Focus – Opinions and Features

Advocates on behalf of patients with Lyme and other tick-borne diseases made some headway on Capitol Hill in 2019. Of course, much work still lies before us. Bruce Fries is President of the Patient Centered Care Advocacy Group. He provides this summary of what... Read More »

By Phyllis Mervine Thirty years ago, when I started this organization, I never dreamed we would still be fighting the same battles three decades later. Accurate tests, physician education, and patient access to proper medical care are still at the forefront of what... Read More »

Neil Spector, MD, is one of the most highly regarded presenters in the Lyme disease community. He is a professor and researcher at Duke University School of Medicine.  He also wrote “Gone in a Heartbeat: A Physician’s Search for True Healing” – a memoir about his own battle with... Read More »

by Rachel Leland In November of 2015, I was in month six of what ended up being 13 months of intense mold treatment (on top of Lyme treatment). I wasn’t allowed to even step foot inside any building that hadn’t been cleared for mold. No shopping malls, no movie theaters, not even... Read More »

Minnesota’s state medical board recently lifted a moratorium on prosecuting physicians for treating Lyme outside of the strict guidelines of the Infectious Diseases Society of America. Now, doctors who prescribe long-term antibiotics for Lyme disease risk losing their... Read More »

By Daniel A. Kinderlehrer MD In a previous blog about disulfiram,  in July, 2019, (1) I reported on preliminary data, both in vivo and in vitro, suggesting that disulfiram may be a good drug to treat Lyme disease and babesiosis. (2-4) I can now say definitively that disulfiram is... Read More »

I recently had a long, meaningful phone conversation with my only friend in remission. She and I have very parallel health journeys, having our lowest points around the same time and almost dying around the same point as well. We ended up in remission around the same time to... Read More »

by Carolyn Cooper Degnan October is Employee Giving Month If you or your spouse works for a corporation or a governmental agency, you’ve probably heard of employee giving programs. What is employee giving? It’s a simple way to make tax-deductible donations to a charity you care... Read More »

By Tanya White Phyllis and Scott Bedford’s daughter was diagnosed with Lyme disease in 2008. At that time, they had no idea of the exhausting and expensive medical journey on which they were about to embark. Their daughter, like so many other Lyme patients, had been sick and... Read More »