By Shirley Strong

Dear Lyme Disease Doctors and Everyone Who Cares:

I’m reaching out to share something really important and close to my heart. This isn’t just about me. It’s about all of us who are fighting Lyme disease, and it’s about the friends I’ve lost along the way.

Yes, I’ve lost friends to this disease, and it hurts like nothing else. I’ve been fighting Lyme for over 13 years now, and it’s been tough. Not just the disease itself, but trying to get the help I need and seeing others struggle too.

The biggest problem we’re facing isn’t just the sickness. It’s how hard it is to get the right care without breaking the bank. I’ve been there, trying to make ends meet while knowing I need treatment I just can’t afford. It feels like if you don’t have the money, you don’t get the help. That’s not right. I’ve worked hard all my life, and when you need help the most, it should be there for you.

Not just about money

But here’s the thing – it’s not just about the money. It’s about losing people. Friends I’ve laughed with, cried with, and hoped with. They’re not just numbers; they were real people who had their lives cut short by Lyme disease. And every time we lose someone, it hits me hard because I know I could be next. That fear never goes away.

So, what am I asking for? I want us to do better. For doctors to really listen and help us. For everyone to understand that Lyme disease can destroy lives and families. And for some compassion from a system that seems to forget we’re human beings just trying to survive.

To my fellow Lyme fighters, I’m with you. Your pain is my pain. We’ve got to keep pushing for change, for better treatment, and for hope. We owe it to those we’ve lost to not give up. Let’s make sure our voices are heard. Let’s fight for a future where Lyme disease isn’t a death sentence or a financial ruin. We deserve better, and it’s time we get it.

Shirley Strong lives in Illinois. This blog was originally posted on her Facebook page.