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Touched By Lyme

an image of Dorothy Kupcha Leland

Dorothy Kupcha Leland

This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.

TOUCHED BY LYME: Advocates from 45 states seek more Lyme funding

25
FEB
2022
More than 300 Lyme advocates from throughout the US took part in this week’s Virtual Lyme Fly-in. It was a chance for individuals to educate their Congressional representatives about the need for increased federal funding for Lyme and other tick-borne diseases. They also made... Read More »

TOUCHED BY LYME: “My Promise to Alex” –a memoir and a call to arms

21
FEB
2022
Alex Hudson grew up in Fresno, California. When she was 11 years old, she started complaining that her legs hurt. That was the beginning of Alex’s “mystery illness,” with waxing and waning symptoms that a parade of doctors couldn’t figure out. Sometimes her knees swelled up to... Read More »

TOUCHED BY LYME: When parents are unjustly accused of harming their sick child

14
FEB
2022
If your child has chronic Lyme disease, PANS/PANDAS, mast cell activation syndrome, POTS, or any number of other “medically complex conditions” – you have probably experienced being disbelieved by many people. You may be a decent, well-intentioned parent doing everything you can... Read More »

TOUCHED BY LYME: Register for Lyme Fly-in by February 10

03
FEB
2022
I’m often asked what’s the best way to get started as a Lyme advocate. And one of my answers is always “Sign up for the virtual Lyme Fly-in.” It’s an opportunity for you to speak directly with the offices of your elected representatives in Congress—via... Read More »

TOUCHED BY LYME: Who will represent YOUR state? Maybe you?

27
JAN
2022
More than 200 Lyme advocates from throughout the United States have already signed up for this year’s virtual Lyme Fly-in, scheduled for February 22-23. But there’s room for more, especially from the following underrepresented areas: Alaska, Alabama, Arkansas, Connecticut,... Read More »

TOUCHED BY LYME: The blogs you cared about most in 2021

07
JAN
2022
The team at LymeDisease.org strives to keep you up-to-date on information relevant to the Lyme community. Throughout the year, we regularly post blogs on our website that include news, analysis and personal stories. We deliver them to you in a variety of ways: social media links... Read More »

TOUCHED BY LYME: 2022’s virtual Lyme Fly-In is February 22-23

03
JAN
2022
People often ask me how they can get involved in Lyme disease advocacy. Among other suggestions, I always recommend taking part in the Center for Lyme Action’s annual Lyme Fly-In. This year it will be held February 22-23. What is it? An opportunity for Lyme advocates... Read More »

TOUCHED BY LYME: “Deep Places” explores one man’s Lyme fight

01
DEC
2021
Ross Douthat was a busy man. In addition to his regular opinion column in the New York Times, he wrote books, gave speeches, traveled, interviewed people, and was often interviewed himself. In 2015, he and his wife had two kids and another on the way. They decided to leave... Read More »

TOUCHED BY LYME: Lyme film “Your Labs are Normal” now on Vimeo

22
NOV
2021
Your Labs Are Normal is a powerful film that grew out of the Lyme-related experiences of a Black woman of Puerto Rican descent living in New York City. And I’ll wager that the universal aspect of what’s shown in the movie will resonate with most people with Lyme, regardless of... Read More »
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