News

From the Lyme Disease Association: Please contact your Congress Member to ask him/her to sign on to two important letters from the US House Lyme Disease Caucus. These bipartisan letters provide details that the Lyme Caucus is asking the two Appropriations Committees to include in... Read More »

Boston Globe, Feb. 20, 2020 by Tonya Alanez After less than six hours of deliberation, a Suffolk County jury on Thursday found that Boston Children’s Hospital was not negligent in its treatment of Justina Pelletier, a Connecticut teenager whose plight sparked an emotional debate... Read More »

The next meetings of the federal Tick-borne Disease Working Group will be held in Philadelphia on March 3 and 4. In-person attendance is limited to space available. Therefore, if you want to attend in person, we highly recommend you pre-register (details below). If you want to... Read More »

Morgellons disease is a controversial illness associated with Lyme disease. It is caused by infection with a type of corkscrew-shaped bacteria known as a spirochete. A new study describes a staging system for this mysterious skin disease based on medical experience with syphilis,... Read More »

Update from journalist Mary Beth Pfeiffer’s Facebook page: Torrey v. the Infectious Diseases Society of America is alive, well and strong. The case — charging that the IDSA, five insurance companies, and six physicians conspired to deny care to Lyme disease patients... Read More »

Teenager Olivia Goodreau, whose family started the LivLyme Foundation, and Lt. Col. Nicole Malachowski, a retired Air Force officer, both came to Washington for the recent Lyme Fly-In. While they were in town, Fox5DC interviewed them about what’s going with Lyme disease.... Read More »

By Kathy Fife, Lyme advocate from New Hampshire: I’m pleased to share we had 100% support in the final senate vote on February 13. HB 490 establishes a commission to study the role of clinical diagnosis and the limitations of serological diagnostic tests in determining the... Read More »

Eric D. Hargan is the Deputy Secretary of the Department of Health and Human Services (HHS). He delivered the following remarks to attendees at the recent “Lyme Action Fly-in” event in Washington DC.  Good evening, everyone. It’s great to be with you all. Before... Read More »

According to journalist Mary Beth Pfeiffer, here’s a key issue in Torrey v IDSA et al: do the plaintiffs actually suffer from Lyme disease and its lasting effects? The lawsuit has been brought by a group of Lyme patients. They’re suing the Infectious Diseases Society... Read More »