NEWS: New York forms task force on Lyme disease
State senate panel to develop action plan against Lyme disease.
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Press release from New York State Senate, Oct. 8, 2013:
SENATE MAJORITY COALITION ANNOUNCES TASK FORCE ON LYME DISEASE
Panel To Develop Recommendations for A State Action Plan To Increase Prevention, Improve Treatment and Diagnosis
Senate Majority Coalition Co-Leaders Dean Skelos and Jeffrey Klein today announced the creation of the Senate Task Force on Lyme and Tick-Borne Diseases to examine state and federal efforts to combat the continued spread of these diseases and make recommendations for a plan to improve prevention, diagnosis and treatment.
The task force will be co-chaired by Senator Kemp Hannon (R-C-I, Garden City), Chairman of the Senate Health Committee, Senator David Carlucci (D, Rockland/Westchester), Senator Kenneth LaValle (R-C-I, Port Jefferson) and Senator Elizabeth Little (R-C-I, Queensbury).
The panel will work on recommendations for a state action plan to address Lyme and other tick-borne diseases modeled after the “2001 West Nile Virus Response Plan.” That plan was developed by the New York State Department of Health in response to the West Nile Virus outbreak in 1999, and New York needs a comparable plan to move the state forward in prevention, diagnosis and treatment of Lyme and other tick-borne diseases.
Senator Hannon said: “While knowledge of Lyme and other tick-borne diseases has been available for many years, far too many people continue to suffer the effects of tick-borne illnesses, demonstrating a need for further action. The consequences of undiagnosed, misdiagnosed, untreated and mistreated infections from ticks can be serious and debilitating. State and federal agencies must work together with local communities and experts in the field to help develop a comprehensive plan to increase prevention and improve diagnosis and treatment in New York.”
Senator Carlucci said: “Sadly, more and more New Yorkers are falling ill to Lyme disease each year. This bipartisan task force is a meaningful first step towards reversing this trend and finally addressing the serious dangers posed by Lyme disease and other tick-borne illnesses. By working collaboratively and listening to some of the top research experts in the field, I’m confident we can implement a serious plan that promotes prevention, increases education and awareness, and ultimately improves the quality of life for those who remain at risk.”
Senator LaValle said: “I have, for many years, worked with the East End towns in my district to seek ways to control ticks and the spread of tick borne diseases, including securing funds for four-poster feeding stations. Tick-borne diseases and, specifically, Lyme disease are debilitating and must be controlled and stopped. I thank Senator Skelos for appointing me to this task force and look forward to getting to work on this issue.”
Senator Little said: “Many of us know at least one person who has had a Lyme infection. As the incidence of infection grows, it’s abundantly clear that this very serious health issue needs more attention. There are so many questions about diagnosis and treatment. Ultimately, the goal is an effective vaccine that will prevent infection altogether but, in the meantime, much more needs to be done to ensure that patients get the treatment they need to avoid what can become a lifelong ailment.”
The Centers for Disease Control recently estimated that about 300,000 individuals are diagnosed with Lyme each year nationally. Lyme is the most commonly reported of all tick-borne illness in the United States. There are 13 states that account for almost all of those cases; many of the cases are in New York.
There are also fears that Lyme disease may, in fact, have broader consequences than the symptoms we generally associate with the illness. According to recent news analysis of state Health Department records, over the past 13 years, Lyme disease was listed as the cause of deaths for nine New Yorkers, outside of New York City. Five of the victims lived in the mid-Hudson Valley. Given the number of cases and severe effects that Lyme and other tick-borne diseases can cause, New York must take action.
Other members of the Senate Task Force on Lyme and Tick-borne Diseases include: Senator Mark Grisanti (R, North Buffalo), Senator Kathleen Marchione (R-C, Halfmoon), Senator Greg Ball (R-C-I, Patterson), and Senator Bill Larkin (R-C, Cornwall-on-Hudson).
Senator Grisanti said: “As Chairman of the Environmental Conservation Committee, it is important to for all agencies to work together to raise awareness and at all costs attempt to prevent this terrible disease.”
Senator Kathleen A. Marchione (R-C, Halfmoon) said: “Confirmed cases of Lyme disease are on the rise in our state, and that alarming fact should concern every New Yorker. It’s absolutely critical that we take pro-active steps to provide more resources to combat this disease and, most importantly, help provide care, comfort and compassion to those affected by it. I recognized the growing concern of Lyme disease early on and selected Dr. Kari Bovenzi, one of New York’s foremost experts on treating and combating Lyme disease, especially among children, as my 2013 Senate ‘Woman of Distinction.’ I am honored to be part of this bi-partisan task force and look forward to working with my colleagues to find real solutions and responsive public policies to better identify, prevent and treat Lyme disease.”
Senator Ball said: “The Hudson Valley has an extremely high concentration of Lyme and tick related diseases. It is vital that we work together as lawmakers to improve treatment and ultimately towards preventing these life-changing diseases. I am honored to serve on this task force and I look forward to working closely with my colleagues to develop innovate ways to combat these diseases.”
Senator Larkin said: “I want to thank Senate Majority Co-Leaders Skelos and Klein for recognizing the importance of Lyme and tick-borne diseases and making their prevention and treatment a priority for the Senate. With the extreme prevalence of Lyme and other tick-borne illnesses in the Hudson Valley, I am looking forward to making sure that the needs of our friends, neighbors, and family members who suffer from these debilitating diseases are addressed.”
