News

(Note: Justina’s case does not involve a Lyme disease diagnosis. However, the Lyme community has been very interested in the case because it involves a contested medical diagnosis. Parents of children with Lyme disease sometimes lose custody because doctors or hospitals... Read More »

DailyMail.com, January 8, 2020 by Heidi Parker Justin Bieber has been diagnosed with Lyme disease, an illness caused by a bacteria that is transmitted to humans through a tick bite. The 25-year-old singer opens up about his secret health battle in his new 10-part documentary... Read More »

The Free Lance-Star, Jan. 2, 2020: By Cathy Dyson Quintin Beltran enters the room at a good clip, proudly showing off how well he’s walking. He holds onto a cane for support because he’s still not used to this new version of himself. The 60-year-old lost all the toes on both... Read More »

The Kay Hagan TICK Act—aimed at improving the government’s response to Lyme and other tick-borne diseases—was included in the federal appropriations bill passed by Congress this past week. President Trump signed the entire spending package late Friday. The TICK Act is named after... Read More »

Journalist Mary Beth Pfeiffer reports via Twitter that proceedings in Torrey v. IDSA et al have been delayed through February 14. Torrey v. IDSA is the federal lawsuit filed by a group of Lyme patients against six members of the Infectious Diseases America and (originally) eight... Read More »

By Jerry Carino, Asbury Park Press (NJ), Dec. 19, 2019 It might have gone unnoticed by the public at large, but included in the massive spending package Congress passed Thursday was a bill of great importance to advocates for Lyme disease sufferers. The Kay Hagan Tick Act, which... Read More »

The next meeting of the federal Tick-Borne Disease Working Group will be held January 28-29, in Washington DC. The tentative schedule lists a 9 a.m. start time on each day. The meeting will be held at the Hyatt Place Washington DC/US Capitol, 33 New York Avenue NE, Washington, DC... Read More »

New York Congressman Antonio Delgado has joined Reps. Chris Smith (NJ), Collin Peterson (MN), and Lee Zeldin (NY) in introducing the Stamp Out Lyme Disease Act. The bipartisan legislation would raise funds for the research and development of treatments for Lyme and tick-borne... Read More »

VAINCRE LYME, a patient group from France, has joined the coalition opposing the Infectious Diseases Society of America’s proposed new Lyme guidelines. VAINCRE LYME translates as “Defeat Lyme.” It is the 89th group to join the Ad Hoc Patient and Physician Coalition... Read More »