Focus – Opinions and Features

LymeDisease.org today announced the launch of MyLymeData, a first-of-its-kind national patient-powered research project aimed at improving the quality of care for Lyme disease patients. The MyLymeData registry allows patients to pool their health information through a secure... Read More »

LymeDisease.org will soon launch a patient-powered research project called MyLymeData. It promises to be the largest study of chronic Lyme patients ever. Our latest issue of The Lyme Times explains all about it. You can read this issue online (for free) by clicking here. (Note:... Read More »

Lyme disease patients and advocates will demonstrate outside the Infectious Diseases Society of America’s (IDSA) Annual Conference in San Diego Oct. 9-10. All events will take place across from the San Diego Convention Center, 5th Avenue and Harbor Drive. (Right next to the... Read More »

The IDSA is holding its annual conference in San Diego this October, and LymeDisease.org,  the MayDay Project, and the San Diego Lyme Disease Support Group are teaming up to hold a protest there. Events will take place in front of the San Diego Convention Center, October 9th –... Read More »

From Buzzfeed, August 3, 2015 by Ana Saldamando There’s no way to explain illness to someone who hasn’t been ill. Like, seriously ill. It’s like saying “Enjoy your youth” to a teenager. And you can only say “I feel like I’m dying” so many times before it falls on deaf ears — and... Read More »

by Dr. Andrew Pugliese   A 15-year-old young lady came to see me last year with quite an interesting story. Six months prior to her visit, she was at summer camp, when she developed a fever, chills, myalgia and arthralgia. The patient also has a history of cranio-pharyngeal... Read More »

­by Daniel J. Cameron, MD, MPH “Minds are like parachutes. They only function when open.” This particular quote by Thomas Dewar came to mind after reading an article, Chronic Lyme Disease (1) in the June issue of Infectious Disease Clinics of North America. In it, the author... Read More »

New York State Senator Sue Serino, Chair of the NYS Senate Taskforce on Lyme and Tick-Borne Diseases, held a two-four community forum about Lyme disease in Hyde Park on June 30. On the following video, you can listen and learn from speakers from the Cary Institute, Dutchess... Read More »

This press release from the Lyme Disease Association, provides important links and background information about the proposed bill: The Energy & Commerce Committee (E&C) passed The 21st Century Cures Act, HR 6, by a vote of 51-0, on May 21, 2015. Chairman Fred Upton (MI)... Read More »