Focus – Opinions and Features

By Marjo Valonen, MD It was the happiest moment of my life, to hold my twin babies for the first time. I am so glad that I didn’t know what was ahead of me: that I would be bedridden and seriously ill for years. That I couldn’t walk, play with my kids, or have the strength to... Read More »

By Katie McCurdy As a patient with many mysterious symptoms, I know what it’s like to befuddle my doctors. I had heart palpitations, tingling in my hands and feet, sensory issues, and gut problems. None of these symptoms fit with my primary autoimmune diagnosis. For years,... Read More »

by Dr. Elizabeth Maloney Most, if not all in the Lyme community know these statements to be true: *Many aspects of Lyme disease, especially the diagnosis and treatment of disseminated and persistent (chronic) disease, are controversial. *Early diagnosis and treatment of the... Read More »

The following message was sent to the Tick-Borne Disease Working Group after its June 4 meeting. by Jeanne Ryan As an individual in recovery from late-stage/chronic Lyme disease and the co-infections babesia and bartonella, thank you to the group and, in particular, to Pat Smith... Read More »

By Jenny Kravitz On January 3, 2019, my family’s whole world changed LITERALLY OVER NIGHT. Our once loving little man (now age 6) was filled with rage, aggression and hatred. He went from snuggling with me and loving me, to lashing out at me, telling me he hated me, wanted... Read More »

By Kimberley Price Vogue magazine once quoted Australian activist GD Anderson as saying: “Feminism isn’t about making women stronger. Women are already strong. It’s about changing the way the world perceives that strength.” If GD Anderson is right and all women are... Read More »

SICK is a web series that investigates how different diseases affect our bodies. This week the topic was Lyme disease, with important perspective by Dr. Raphael Stricker, board member of LymeDisease.org. Click below to view it. Read More »

By Bryan Rosner We all know that mold is now recognized to be a major contributing factor in the severity of Lyme disease. This is old news in the Lyme community. My story is similar to many of yours. First, thinking my primary problem is Lyme. Then realizing that mold plays a... Read More »

by Ella Steinbeck I have been absent. Not just absent from my regular activities or a couple of dinner parties but I have been absent from life. I have something called Ehlers-Danlos Syndrome. It’s painful and horrible and since it affects collagen there is no part of my body... Read More »