News

Patient representation on the revised IDSA guideline panel: Is it real or token? The IDSA guideline development process is a big deal—without making sure the process is fair, there is no real chance for change in the guidelines. And patients need change.  We need to be at the... Read More »

Dr. Steven Phillips, of ILADS, gives much-needed perspective and information about Lyme disease  on Fox5NY, April 1, 2016: Read More »

About this time a year ago, LymeDisease.org joined with some 90 other Lyme patient advocacy organizations in giving wide-ranging comments to the Infectious Diseases Society of America regarding the proposed update of the IDSA’s Lyme treatment guidelines. Today, the IDSA... Read More »

The Massachusetts Lyme Legislative Task Force responds to a recent editorial from the Boston Globe, which opposed legislation to require insurance coverage for treatment of Lyme disease. March 29, 2016 Dear Editors of the Boston Globe: We were disappointed by your March 28... Read More »

The Boston Globe newspaper this week ran an editorial opposing legislation to require insurance companies to pay for long-term treatment of Lyme disease. A Massachusetts Lyme advocate responds. by Michelle Treseler Massachusetts is at the epicenter of Lyme disease, an infectious... Read More »

12-year-old Julia Bruzzese of New York, in a wheelchair from Lyme disease, was thrust into the national spotlight in September, when Pope Francis picked her out of an airport crowd and blessed her. Here are updates to her story from several  media outlets.      ... Read More »

The following Lyme education events are scheduled in the coming months. Contact individual organizations for details.           April 7, Thursday, “What You NEED to Know About Lyme and Other Tick-Borne Diseases,” Troy, NY. Presentation by Dr.... Read More »

By Dana Parish, The Huffington Post, March 25, 2016 I just had a flashback. When I was diagnosed with Lyme, I knew little about it. I went to the first infectious disease doctor with my bullseye still present, asking lots of questions. Among them, are you sure this three weeks of... Read More »

French scientists collected Ixodes ticks from nine locations in northern France and tested them for 38 pathogens. They found that almost half of the ticks carried at least two diseases, while many carried up to five. Results have been published in PLOS, under the title... Read More »