Disease Education, Advocacy & Research

Trusted for 35 Years

LymeDisease.org works for YOU. We fight for what Lyme patients need. Better diagnosis. Better treatment. Better research. Improved access to doctors who know how to help them.

We do this in a variety of ways. We provide needed information to individuals and the public, and we represent patient interests nationally. Through MyLymeData, our patient-led research project, we build a knowledge base that advances scientific studies of Lyme disease and informs our efforts to change public health policy.

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#1 Communications Network for Lyme disease

Since 1989, LymeDisease.org has grown from publishing a single page newsletter into the largest communications network representing Lyme disease patients in the nation. Starting with our highly informative website, our content is widely distributed via blogs, social media, and our digital journal, the Lyme Times.

We are a news hub for what you need to know: basic information about tick-borne illness, different treatment modalities, scientific advancements, the controversies and politics of Lyme disease, inspirational stories, sources of financial help, and more.

The Lyme Times: Delivering information you can trust.

Members of LymeDisease.org enjoy exclusive access to online issues of The Lyme Times, one of the most respected publications in the industry covering Lyme and other tick-borne diseases.

Learn about the latest developments in diagnostic testing and treatment, including alternative therapies.
Read how early and late stage Lyme disease differ and how co-infections can contribute to chronic illness.
Get the benefits you deserve. See how to navigate health and disability insurance hurdles through authoritative articles and patient narratives.
Stay abreast of the most current legislative news and how it might impact you.
Explore articles featuring in-depth analyses of patient data gathered through MyLymeData and LymeDisease.org’s extensive list of surveys and polls.

LymeDisease.org’s audience includes patients, physicians & researchers

#1 Trusted

Source of Patient
Information

Largest

Communication Network
in Lyme Disease

Leader

in Lyme Disease
Big Data

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Leading Patient-Powered Lyme Disease Research

Our patient-powered research tool, MyLymeData, allows individuals with Lyme to pool their personal experiences to help drive research towards a cure. The estimated 1-3 million patients suffering from chronic Lyme disease today can’t wait years for clinical research trials. With over 18,000 patients enrolled in MyLymeData, we’re building a knowledge base in Lyme disease to inform researchers, patients, and the public.

We currently have collaborations with the University of Washington and the University of California at Los Angeles as well as the Lyme Disease Biobank, a project of the Bay Area Lyme Foundation. MyLymeData has been included in two National Science Foundation awards.

Giving patients the tools they need to get care

We provide patients with referrals to healthcare providers and we provide physicians with patient education tools. We offer a symptom checklist to patients seeking diagnosis and provide an online patient support group.

Providing Strength In Numbers

18,000

Enrolled in
MyLymeData

The first nationwide
patient powered registry.

Millions

Of
People

Visit our website
each year.

1000s

Involved In
Developing

Lyme disease
research priorities

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We fight to make the patient voice stronger

We give patients a voice and we amplify their power.

We represent the Lyme community in high-stakes conversations with Congress, health officials, policy makers, researchers, and the news media.

When you become a member of LymeDisease.org, it makes us all stronger.

Your support enables us to continue providing critical information, advocating for better policies, and driving research that can lead to better treatments and, ultimately, a cure for Lyme disease.

Join us in this vital mission and help us make a difference in the lives of those affected by this insidious illness. Together, we can turn the tide.

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