News

The next meetings of the federal Tick-borne Disease Working Group will be held in Philadelphia on March 3 and 4. In-person attendance is limited to space available. Therefore, if you want to attend in person, we highly recommend you pre-register (details below). If you want to... Read More »

Morgellons disease is a controversial illness associated with Lyme disease. It is caused by infection with a type of corkscrew-shaped bacteria known as a spirochete. A new study describes a staging system for this mysterious skin disease based on medical experience with syphilis,... Read More »

Update from journalist Mary Beth Pfeiffer’s Facebook page: Torrey v. the Infectious Diseases Society of America is alive, well and strong. The case — charging that the IDSA, five insurance companies, and six physicians conspired to deny care to Lyme disease patients... Read More »

Teenager Olivia Goodreau, whose family started the LivLyme Foundation, and Lt. Col. Nicole Malachowski, a retired Air Force officer, both came to Washington for the recent Lyme Fly-In. While they were in town, Fox5DC interviewed them about what’s going with Lyme disease.... Read More »

By Kathy Fife, Lyme advocate from New Hampshire: I’m pleased to share we had 100% support in the final senate vote on February 13. HB 490 establishes a commission to study the role of clinical diagnosis and the limitations of serological diagnostic tests in determining the... Read More »

Eric D. Hargan is the Deputy Secretary of the Department of Health and Human Services (HHS). He delivered the following remarks to attendees at the recent “Lyme Action Fly-in” event in Washington DC.  Good evening, everyone. It’s great to be with you all. Before... Read More »

According to journalist Mary Beth Pfeiffer, here’s a key issue in Torrey v IDSA et al: do the plaintiffs actually suffer from Lyme disease and its lasting effects? The lawsuit has been brought by a group of Lyme patients. They’re suing the Infectious Diseases Society... Read More »

Journalist Mary Beth Pfeiffer reports that Cigna has become the third insurance company to reach a settlement in Torrey v. IDSA et al. That’s the federal lawsuit filed by a group of Lyme patients against six members of the Infectious Diseases Society of America and... Read More »

Message from Washington state Lyme advocates: It is “Do or Die” for Washington state’s Lyme Bill, HB 2332–a bill to protect doctors who prescribe long-term antibiotics for Lyme disease. We need you to call representative Eileen Cody (360-786-7978). Ask her... Read More »