Focus – Opinions and Features

Sue Faber delivered the following remarks during public comment at the recent Federal Tick-Borne Disease Working Group in Washington DC. My name is Sue Faber, I am a registered nurse from Canada, co-founder and President of LymeHope. The issue of maternal-fetal transmission of... Read More »

Phyllis Mervine, Founder and President of LymeDisease.org, delivered the following public comments at the recent meeting of the federal Tick-Borne Disease Working Group. I live in a high-risk county for Lyme disease that doesn’t appear at all on the CDC’s new Lyme maps. The... Read More »

by Kristina Bauer and Cozette Moysa Disulfiram is a chemical compound first synthesized in the late 1800s. By the early 1900s, it was used as an industrial agent in the manufacture of rubber. The sulfur-containing substance also had some medicinal uses, such as treating... Read More »

By Dr. Steven Phillips For patients, there is often nothing more soul-crushing than being inexplicably sick with doctor after doctor having no answers, or getting the wrong diagnosis and being led down the wrong path with the wrong drugs. But for patients with Lyme disease,... Read More »

By Kristina Bauer I contracted Lyme disease and co-infections in 1980, in Fairview Heights, Illinois. I remained undiagnosed and untreated until 2012. One year later, my husband and I discovered that all four of our children had been infected at birth with congenital Lyme disease... Read More »

The following is a response to an opinion piece by two IDSA doctors in the Connecticut Mirror newspaper. In it, the doctors charge that chronic Lyme disease is a bogus diagnosis and that doctors who treat it are committing medical fraud. By Christopher Montes Chronic Lyme and... Read More »

By Ian McCartney One bright, sunny day in August 2008, a bug no bigger than a raspberry seed attached itself to the back of my leg. I had no idea that my life was about to change forever. I knew little about ticks and had never heard of Lyme disease. And, I couldn’t imagine... Read More »

Advocates on behalf of patients with Lyme and other tick-borne diseases made some headway on Capitol Hill in 2019. Of course, much work still lies before us. Bruce Fries is President of the Patient Centered Care Advocacy Group. He provides this summary of what... Read More »

By Phyllis Mervine Thirty years ago, when I started this organization, I never dreamed we would still be fighting the same battles three decades later. Accurate tests, physician education, and patient access to proper medical care are still at the forefront of what... Read More »