The task force will explore innovative ways of addressing tick densities, such as the “Four- poster” deer tick program that uses deer feeding stations designed in such a way that the animal must put its neck, where most of the ticks congregate, through two gentle rollers that contain an insecticide to kills ticks. Studies of the four-poster system, including one by Cornell, have shown a remarkable reduction in the tick population.
The Task Force will review research, consult with experts, hear from the public and work with the appropriate State and Federal agencies in developing recommendations for a New York State Action Plan on Lyme and tick-borne diseases which can serve as a comprehensive roadmap for the state to improve diagnosis and treatment to prevent future tragedies.
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LET`’S get the lead out and MOVE on this!!!-and read Plum Island (it`s on amazon)
WE’LL I HAVE GONE THROUGH A LOT FOR 10 YEARS AND THEN AUGUST OF 2012 BEEN DIAGNOSED WITH CHRONIC NEUROLOGICAL LYME DISEASE, I HAVE BEEN THROUGH TEST AFTER TEST WITH NO ANSWERS, MEDICINE AFTER MEDICINE DR. AFTER DR. AND LOST A GREAT DEAL OF MONEY AS INSURANCE DOES NOT PAY A LOT IF ANY. LIKE I SAID I HAVE BEEN THROUGH A LOT, I HAD A CLOGGED TEAR DUCT THAT HAD GOTTEN INFECTED SO IN OCTOBER OF 2012 WENT TO HAVE SURGERY AND FOUND OUT I WAS EXPECTING A BABY AND COULDN’T HAVE THE SURGERY NOW I HAVE GONE THROUGH HELL WITH MY EYES FOR 4 YEARS SO I WAS A LITTLE UPSET, ANYWAY MY EYES HEALED NEVER NEEDED SURGERY OR ANYTHING ELSE DR’S HAVE DONE TO ME. THAT WAS ONE OF THE MANY STORIES THAT I HAVE BEEN THROUGH BECAUSE OF THE LACK OF KNOWLEDGE OF LYME DISEASE AND WOULD LIKE IT IF DR’S LEARNED AND WANTED TO LEARN ABOUT SUCH ISSUES
The Panel should try to determine the total days that people are on disability due to Lyme. And the total cost.
Wonder if anyone out there suffering from Lyme has tried the new treatment ACS220, a form of non-colloidal silver given in conjunction with antibiotics that is said to kill the Lyme spirochete in 8 minutes. Would like to know more about this treatment
Erika, Please let me know if you find anything about that ACS220 treatment. Google didn’t bring anything up about it. I used to make my own colloidal silver and now use a molecular silver which is more effective, but is only slowing down the progression of my Lyme’s, NOT CURING it. I live in the Hudson River Valley area of NY, which is tick & lyme capital of USA. I get bit all the time, so I need a constant solution, not a one time fix. Others around me seem to be tick resistant, while I seem to be a tick magnet. Not ever doing typical AMA solutions (drugs/antibiotic therapies) again, the AMA is obviously run by a bunch of greedy morons in the palm of big pharma’s hand, so I need a real solution. Sorry for venting. Just let me know if you find anything…
Lyme disease is at a critical epidemic numbers. I live by Thatcher Park and I know 11 friends suffering horribly from lyme disease. The doctors do not understand the treatments, time line and what to do. I have joined the NYS Task Force to get the dollars moving into the townships to combat this epidemic. I have emailed three Senate members. Help us now. Thank you. Cheri D.Voorheesville.
Politicians feel like they are really accomplishing something if they pass a bill or two about “making sure people are aware of the dangers…” which does as much as “sticking a finger into a bursting dike” for the millions of people ALREADY INFECTED with the disease, and who can’t afford to fly to countries (like Germany) that are really doing something about CURING the disease, not just treating the symptoms. More effort and money needs to be spent towards helping people get HEALED! NOT with antibiotic treatments eiher which don’t work anyway, and kill your immune system allowing the next debilitating disease to come along and finish you off. Keep Big Pharma out of the loop and FORCE the insurance industry to pay for the treatments to CURE this disease, and don’t threaten MD’s that are trying to help-with yanking their MD License, and we might actually get some cures that work! I’ve had Lyme Disease for 3 years now, and just had a “bullseye” fade away from my 4th tick bite. Need some help!!
Bravo! A much needed action! Tick eradication is important. The roller on deer is helpful but the three life cycles of Lyme ticks occur on mostly rodents and birds.
Why am I getting “the run around” from Medicare in regard to reimbursement for payments to my three times Bd. Certified, Congressional Advisor doctor?? I have Medicare, Bluecross/blueshield, GHI, SHIP, and a Met Life Long Term Policy. I am out of pocket nearly $20,000. Can’t afford to return to doctor. Doctors recommended by Medicare have dropped out. Totally disgusted! Now that Lyme/Tick Borne Illnesses has been connected to Syphilis , with all the same symptoms and results I am very concerned. I am NOT an experiment!
I did not realize this was formed four years ago?!? What is going on? If there are 300,00 cases according to the CDC, what are 300,000 people doing?? Why aren’t there class action law suits? protesting?? On TV, etc?? In the newspapers??