News

Eighty-seven organizations in 11 countries are now on record as opposing the IDSA’s proposed Lyme disease treatment guidelines. The most recent one to join the Ad Hoc Patient and Physician Coalition is borelioza.org – Lyme Poland. Other countries represented include the US,... Read More »

The judge has ordered a stay in the federal lawsuit brought by Lyme patients against IDSA doctors and insurance companies. The suit–known as Torrey v. IDSA et al–charges six doctors and eight insurers with violating a law normally applied to organized crime: the... Read More »

Roche, a Swiss multinational pharmaceutical company, has received approval from the US Food and Drug Administration for a test to screen donated blood for Babesia. If undetected, Babesia can be fatal in patients receiving blood transfusions from infected donors. The newly... Read More »

Eighty-six organizations in 10 countries have joined the Ad Hoc Patient and Physician Coalition, protesting the IDSA Lyme guidelines. (Update: 87 groups in 11 countries) Countries represented include: the US, Canada, Australia, France, Germany, the UK, the Netherlands, Belgium,... Read More »

Last May, LymeDisease.org launched a petition asking for Dr. Eugene Shapiro’s removal from the federal Tick-Borne Disease Working Group (TBDWG). More than 31, 000 people have signed it. We have contacted the Department of Health and Human Services (HHS) many times about... Read More »

The Ad Hoc Patient and Physician Coalition to protest the IDSA Lyme guidelines continues to gather steam–throughout the world. At this writing, 85 organizations in nine countries have endorsed the coalition’s rebuttal to the guidelines. (Update: 87 organizations) Countries... Read More »

The federal Tick-Borne Disease Working Group held a web-based meeting on September 12. Members of sub-committees were announced, with progress reports. LymeDisease.org’s Lonnie Marcum live-tweeted the event. Here’s a compendium of what she posted during the meeting. Read More »

The documentary Skin Deep: The Battle Over Morgellons will celebrate its world premiere on October 5th at the Awareness Film Festival in Los Angeles. Skin Deep was directed by Emmy-winning editor and filmmaker Pi Ware. The film investigates the fierce controversy surrounding the... Read More »

By Mary Beth Pfeiffer In August of 2013, Joseph Elone died suddenly when Lyme disease infected his heart. He was 17 years old and had just returned from summer camp in Rhode Island, which then had the nation’s seventh highest Lyme disease rate. Today, a wrongful death lawsuit,... Read More »