I joined MyLymeData because things need to change
This is one of a series of guest blogs by people who have enrolled in MyLymeData.
When Rachel Leland was wheelchair-bound (often bed-bound) from Lyme disease as a young teenager, she learned to edit videos on her computer. What follows is a video blog about why she thinks MyLymeData is so important.
Rachel lives in Arizona.
Tags : MyLymeData
Rachel, thank you for creating your Lyme video of where you were and where you are now!
As time permits, add the video where you are LIP SINGING; that’s when you/i had online emails. it was super good.
So glad you are where you are today. We all enjoy your mom’s super blogs she started here.
To continued good health and happiness always,
bettyg, iowa lyme activist
It’s amazing how the USA medical society and government know more about the symptoms and make up of the Zika virus in a record amount of time then they do about Lyme and its nasty buddies. Two years, and now age 35, I’ve been suffering with chronic neuro Lyme and I am one of the millions of the slowly going extinct middle class who cannot afford to see a specialist in Lyme nor its treatments. Not to mention that in my lovely state of PA, northeastern area, it was unbelievably hard to get a single physician or specialist to hear my SOS that something was really wrong. How was someone like me, a jogger, office manager, never had a major illness, and mother of two, able to wake up one day back in March 2014 with excruciating pain on my right side of head face and neck with numbness allowed to continue this long and rapidly deteriorate in health and have no avenue to turn into for any compassion among the medical professionals. I was yelled at by Dr #1 (my primary I’ve had for years) because I told the psychiatrist, he ordered to see me in the hospital, to please leave because I am not depressed and this is not “all in my head.” All because I cried one day in the office because I woke up and life as I knew it before was gone. Crying makes us suddenly depressed and in need of anti depressant and a psych?
I just don’t understand anymore, sorry for the long rant, I’m just another person out there having a “bad Lyme” day.